La_madam 20 Posted December 30, 2004 I agree with Sue..the cancer nurses are very familiar with ports. My son had cancer and had a port , I have spoken to one of them and told her about my port and she told me if I was ever filled too tight that she could extract some of the saline for me in an emergency. When I had the espohagitis, the only thing that worked wel lfor me was Clear Liquids, everything else made me so umcomfortable. I never had refluz or slime or spitting up but anything other then clear liquids irritated my esophagus horribly...after about 4 days of clear liquids, I weent to ful lliquids and I was able to tolerate them..then to mushys..then to solids but it was 2.5 weeks of this. Hang in there Kelli..I hope this all passes soon. I can sympathize with you. Share this post Link to post Share on other sites
kellymoos 4 Posted December 31, 2004 Thanks everyone!!! I have decided that I will go on clear liquids for the next 5 days....nothing else...I have managed to hold down some sips of Orange Gatorade. I think that after I do the 5 days of clear liquids that I should be fine. If I am not totally better by Monday then I will drive to kalamazoo to get help. Thanks again and any suggestions is greatly appreciated..... Share this post Link to post Share on other sites
hagerteresa 3 Posted December 31, 2004 Good luck Kelly and hang it there. I'm thinking about you, Teresa Share this post Link to post Share on other sites
paula 4 Posted December 31, 2004 Kelly, I cant believe I missed this thread!!! I am so sorry... Ive been having alot of problem with reflux too, but when Im swollen, I can still swallow my spit. I would pb Water, but never my saliva. You poor thing!!! I cant believe that Spiegel doesnt have a "back-up"??? What about the radiologist at Doctors Hosp??? I think...that you have irritated the stoma (the passageway where the band is causing the most pressure) and the more you try to eat, the worse it will get . I agree. And as long as everything is irritating your esphogus (sp?) -reflux, pb, vomit, certain foods - nothing is going to heal. Ive just thought all of this through on Tuesday, MY last episode of this crap. Try Fruit drinks... fruit is the easiest thing for our tummy's to digest, and its nourshing! NOT bottles of apple juice, Im talking about the single cans of peach necter, pear necter... less acid in these. Also, MOST restaurants have chedder brocolli Soup (Ruby Tusday's, Cracker Barrel), this is another one that helped FILL my tummy and was easy to digest. The restaurant's seem to make it thicker - and taste better. Im agreeing with Lisa to stick with warm things. I even drink my Water at room temp most of the time... just to avoid that "stopped-up" feeling. I still cant get over Speigel not having someone to take his emergencies!!! PLEASE - please complain to HIM. This is a man that is making MILLIONS, and can afford to train someone to give unfills for situations like this Share this post Link to post Share on other sites
kellymoos 4 Posted December 31, 2004 Well, Thanks again everyone.....Last night when I got home I took two sips of Water and that is all I have had. I know that I am usually very tight in the mornings so I have not tried anything this morning. I did sleep last night without reflux. I have been managing to swallow my spit. I feel better. Paula, the Spiegel thing upsets me alot.....I don't know what to do anout it. He is mostly in Houston now....he is here at the beginning of the weeks, so even if on a Thursday this happens we have to haul our hinney's to Houston..... I have heard rumors that there is other Dr's around that are going to start doing the lap-band...who knows.... Share this post Link to post Share on other sites
leatha_g 4 Posted December 31, 2004 Kelly, Not to scare you, but these can be symptoms of slippage. You may seriously need someone to look at this under flouro. Have you had a recent fill? Do whatever it takes to not allow the nighttime reflux. Aspiration pneumonia is very common among bandsters. I'm really sorry you're going through this. Share this post Link to post Share on other sites
