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Frustrated, but still determined...



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While en route to my pre op appointment, just before I get off the exit, I get a call from my surgeon's Nurse telling me we have to delay my surgery by 6 months, and there was no point in coming in.

Not the news I wanted to hear, I said I was almost there. She said, well just come in & talk to the doctor.

I have an auto immune disorder called Wegner's Granulomatosis and receive an infusion of an monoclonal antibody drug called rituximab twice a year, and apperently some doctors believe you should wait 6 months after an infusion to have surgery ---- but that's for knee replacements, not gastric sleeve.

Long story short after talking to the doctor today and him explaining to me what his concerns are (he doesn't want to do anything that may potentially cause leaks in my stomach and an extended hospital stay hooked up to ports to eat via a tube.)

So he's waiting to hear back from my rheumatologist so she and him can get on the same page. The hope is the dosage I get of my infusions is low enough that maybe it will only be a month or two delay.

So no surgery on April 12th for me. In either case I am down 56 lb since I started this journey last October and do not plan on letting this setback get me down.

Any other people in here going through this pre or post surgery and have an auto immune disorder?

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Hey there, congrats on your 56lb weight loss! I don’t have an auto immune disorder, just wanted to let you know I appreciate how determined you are in the face of such setbacks. It really shows how much you want this for yourself. Best of luck with everything!

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Congratulations on the weight loss and I can understand how this can be frustrating. I have lupus and I am in the pre op stage. I do not receive any infusion treatments. I hope that your surgery will only delay you for a month or so.

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I just got a call from my surgeon's Nurse. The issue that postponed my surgery with the autoimmune treatment has been cleared up, I have my original 4/12 surgery date back.

So I will enjoy some chicken wings tonight & tomorrow starts the liquid pre-op diet!

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    • cryoder22

      Day 1 of pre-op liquid diet (3 weeks) and I'm having a hard time already. I feel hungry and just want to eat. I got the protein and supplements recommend by my program and having a hard time getting 1 down. My doctor / nutritionist has me on the following:
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      1. NickelChip

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