Cancer Post Surgery.

[ShoppGirl 4,844]

I wasn’t going to discuss this on these boards since I don’t want to turn the discussion away from weight loss. I figured I would talk cancer at the cancer support group and weight related stuff here, but I am quickly realizing that it’s very much intertwined.

I had my revision surgery to SADI on 8/7/2024 and I felt something on my breast in the shower in September. I went to gyno, got sent to get a diagnostic mammogram and ultrasound and then biopsies and it came back as cancer 11/6/2024 (about 4 months post op). A few days later I was with the breast surgeon and was told it was triple negative and it’s very aggressive so the process is a little different for me in that it’s all very fast moving but it’s pretty much the same collection of treatments for most cancer I believe.

I am currently two rounds into chemotherapy and just started immunotherapy and also doing appointments for all kinds of scans and imaging as well as meeting the rest of my doctors and setting up my future treatments which will be double mastectomy, then radiation and then maybe oral chemo. Basically I have not sat down since I learned the diagnosis and I have had to learn a tremendous amount very fast to make some pretty heavy decisions very quickly to keep the ball rolling. It’s been a whirlwind

From a bariatric standpoint things have been incredibly challenging. For one my appointments are all over Florida. I have a medical oncologist, a breast surgeon, a cosmetic breast surgeon, a radiation oncologist, and a second opinion oncologist and now a gynocologist in the mix but that’s pretty specific to me. So far and I have had to have imaging done at 3 different places as well since it’s all been so rushed it’s just about who can get me in the soonest and then since these places aren’t connected I have to wait around for records and discs and carry them all to each of my appointment to make sure everyone has everything

I have been traveling non stop with little time to prepare things so prioritizing my nutrition and exercise has been a huge challenge just in terms of time. There are just not enough hours in the day!! Then there is the chemo, the shot that builds up your white blood cells, and the immunotherapy infusion which also take time (2-3 different appointments depending on how it works out that week) but also all of this effects my cravings and energy.

First there is the fact that I have to be on steroids which we all know are the enemy of weight loss but also the fact that eating is different. I consider myself very fortunate that food doesn’t taste bad to me and nausea is not an issue like it is for so many but it’s still not the same. I crave something very specific. I taste it and it’s good but I eat three bites and don’t want it anymore. My refrigerator is a leftover graveyard lol.

In terms of energy I am on the strongest treatment regimen the oncologist says so fatigue sorta goes with the territory. I have been walking everyday still except for the biopsy day and my chemo port surgery day and I have done my yoga when my schedule permits but I have not done my cardio class because I think I sweat too much considering how dehydrating the chemo already is. Also I can’t touch community stuff for 24 hours after chemo without possibly exposing others to the chemo drug and we use balls, bars, discs, etc. Also more recently there is the fact that I have lost about 85% of my hair and I get too hot to wear a hat. I think once I’m bald it will actually look better and I am going to try really hard to just get over that but right now I don’t look like I have cancer. It just looks like a botched hair cut to me so I’m living in hats. The good news is it’s going very fast. It started falling out last week and it’s almost gone already so by next week I think I will just be bald.

Well, yesterday I did totally forget to exercise with all that I had going on and I’m feeling guilty today now that I remembered but I know that’s silly. I am just hoping that as treatment goes on I am able to keep up my exercise. All the doctors say it’s good to keep pushing myself just not too hard. Exercise and good nutrition are going to make this alot easier on me.

