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Does anyone have Lymphedema?



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I was diagnosed 2 years ago with Lymphedema in my lower legs. My cankles (how I call them) were huge and my calves soon became extremely large-

I saw the vascular surgeon and he referred me for therapy- I went EVERYDAY for 2 weeks for banding and then wore compression stockings every day- Once the compression stockings started getting stuck where my legs meet my foot they told me I needed something more at night- ( I was wearing my stockings from 7:30 am t0 7:30 pm) so I got these Reed sleeves- they are like boots for your calves and have pressure straps that go up mimicing the banding and stockings- They are very cumbersome and I hate them plus they fall off at like 2am only after being on for about 4 hours because the swelling goes down.

I was told my problem was due to my having auto immune problems, thyroid cancer treatments and being over weight and that when I lost weight the swelling would get better-

My question is that if any of you have lympnedema and how long if you were cured did it take? I know there is no "cure" so to speak you just manage it from becomming worse and worse but I am SOOOOOOOOOOOOO over it and am looking so forward to wearing skirts and sandles but am still too conscious of my lower legs to do so...

HELP!!!!!!!!!!!!!!!!!!!:crying:

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I was diagnosed 2 years ago with Lymphedema in my lower legs. My cankles (how I call them) were huge and my calves soon became extremely large-

I saw the vascular surgeon and he referred me for therapy- I went EVERYDAY for 2 weeks for banding and then wore compression stockings every day- Once the compression stockings started getting stuck where my legs meet my foot they told me I needed something more at night- ( I was wearing my stockings from 7:30 am t0 7:30 pm) so I got these Reed sleeves- they are like boots for your calves and have pressure straps that go up mimicing the banding and stockings- They are very cumbersome and I hate them plus they fall off at like 2am only after being on for about 4 hours because the swelling goes down.

I was told my problem was due to my having auto immune problems, thyroid cancer treatments and being over weight and that when I lost weight the swelling would get better-

My question is that if any of you have lympnedema and how long if you were cured did it take? I know there is no "cure" so to speak you just manage it from becomming worse and worse but I am SOOOOOOOOOOOOO over it and am looking so forward to wearing skirts and sandles but am still too conscious of my lower legs to do so...

HELP!!!!!!!!!!!!!!!!!!!:(

I don´t have lymphaedma, but at one of the offices where I work the Therapist is a lymphadema specialist. Sometimes we see people for 1 1/2 hours everyday for 4-6 weeks.

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