paula 4 Posted December 31, 2004 I have heard rumors that there is other Dr's around that are going to start doing the lap-band...who knows.... There is a Dr. Chung here in Lake Charles that started doing the lap-band on Nov. 1. Ive already talked to someone at his office and he refuses to touch any other bandsters that HE did not band. If he was wise..... oh the money that man could make!!!!! And ultimately, its IS all about the money! Thats why (I think) Spiegel went to Houston. money, money, money But thats not what this is about. Please address this issue to Spiegel. AND I would certainly take Lisa's advice and contact INAMED. Spiegel has two choices. He can fix the problem and find someone to handle emergencies, or he can choose to ignore it. I personally think that it would be in his best interest as a physician in such a SMALL area, to fix this problem. And I would talk to him - NOT any of his staff... including his wife! Share this post Link to post Share on other sites
kellymoos 4 Posted December 31, 2004 The last fill I had was on October 11th. Dr Spiegel's nurse called today to check on me and make sure that I was going to be ok..I told her that I think I will be fine and she told me to contact her if I needed anything over the weekend, so that made me feel better. I have drank 6 oz of hot cocoa and have kept it down. I heard if your band slips that everything you drink comes back up...is that not true? I really don't think I have slipped the band; just have what Michelle had a while back. I think that the liquids are going to work. Hopefully anyway!!!! Share this post Link to post Share on other sites
GeezerSue 7 Posted December 31, 2004 I think too many people worry about slipped and eroded bands, because many of those who DO have them had no symptoms. If you follow the cheddar broccoli Soup advice, skip the broccoli...meanwhile, do you have a Jamba juice nearby? Get a Peanut Butter Moo'd (or a chocolate Moo'd) with a Protein boost. It's Protein, it's VERY high in calories (sorry) and it's good. Arlington Whole Foods/Parkway 801 E. Lamar Blvd. Tel. 817.461.9362**Fax 817.461.1688 Austin Whole Foods/Gateway 9607 Research Blvd. #300 Tel. 512.345.5003**Fax 512.345.5331 One American ** accepts jambacard ** 600 Congress Ave. #G280 Tel. 512.478.8696**Fax 512.478.8605 Arboretum ** accepts jambacard ** 10710 Research Suite 306 Tel. 512.342.9998**Fax 512.342.9940 Guadalupe/Austin ** accepts jambacard ** 2300 Guadalupe St. #100 Tel. 512.275.0290**Fax 512.275.0291 Carrollton Park at Tollway / Carrollton ** accepts jambacard ** 3432 E. Hebron Pkwy #116 Tel. 972.407.0875**Fax 972.735.0283 Corpus Christi Corpus Christi ** accepts jambacard ** 5425 S. Padre Island Dr. #114 Tel. 361.906.2474**Fax 361.994.7892 Dallas Highland Park Village ** accepts jambacard ** 70 Highland Park Village Tel. 214.219.3338**Fax 214.219.3382 Whole Foods / Lemmon Center, Dallas ** accepts jambacard ** 4100 Lomo Alto Drive Tel. 214.559.2038**Fax 214.526.0074 Frankford & Preston/Dallas ** accepts jambacard ** 18204 Preston Rd. #E2 Tel. 972.665.0425**Fax 972.665.0426 Greenville / Dallas ** accepts jambacard ** 5923 Greenville Ave. Tel. 214.363.6461**Fax 214.363.6448 Westchester & NW Hwy / Dallas ** accepts jambacard ** 8421 Westchester Dr. Tel. 214.363.6828**Fax 214.363.6811 Fort Worth Sundance Square ** accepts jambacard ** 400 Main Street Tel. 817.870.1001**Fax 817.870.1878 Houston Post Oak/Houston ** accepts jambacard ** 2515 Post Oak Blvd. #A Tel. 713.850.1089**Fax 713.850.1153 Village Arcade ** accepts jambacard ** 2506 University Blvd. Tel. 713.529.3225**Fax 713.529.3661 Whole Foods/Kirby/Houston 2955 Kirby Dr. Tel. 713.520.1937**Fax 713.526.3976 Whole Foods/Bellaire/Houston 4004 Bellaire Blvd. Tel. 713.667.6588**Fax 713.667.4013 Royal Oaks / Houston ** accepts jambacard ** 11805 Westheimer #340 Tel. 832.327.0306**Fax 832.327.0307 Champions