Ms.Bee 0 Posted March 1, 2008 Does anyone have pseudotumor cerebri?? I was just banded on 2/26/08 and I have PTC. I am in desperate need of others experiences with the surgery and PTC. There isn't a whole lot of info out there and I have had a hard time with headaches and medicine since getting banded. I would be grateful for any information. Thanks! Share this post Link to post Share on other sites
pvchickie 0 Posted March 2, 2008 I was diagnosed with pseudotumor cerebrii 9 years ago. Over the past 3 years symptoms have gotten much much better and i no longer need medication for it. I was banded in Oct of 07 and all is going well. Please know that I just said a prayer for you and your health. Praying your symtoms subside and you feel better. Take care, GBYalways pvchickie Share this post Link to post Share on other sites
Melody2006 1 Posted July 18, 2008 I have PTC disease and the medications never worked for me. I had to have a VP shunt. I was just recently banded and hoped that the banding would help further. Please let me know if yours did. Share this post Link to post Share on other sites
mom of many 0 Posted July 21, 2008 Melody, Yes I have IH and on meds for the last almost 2 years. After Lumbar punctures and the possiblity of a shunt I decided to go with meds to control it. I have went from 1500 mlgrams of diomox to just 250 -500 mlgrams. It's still there, however, my decission to have the surgery was because of the reccomendation from my doctors. I made the right choice for me. You should discuss it with your doctors and research all aspects of the surgery and IH. How long have you had it? I must say its the best decission I ever made for myself and my heath. P.S. Hoping to come off meds completly withing the next 6 months. We will see. Share this post Link to post Share on other sites