Back to food again. Not sure if it’s just the stress of the whole situation or the fact that chemo puts you into early menopause but Thursday was a particularly bad day. My moods were erratic to say the least and I had a bunch of blood drawn after having nothing but a Protein Shake all day so at 7pm I was pretty much famished by the time we stopped to eat. Olive Garden was the most convenient option and I planned Soup and salad but when I got in there that went out the window. I went totally off plan. Again I feel guilty but these darn steroids and all the crazy emotions are making it so much harder to make the better choices when it’s staring at me tempting me I did still get my Protein for the day though if there is any good in that

What’s really hard about this is that even with the Pasta and bread I am actually still losing weight so for my previously obese brain it’s tempting to not just enjoy that while it lasts. But I know that the processed crap is not good for my body, especially right now. I don’t feel as good since I have not been exercising as much and I’ve been eating off plan. I don’t sleep as well at night and I seem to crave more and more junk as well as have less energy throughout the day.

thankfully my program has provided to me free of charge an oncology dietician, but I am her first patient who is actively still in weight loss phase undergoing chemo. She had agreed to check in with me once a week since this is new for both of us and she seems amazing so far. She suggested that I do not lose more than two to three pounds a week which was my average before the chemo. Because the chemo has apparently sped up my metabolism she says that I need to increase calories but to add healthy ones which is extremely difficult because adding calories goes against all we just learned and over 2000 calories of healthy food is a very large volume of food that my body is just not wanting right now (I was eating around 900-1000 before this and already felt like I was eating all day. And remember that most of these meals are on the road these days so I have to eat what I can fit in a cooler or stop somewhere on the side of the highway most times. Not easy to find clean healthy food on the road.

Enough stating the obvious that it’s tough, here’s what I actually have to offer so far in terms of advice. First thing when I wake up in the morning I have a protein shake which is a really good head start to the day and if I am lucky enough to still be around a couple of hours later I have a second Breakfast instead of waiting until there’s time to eat on whatever adventure the day brings. That helps with the protein if I don’t have time to stop at all. Although recently the shakes haven’t gone down so well so I just wake up and have scrambled eggs with 2% cheese and whatever leftover veggies are on hand..

If I know I won’t have time for that I also have some boiled eggs In the fridge that I can eat real fast or slice up with some cheese and take on the go. I carry in my cooler a high protein yogurt drink, Chomps pepperoni flavored turkey Jerky and baby bell light or mozzarella sticks. It helps to put the ice pack in a ziplock with these items if you live where it gets hot. I also carry a bag with high protein Snacks Quest protein chips, kind minis, cliff minis, pistachio nuts, nut butter packets, quest cheddar cheese crackers, granola to add to yogurt, etc

Freezer meals!! Omg. I was doing these before my diagnosis and they were super convenient then and have been a lifesaver now. I have tex med chili, chicken chili, turkey meatballs, turkey taco meat, grilled chicken, meatloaf, etc in the freezer and it’s all measured and weighed out so that I can pop in the fridge the night before or even jet defrost in microwave if need be. When I have time to cook I do double batches so I can keep my freezer stock replenished. I have a note in my phone notes that it titled In freezer and I just keep adding to it what I freeze and how many portions are in there so if I’m not home I can check my freezer stock.

I also do a version of meal prep with chick fila as well I like their market and southwest salads (I get the market one without the blue cheese) I buy one of each with two extra chicken fillets and take them home and I make four salads out of that. I take off all the toppings with a bit of lettuce and put into a smaller container to make a market salad and do the same with the southwest. Then I put the leftover lettuce with the chicken into another container and I have fresh shredded Parmesan in snack ziplocks and ceaser dressing also in ziplocks (sorta less pleasant looking but I figure less risk if bacteria than them tiny containers which are hard to get really clean since I am immunocompromised and infection is so dangerous right now) i cut off a corner and squeeze it out like an icing bag. I just use half of the packets of dressing with the market and southwest salads and then toss the rest. I have the ziplock containers that have the twist top lids and these are easy to toss into the cooler when they do not open at all

I still log my macros in Baritastic this has really been helpful for me to be honest about what I’m eating with my oncology dietician so she can keep me on track . It also lets you log your activity, weight, inches lost and set notifications for Vitamins and stuff. I added a reminder to put on my fitness watch and to take my regular meds too

I also carry my Water with me and I set alarms again to drink. You have to wear a mask and for me that seems to make me drink like a quarter as much as I do without one so I have to have reminders again. Vitamins need alarms too. Chemo brain is a real thing and when your days is never the same it’s hard to have a routine anyways so I actually have alarms for just about everything in life right now. I made different tones for water, vitamins and appointments and I have a checklist to go over before I leave the house to make sure I did and packed everything. My friend and family also have reminders for me in their phones for the real important stuff and they call or text to make sure I haven’t forgotten.

