Would Like to share my story. It's not good and its not the norm

[frust8 963]

Thank you for your bravery,both living through it and for sharing it with us all. If you have more to share, I will be happy to listen.[emoji13]

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[2legsshort 19]

I just wanted all of you to know what can happen with bad info about aftercare with this surgery. I am lucky to be alive and I am still having problems which I will get into. One thing tho my labs are all pretty good now. At the time of this happening the doc that took care of me and nursed me back to health said it was the worst case of malnutrition he had ever seen. He still uses my case as an example of what can happen with this surgery if you don't follow what the docs tell you. Dr.Heap didn't inform us of these things and we both have suffered because of it. I am still having problems with things that are undoubtedly connected with letting myself get so far gone. I'm hoping I can make it another year or two but only one knows that for sure..

Edited March 23, 2018 by 2legsshort

[melissa1227 3]

I just wanted all of you to know what can happen with bad info about aftercare with this surgery. I am lucky to be alive and I am still having problems which I will get into. One thing tho my labs are all pretty good now. At the time of this happening the doc that took care of me and nursed me back to health said it was the worst case of malnutrition he had ever seen. He still uses my case as an example of what can happen with this surgery if you don't follow what the docs tell you. Dr.Heap didn't inform us of these things and we both have suffered because of it. I am still having problems with things that are undoubtedly connected with letting myself get so far gone. I'm hoping I can make it another year or two but only one knows that for sure.

I’m in hospital now getting TPN then surgery to go to bypass because I have a diverticulum in my sleeve and we have to reverse the malabsorption because I can’t stop loosing

[2legsshort 19]

Good luck. Wish I could have that done but it's too late for anything, but it can't really be done. I am not in good enough condition for any doc to want to perform surgery on me. I scared them when I even went in for an endoscopy and they put me out with propafol. I was only out for 15 min but my BP which was only at 130/38 when they started went down so low they weren't really amused by that. Scared the heck out of them but that is due to my heart. Will be thinking of you. I'm sure everything will work out fine.

It really sucks when you can't stop losing and can't gain, thats where I am at now.

[beccaconaty87 52]

Thank you so much for sharing [emoji170]

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[melissa1227 3]

Good luck. Wish I could have that done but it's too late for anything, but it can't really be done. I am not in good enough condition for any doc to want to perform surgery on me. I scared them when I even went in for an endoscopy and they put me out with propafol. I was only out for 15 min but my BP which was only at 130/38 when they started went down so low they weren't really amused by that. Scared the heck out of them but that is due to my heart. Will be thinking of you. I'm sure everything will work out fine.
It really sucks when you can't stop losing and can't gain, thats where I am at now.

Thanks! It does suck but it is what it is 🤪

[Sosewsue61 3,185]

You are one brave amazing man. Praise God you are alive. That hospital should be ashamed of your treatment and thank God for that doctor that kept you alive.

[KimTriesRNY 1,853]

Thank you for sharing your story.

[2legsshort 19]

One thing I will say about bariatric surgeons today is it still the same thing, a money game for them. They won't even talk to me because I am on Medicare. I even wrote to one in this state that does this surgery supposedly one of the better ones. His assistant got back to me and said pretty much, you don't have cash, you don't have good insurance (Medicare) see ya. When I did have good insurance they were falling over each other trying to get my business and cut me up.

[doxaholic 252]

I’m in hospital now getting TPN then surgery to go to bypass because I have a diverticulum in my sleeve and we have to reverse the malabsorption because I can’t stop loosing

melissa how do they reverse malabsorption?

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[melissa1227 3]

melissa how do they reverse malabsorption?

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Easiest way to RNY bypass but your small intestine can be put back or lengthen for less malabsorption in my case I also have a sleeve issue with a diverticulum causing me not being able to eat much and I started having gerd which medicine has helped

[2legsshort 19]

In my case this being a BPD-DS I had my last endoscopy and he was really surprised at how bad my esophagus was. He said I had acid reflux all the way to my neck. I am now on 80mg of Omeprazol and 1g of Sucralfate at bedtime. He said I had ulcers in my esophagus. Trying to get them healed.

For me a revision involves changing where the digestive juices come into my small intestine I have a 75cm common channel I think it is called it can be changed to have more like a 150cm common channel. so there would be more intestine to absorb nutrition.

Edited March 24, 2018 by 2legsshort

[melissa1227 3]

In my case this being a BPD-DS I had my last endoscopy and he was really surprised at how bad my esophagus was. He said I had acid reflux all the way to my neck. I am now on 80mg of Omeprazol and 1g of Sucralfate at bedtime. He said I had ulcers in my esophagus. Trying to get them healed.
For me a revision involves changing where the digestive juices come into my small intestine I have a 75cm common channel I think it is called it can be changed to have more like a 150cm common channel. so there would be more intestine to absorb nutrition.

I’m on panotonix for gerd as well but with my endoscopy i had no ulcers etc

[doxaholic 252]

Melissa how did your surgery go

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