Village / Houston ** accepts jambacard ** 5403 FM 1960 West #580 Tel. 281.444.3930**Fax 281.444.3094 River Oaks / Houston ** accepts jambacard ** 2032 - A West Grey Tel. 713.523.4548**Fax 713.523.4598 Jack Rabbit / Houston ** accepts jambacard ** 13325 FM 1960 Tel. 281.897.9923**Fax 281.897.9942 Copperfield ** accepts jambacard ** 7017 Highway 6 North Tel. 281.463.9956**Fax 281.463.9819 Plano The Shops @ Legacy / Plano ** accepts jambacard ** 5700 Legacy Dr. #A2 Tel. 972.398.6550**Fax 972.398.6601 Richardson Whole Foods/Richardson 60 Dal Rich Village Tel. 972.699.8075**Fax 972.699.9419 Southlake South Lake Town Square ** accepts jambacard ** 222 State St. Tel. 817.416.9971**Fax 817.416.6380 Sugar Land Sugar Land ** accepts jambacard ** 2148 Texas Drive Tel. 281.242.0030**Fax 281.242.0037 Webster Clearlake / Webster ** accepts jambacard ** 528 W. Bay Area Blvd. Ste. B1 Tel. 281.316.9965**Fax 281.316.9967 Share this post Link to post Share on other sites
kellymoos 4 Posted December 31, 2004 Sue...I was hoping you would post in my thread...you always give great advice.............No, none of those are nearby.....closest would be about a 2 hour drive....we are going to my aunt's tonight and we are going to stop by Jason's Deli and get me some soup......I was so excited this morning when I woke up and realized that I didn't wake up coughing....... Share this post Link to post Share on other sites
leatha_g 4 Posted January 1, 2005 The last fill I had was on October 11th. Dr Spiegel's nurse called today to check on me and make sure that I was going to be ok..I told her that I think I will be fine and she told me to contact her if I needed anything over the weekend, so that made me feel better. I have drank 6 oz of hot cocoa and have kept it down. I heard if your band slips that everything you drink comes back up...is that not true? I really don't think I have slipped the band; just have what Michelle had a while back. I think that the liquids are going to work. Hopefully anyway!!!! My slippage gave absolutely NO symptoms, until I went and got another fill on top of it. Then, the reflux began... Share this post Link to post Share on other sites
kellymoos 4 Posted January 1, 2005 How did u figure out the band slipped before your second fill? Share this post Link to post Share on other sites
dishdiva 5 Posted January 1, 2005 Kelly -- I had bad reflux before an unfill...taking a Pepcid at night before going to bed helped. I feel your pain. You're doing all the right things... hang in there and keep getting liquids in as much as you can. I'm curious about the comments on the ports...my mom has a port for chemo and judging by the way it looks under her skin...the shape is way different than our ports. Maybe a question for Inamed. It would just be such a bummer if a nurse familiar with those types of ports took a stab at ours -- and missed -- risking possible damage to our band and/or port. Gotta run -- it's almost midnight. Happy New Year! Elizabeth 082803 -45 Share this post Link to post Share on other sites
leatha_g 4 Posted January 1, 2005 How did u figure out the band slipped before your second fill? I didn't. I went to get a fill/check up because I had moved back to Texas. The new doc went ahead and filled the band, but gave me a copy of my films. Immediately, I began having severe nighttime reflux, pain upon swallowing, but eventually, I could get things down, carefully. The reflux never subsided, so I found someone more experienced to look at the films and they said the band had slipped and I had to be unfilled. They said the person who did the fill should have known what he was looking at, but apparently he did the WRONG thing anyway and went ahead and put the fill in. Share this post Link to post Share on other sites
kellymoos 4 Posted January 1, 2005 Night 2 without waking up coughing...did the liquids yesterday and I feel alot better....now for day 3.........Hope everyone has a Happy New Year!! Share this post Link to post Share on other sites