I just found out that two of the programs I belong too offer virtual yoga sessions. I haven’t tried it yet because they are at set times as well but I added them to my calendar as recurring appts just like the live one so I can attend whichever one I have time for. Someone else suggested you tube for videos but I haven’t tried that either. Yoga by the way is my only sense of calm throughout all of this so I HIGHLY recommend it. That and meditation I know that both of these sound a little fruity before you give them a good fair try and meditation takes a lot of practice before it really Did anything for me but I swear my mind runs non stop with anxiety and worry and for that one hour I’m in yoga or the few minutes I’m meditating it is at peace. It’s amazing!!

So I am a little over a month into this and I’ve got a good year and a half to go if all goes well so I’m sure I will have more to add to this but I just wanted to pop In and share what my experience has been juggling a new cancer diagnosis while pretty early out from bariatric surgery. I hope this helps someone. Even if it’s less advice and more to let you know that you are not alone in the struggle.

Edited Saturday at 05:22 PM by ShoppGirl

[NeonRaven8919 426]

33 minutes ago, ShoppGirl said:

I wasn’t going to discuss this on these boards since I don’t want to turn the discussion away from weight loss. I figured I would talk cancer at the cancer support group and weight related stuff here, but I am quickly realizing that it’s very much intertwined.

I had my revision surgery to SADI on 8/7/2024 and I felt something on my breast in the shower in September. I went to gyno, got sent to get a diagnostic mammogram and ultrasound and then biopsies and it came back as cancer 11/6/2024 (about 4 months post op). A few days later I was with the breast surgeon and was told it was triple negative and it’s very aggressive so the process is a little different for me in that it’s all very fast moving but it’s pretty much the same collection of treatments for most cancer I believe.

I am currently two rounds into chemotherapy and just started immunotherapy and also doing appointments for all kinds of scans and imaging as well as meeting the rest of my doctors and setting up my future treatments which will be double mastectomy, then radiation and then maybe oral chemo. Basically I have not sat down since I learned the diagnosis and I have had to learn a tremendous amount very fast to make some pretty heavy decisions very quickly to keep the ball rolling. It’s been a whirlwind

From a bariatric standpoint things have been incredibly challenging. For one my appointments are all over Florida. I have a medical oncologist, a breast surgeon, a cosmetic breast surgeon, a radiation oncologist, and a second opinion oncologist and now a gynocologist in the mix but that’s pretty specific to me. So far and I have had to have imaging done at 3 different places as well since it’s all been so rushed it’s just about who can get me in the soonest and then since these places aren’t connected I have to wait around for records and discs and carry them all to each of my appointment to make sure everyone has everything

I have been traveling non stop with little time to prepare things so prioritizing my nutrition and exercise has been a huge challenge just in terms of time. There are just not enough hours in the day!! Then there is the chemo, the shot that builds up your white blood cells, and the immunotherapy infusion which also take time (2-3 different appointments depending on how it works out that week) but also all of this effects my cravings and energy.

First there is the fact that I have to be on steroids which we all know are the enemy of weight loss but also the fact that eating is different. I consider myself very fortunate that food doesn’t taste bad to me and nausea is not an issue like it is for so many but it’s still not the same. I crave something very specific. I taste it and it’s good but I eat three bites and don’t want it anymore. My refrigerator is a leftover graveyard lol.

