Endometriosis & Weight Loss

[ChristieNandez 1]

Hi everyone! I am 37 years old and had a total hysterectomy 2 years ago due to endometriosis. The endo was really bad on my bladder and kidney's giving me horrible pain. Well since my hysterectomy my pain level is slim to none, that it until about a month ago. I have been on my pre-biratric surgery diet and have lost 15 pounds. Since this pain started, I did a little research and found that some people get the endometriosis pain back and/or worse with losing weight due to the hormones that are released during weight loss.

My question is, has anyone gone through anything like this? With me only being in pre-op right now, I am wondering how bad the pain gets with the post-op weight loss?

I understand my story is kind of unique, so anyone with any kind of advise with an experience close to this would be greatly appreciated.

Thank you!!!

[Sleeve1stFitNext 924]

I have endometriosis as well. I did not have a hysterectomy as I am 26 and do not have children (What the Doctors say because I have tried getting one a lot). However, I have an IUD which helps with my period. Even with not having a period as much, I still get random pain in the area for about 1 week. I get a sharp stabbing pain like my period is coming on the left or right side of my pelvis.

Unfortunately, due to the damage that was done to my surrounding organs, I was advised that I would have pain randomly for the rest of my life. It is not much I can do about it. However, they have suggested that staying active does help alleviate the pain.

[Kate D 41]

I had severe endometriosis which resulted in a total hysterectomy 4 years ago. My sleeve was done in Nov 2017 and I haven’t had any problems. Before my sleeve I would have random abdominal pain but I haven’t had any since. Hope all goes well for you!

[KNP78 1]

Kate D, how has your weight loss been? I also had everything removed 3 years ago and I take estradiol now. I’m just thinking that I may not lose as much, I have packed in the pounds and it’s almost impossible to lose. Having VSG in July.

[Pearldrop 164]

Hello hystersisters, I had a total hysterectomy in 2017 due to endometriosis & reoccurring fibrosis. I have had what felt like ovary pain, not severe just noticeable. It is a bit weird, but goes after an hour or so. I’ve had scans and there’s nothing there, its like a phantom ovary. If it’s giving you stress, have a scan to see if there’s any scaring or endometriosis left behind.

As to the pace of weight loss, I guess we’ll find out. I’m 4 days post op, I’ll check back on this thread on my weigh in date in 3 weeks and we can compare. Noting everyone loses differently.

I take progynova and that stops the horrific sweats and joint pain I experienced after the hysterectomy. Much like WLS I wish I’d had a hysterectomy years earlier but because I didn’t have children I had to wait until a dr decided I was ready grrr!!!

[Kate D 41]

On 06/07/2018 at 00:01, KNP78 said:

Kate D, how has your weight loss been? I also had everything removed 3 years ago and I take estradiol now. I’m just thinking that I may not lose as much, I have packed in the pounds and it’s almost impossible to lose. Having VSG in July.

Sorry for the late response. My weight loss has been slow but steady. I too, packed on the pounds after my hysterectomy. Don’t get me wrong, I was overweight to start with but after the hysterectomy my weight gain went to a whole different level. Good luck with your VSG. July is almost here!!!

[KNP78 1]

Thank you, I really appreciate the info😁

[JessaK 59]

@ChristieNandez any update?

I never had pain from my endo pain outside of my period until Jan of this year when a golf ball sized endo growth was taken off of my abdominal wall. From there the pain has been off the charts. I had an ablation that helped and went on Depot Lupron to keep it from returning quickly. The pounds packed on this year. I was sleeved on 10/22 and things have been going good but I definitely still have severe hip/back pain. Whenever a flair up happens, I stall or gain weight.