Was diagnosed with MCAS and now need advice on low histamine diet... HELP!

[NovaLuna 710]

So I have been having some really bad rashes and some other symptoms for months now that I just never pieced together and thought 'these are being caused by the same thing'. Well, it turns out that I have something called MCAS which stands for Mast Cell Activation Syndrome. Basically my body is producing too much histamine, taking in too much histamine, and then randomly attacking itself, etc. I was told I have to go on a low histamine diet and avoid trigger food or foods that make the histamine in my body basically stand at attention even if that particular food is low in histamine (chocolate... no chocolate! 😭). This includes no dairy because dairy tends to be high in histamine, but how the heck to I do that and get the Protein that I need? Is anyone else on a low histamine diet? I don't see the nutritionist until next month and I need the advice on my diet now so does anyone have any ideas? I could really use the help...

[learn2cook 587]

I just have regular allergies/asthma so I’m not familiar with your particular situation. I would suggest a long chat with your dietitian or your allergist’s dietitian. You may have to go on a strict elimination diet to get to the cause. You might need to carry an epi-pen. You might need mega dosages of antihistamines, I honestly don’t know. Your doctors and supportive professionals should be giving you more guidance. Ask them for help ASAP.

[janet dekker 5]

Hi i am not sure this will help you at all but my daughter has it as well the only thing that works for her is a compounding medication that the pharmacy makes up its called sodiumcromoglycate capsules 100mg she has to have them before she eats the only problem is we are in australia but you never know it may be of some help speak to your immunologist

[NovaLuna 710]

9 hours ago, janet dekker said:

Hi i am not sure this will help you at all but my daughter has it as well the only thing that works for her is a compounding medication that the pharmacy makes up its called sodiumcromoglycate capsules 100mg she has to have them before she eats the only problem is we are in australia but you never know it may be of some help speak to your immunologist

I'll look into it, thank you!