In terms of energy I am on the strongest treatment regimen the oncologist says so fatigue sorta goes with the territory. I have been walking everyday still except for the biopsy day and my chemo port surgery day and I have done my yoga when my schedule permits but I have not done my cardio class because I think I sweat too much considering how dehydrating the chemo already is. Also I can’t touch community stuff for 24 hours after chemo without possibly exposing others to the chemo drug and we use balls, bars, discs, etc. Also more recently there is the fact that I have lost about 85% of my hair and I get too hot to wear a hat. I think once I’m bald it will actually look better and I am going to try really hard to just get over that but right now I don’t look like I have cancer. It just looks like a botched hair cut to me so I’m living in hats. The good news is it’s going very fast. It started falling out last week and it’s almost gone already so by next week I think I will just be bald.

Well, yesterday I did totally forget to exercise with all that I had going on and I’m feeling guilty today now that I remembered but I know that’s silly. I am just hoping that as treatment goes on I am able to keep up my exercise. All the doctors say it’s good to keep pushing myself just not too hard. Exercise and good nutrition are going to make this alot easier on me.

Back to food again. Not sure if it’s just the stress of the whole situation or the fact that chemo puts you into early menopause but Thursday was a particularly bad day. My moods were erratic to say the least and I had a bunch of blood drawn after having nothing but a Protein Shake all day so at 7pm I was pretty much famished by the time we stopped to eat. Olive Garden was the most convenient option and I planned Soup and salad but when I got in there that went out the window. I went totally off plan. Again I feel guilty but these darn steroids and all the crazy emotions are making it so much harder to make the better choices when it’s staring at me tempting me I did still get my Protein for the day though if there is any good in that

What’s really hard about this is that even with the Pasta and bread I am actually still losing weight so for my previously obese brain it’s tempting to not just enjoy that while it lasts. But I know that the processed crap is not good for my body, especially right now. I don’t feel as good since I have not been exercising as much and I’ve been eating off plan. I don’t sleep as well at night and I seem to crave more and more junk as well as have less energy throughout the day.

thankfully my program has provided to me free of charge an oncology dietician, but I am her first patient who is actively still in weight loss phase undergoing chemo. She had agreed to check in with me once a week since this is new for both of us and she seems amazing so far. She suggested that I do not lose more than two to three pounds a week which was my average before the chemo. Because the chemo has apparently sped up my metabolism she says that I need to increase calories but to add healthy ones which is extremely difficult because adding calories goes against all we just learned and over 2000 calories of healthy food is a very large volume of food that my body is just not wanting right now (I was eating around 900-1000 before this and already felt like I was eating all day. And remember that most of these meals are on the road these days so I have to eat what I can fit in a cooler or stop somewhere on the side of the highway most times. Not easy to find clean healthy food on the road.

Enough stating the obvious that it’s tough, here’s what I actually have to offer so far in terms of advice. First thing when I wake up in the morning I have a Protein shake which is a really good head start to the day and if I am lucky enough to still be around a couple of hours later I have a second Breakfast instead of waiting until there’s time to eat on whatever adventure the day brings. That helps with the protein if I don’t have time to stop at all. Although recently the shakes haven’t gone down so well so I just wake up and have scrambled eggs with 2% cheese and whatever leftover veggies are on hand..

If I know I won’t have time for that I also have some boiled eggs In the fridge that I can eat real fast or slice up with some cheese and take on the go. I carry in my cooler a high protein yogurt drink, Chomps pepperoni flavored turkey Jerky and baby bell light or mozzarella sticks. It helps to put the ice pack in a ziplock with these items if you live where it gets hot. I also carry a bag with high protein Snacks Quest protein chips, kind minis, cliff minis, pistachio nuts, nut butter packets, Quest cheddar cheese crackers, granola to add to yogurt, etc

Freezer meals!! Omg. I was doing these before my diagnosis and they were super convenient then and have been a lifesaver now. I have tex med chili, chicken chili, turkey meatballs, turkey taco meat, grilled chicken, meatloaf, etc in the freezer and it’s all measured and weighed out so that I can pop in the fridge the night before or even jet defrost in microwave if need be. When I have time to cook I do double batches so I can keep my freezer stock replenished. I have a note in my phone notes that it titled In freezer and I just keep adding to it what I freeze and how many portions are in there so if I’m not home I can check my freezer stock.

