OK, so now what??!!

[notmyname 593]

I just want to cry. Scratch that, i have cried. Today is 4 months since surgery (sort of, since I had surgery 10/29). I had a great first two months. Felt good, everything was going smoothly. Then the acid reflux started. A bit at first, then worse, even on 2 Nexium a day. OK, I could handle that. Then, about a month ago, the nausea started. I just can't deal with it. Seems to be getting worse every day. I feel worse now than I ever did before surgery. I can eat less now than when I started on solid foods. This is the first time I haven't been able to hit my Protein goals since day 3 after surgery. I even have trouble getting in all of my liquids because I can't drink for forever after eating (maybe 1.5-2 hours). And I have to eat All.The.Time because I can eat so little at a time now. I'm doing my best, but the nurse is starting to worry they need to put in a PICC line to get fluids/nutrition in (luckily, she told me today she doesn't think that is necessary yet.

Had an upper GI. They found a hernia, but saw no GERD. I got a hold of my doc's nurse. She'd talked to my doc. They don't really know what is causing it. She said they could do an endoscopy, but that he thinks he won't really find anything new. And he doesn't want to repair the hernia (again) until I lose more weight. Doc apparently wants to revise to bypass. But, for a number of reasons, I don't. Particularly since they don't really know what's wrong and can't tell me the bypass will help. I mean, I can barely eat now - and if bypass doesn't fix it I'll be even more malnourished than I am now. So, for now, he's prescribed a different reflux med, given me anti-nausea meds, and OK'ed me to lower my protein goals (protein supplements REALLY make me sick).

my nurse keeps telling me that this isn't the rest of my life and they'll figure it out. But, I'm still worried and frustrated and sick as a dog. I'm not really looking for suggestions, or reasons I'm wrong not to want the bypass. My two close friends are having family emergencies and I don't want to burden them now. So I just need a space to let it out. Thanks.

And really glad I have an appointment with my therapist on Tuesday.

[2Bsmaller18 436]

Just a thought-have you tried alkaline Water. I can get a gallon for $4-$5 at the grocery store. It helped vs tap water when my reflux was bad.

[notmyname 593]

Just now, 2Bsmaller18 said:

Just a thought-have you tried alkaline Water. I can get a gallon for $4-$5 at the grocery store. It helped vs tap Water when my reflux was bad.

Thanks! I'll give it a try.

[New&Improved 1,780]

I've heard people fixing GERD and reflux with bypass but of course it varies

[redlipstick 3]

Hope this gets resolved soon.
I've dealt with hernias before. They fixed one when endoscopy was done to be cleared for gastric. Where is your hernia?

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[notmyname 593]

4 minutes ago, redlipstick said:

Hope this gets resolved soon.
I've dealt with hernias before. They fixed one when endoscopy was done to be cleared for gastric. Where is your hernia?

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Thanks. It's a hiatal hernia, so at the opening to the diaphram. I had one that they fixed during surgery. Nurse said if they're going to fix it, they'd like to wait until I lose more weight to lessen the liklihood of recurrence. For now, they're switching my reflux meds and monitoring my food/liquid intake - both of which have gone way down due to the nausea.

[redlipstick 3]

That's what I had too. Hopefully the meds will help.
Hernia are no joke.
I get it. It's frustrating and your in pain. You just want it to go away and do t want to do anything that will make it worse. At least that's how I felt when when I was going through my ordeal. Hang in There [emoji4]

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