gastric distress Has anyone else had a Gastrojejuvenectomy?

[bzerm01 0]

I had my RNY gastric bypass in August of 2001 at that time had lost from 322 to at time of surgery weighed 295 pounds. I went on to lose more weight to 138 pounds by 2 years out. Then in February 8, 2016, (14 1/2 years out) I had a Gastrojejuvenectomy and hiatal hernia repair. I had gained weight up to 228 and my pouch had eroded and i had a hiatal hernia. Dr Blair Job of Pittsburgh, PA of the Esophageal and Lung institute was my surgeon at this time. I had this done at West Penn Hospital in Pittsburgh, which after this time and 2 more surgeries to come in the future with bad experiences, I don't wish to ever go there again. More to be revealed if anyone answers my question that has been through similar surgery. I had my pouch removed and now my digestive system consists of esophagus to small intestine. I have no stomach at all. I get severe bile reflux at times. I have attacks of chest pain that feel like muscle spasms in my esophagus and they can happen anytime. They last anywhere from 5-15 minutes. They leave my very uncomfortable,

I lost 4 pints of blood during this surgery and gained 30 pounds in that 8 hr surgery and my husband thought I was going to die. In the next 4 months I developed a wound infection and a dvt from my groin to my ankle and due to the fact that I had pe when I was 19 years old I will be on eliquis for the rest of my life.

Edited August 2, 2019 by bzerm01
post-op additional info not pre-op,

[RickM 1,750]

There seem to be several variants of gastrojejuvenectomy, with yours functionally being a total gastrictomy. This was on option that we were considering as a cancer treatment but ultimately rejected (or put off indefinitely.)

There are a number of Facebook groups dedicated to gastrectomy patients, both total and partial, and that would probably get you better answers than here, as that is a rare evolution for the RNY.

Bile reflux was one of my concerns as well, after seeing that sited frequently within the gastrectomy population. The surgeon that I was working with said that as long as he keeps that limb length to the anastomosis at (IIRC) 60 cm (though it may have been 80cm) that he doesn't see any bile reflux problems with his patients (of course, he is the doctor and not the patient....) so that would be one avenue of inquiry on that issue.

Good luck in getting all of this figured out and finding your answers