I also do a version of meal prep with chick fila as well I like their market and southwest salads (I get the market one without the blue cheese) I buy one of each with two extra chicken fillets and take them home and I make four salads out of that. I take off all the toppings with a bit of lettuce and put into a smaller container to make a market salad and do the same with the southwest. Then I put the leftover lettuce with the chicken into another container and I have fresh shredded Parmesan in snack ziplocks and ceaser dressing also in ziplocks (sorta less pleasant looking but I figure less risk if bacteria than them tiny containers which are hard to get really clean since I am immunocompromised and infection is so dangerous right now) i cut off a corner and squeeze it out like an icing bag. I just use half of the packets of dressing with the market and southwest salads and then toss the rest. I have the ziplock containers that have the twist top lids and these are easy to toss into the cooler when they do not open at all

I still log my macros in Baritastic this has really been helpful for me to be honest about what I’m eating with my oncology dietician so she can keep me on track . It also lets you log your activity, weight, inches lost and set notifications for Vitamins and stuff. I added a reminder to put on my fitness watch and to take my regular meds too

I also carry my Water with me and I set alarms again to drink. You have to wear a mask and for me that seems to make me drink like a quarter as much as I do without one so I have to have reminders again. Vitamins need alarms too. Chemo brain is a real thing and when your days is never the same it’s hard to have a routine anyways so I actually have alarms for just about everything in life right now. I made different tones for Water, vitamins and appointments and I have a checklist to go over before I leave the house to make sure I did and packed everything. My friend and family also have reminders for me in their phones for the real important stuff and they call or text to make sure I haven’t forgotten.

I just found out that two of the programs I belong too offer virtual yoga sessions. I haven’t tried it yet because they are at set times as well but I added them to my calendar as recurring appts just like the live one so I can attend whichever one I have time for. Someone else suggested you tube for videos but I haven’t tried that either. Yoga by the way is my only sense of calm throughout all of this so I HIGHLY recommend it. That and meditation I know that both of these sound a little fruity before you give them a good fair try and meditation takes a lot of practice before it really Did anything for me but I swear my mind runs non stop with anxiety and worry and for that one hour I’m in yoga or the few minutes I’m meditating it is at peace. It’s amazing!!

So I am a little over a month into this and I’ve got a good year and a half to go if all goes well so I’m sure I will have more to add to this but I just wanted to pop In and share what my experience has been juggling a new cancer diagnosis while pretty early out from bariatric surgery. I hope this helps someone. Even if it’s less advice and more to let you know that you are not alone in the struggle.

I'm so sorry to hear you're going through all of this. But you got this! We're all here to support you.

[ShoppGirl 4,844]

Oh, I forgot to mention for breast cancer if someone is considering reconstruction afterwards, which I am, the cosmetic surgeon said there is no rush for his part. They are going to put in expanders during my mastectomy and they can stay in a pretty long time safely. This means that I can wait until I reach my goal weight to do the cosmetic part. The way it works. Is they put in the expanders in and they are like deflated balloons that are sewn to the chest wall and slowly inflate them a little bit at a time each week until you find a size that suits your body. But if I’m still actively losing, that may be too big so they can also deflate it if I want to until I find a size that is comfortable for me and my body is settled and then schedule the surgery. Since that’s just the cosmetic part, the cancer will already be gone. Well, I know that when I lost weight with the sleeve, I had bounced back weight. So I think I’m going to stick with the expanders for a while and just make sure that my body doesn’t change before I commit to something in a surgery. They did say that if you gain a significant or lose a significant amount of weight and the implant shifts or whatever that they will do surgery again, but of course that’s costly and painful and I’m already just about sick of doctors so I’m sure by then I won’t want to do that. Anyways, that is an option someone else may want to consider as well. Some doctors tried to push doing both parts of the surgery in one, skipping the expanders and just putting the implants in right away, but my doctor did not recommend that for my situation.

Edited Saturday at 05:54 PM by ShoppGirl

[Spinoza 1,399]

As ever, you have been generous with your time and with sharing information @shoppgirl.

I am so sorry that you are going through all of this. I cannot think how you are coping.

I know we had our sleeves at the same time.

Much love.

[Arabesque 7,313]

Oh my gracious @ShoppGirl what a battle you have been fighting. But it sounds like you are facing this with your usual strength & focus though I’m sure there are days that are extremely difficult. I think it ‘s amazing you are still trying to balance your weight loss with your treatments. And it sounds like you have a great attitude around doing the best you can when you can & f*@k the days you can’t.

You were enjoying your yoga and am glad you have access to some virtual classes. I too love the inner peace yoga provides. (I still get it with the few yoga stretches I do at home.)

Sending blessings your way.

[ShoppGirl 4,844]

One thing I forgot to mention is that I also decided to just tell the women at my yoga class a vague version of what I am going through. Not because I am seeking attention or pity as some people may believe but because the doctors told me that with the first phase of chemo I need that I would no doubt be losing my hair and not to even torture myself trying cold caps because they wouldn’t work for me. I didn’t want to have to miss any days trying to hide that when it was inevitable that they would find out anyways. I can’t wear a wig to yoga without dying of heat stroke even if I can find one that doesn’t irritate my head and won’t fall off doing downward dog. Also, I have to wear a mask until class starts and I’m at my mat and far enough away from people. Also, with the chemo i do get a little dizzy at times and physically I have to take a tiny break once in a while which doesn’t go unnoticed I’m sure.

I just decided that I have no clue what is going to happen with my body in days to come but I’m going when I can and doing as much as I can. I’m not missing something that is good for my health, weight loss journey and that I really enjoy just to try and keep something a secret. I have spent enough of my life hiding because of my weight and I have finally broken free of that. I’m not going back in that dark place ever again. I am usually a pretty private person so it was a big choice for me with sharing about the bariatric surgery and now with the cancer, but so far I am happy with my decisions for both. I just told them that I don’t want them to make a big deal about it that we are there to relax and do yoga, but I just didn’t want to feel awkward wondering what they must be thinking so I was just getting it out there.

It was partly because I did the same with my revision surgery and it has worked out positively for me. With the sleeve I didn’t tell anyone outside of my best friends and that wasn’t successful so with the SADI i decided to try something different. I told the women in my crochet group and the one craft group because I have known them almost two years now (but not the one I joined more recently). They do ask how I’m doing or congratulate me on my weight-loss and ask what I’m eating and about my exercise, I briefly answer but then I will say enough about me we are here to craft and ask what they are working on today and that seems to work pretty well. So with yoga, now, I hope I can just walk in with my hat or wig and take it off before class begins and do my thing and when I take more an more breaks they will just ignore me. I’m sure it will feel really weird for me the first time when I’m bald because it was when i had to go really short and I was thinning with a head band covering most of the bald spots but everyone already knows about the elephant in the room now and hopefully we can just focus on YOGA. food for thought for those with the decision about cancer and for those on the fence about whether to tell about their bariatric journey as well because people who see you once or twice a week notice things and they are probably wondering. It has worked for me to just rip off the bandaid and move on.

Edited Sunday at 11:58 AM by ShoppGirl

[DaisyChainOz 346]

Wow, you are going through so much right now! I greatly admire your openess and your strength to be handling all of this with grace and good humour.

My husband is also going through Chemo, Immunity shots, weekly blood tests, scans etc and it's been a very hard road since his diagnosis and surgery in March.

I mention this just to let you know, that I know how hard it's been on him, but he didn't have the Bariatric surgery to deal with as well!!

You're doing great, I wish you all the very best on this journey! 🤗