Celiac "Come On"

[rebecca wills 190]

So I find out post surgery that my endoscopy showed some damage to the small intestine and that biopsy confirmed I have celiac.

So question? Was this info available to the surgeon? No, so later I find out that this surgery makes such conditions even worse.

Well that explained a lot. Last year I was tested for it and they said it was a false positive. So now we know it was actually Positive. So it's GF life for me!

Does anyone else have this? If yes how have you done with it?

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[OutsideMatchInside 10,166]

Your Dr said the sleeve makes celiac worse? I read one study where they treated obese people with celiac with the sleeve to help them. The sleeve post-op diet is gluten free really, so that should help your condition. Did they explain why the sleeve makes it worse?

[rebecca wills 190]

No he said it could make it worse. I just see it as another auto-immune issue with Graves' disease. At this point I feel pretty great, so I will test the waters but no reason to drink the whole River.

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[higher 966]

Hi there- I was also diagnosed with celiac from the endoscopy. My GI took an intestinal biopsy that came up positive. After that we did the antibody and genetic blood testing just to be sure.

My doctor said the sleeve wouldn't interfere with celiac treatment- as @@OutsideMatchInside said the post-op diet is essentially gluten free. The main difference is we will never go back to eating grains at all in small amounts when our plans allow it. I actually have a lifelong allergy to ri ce as well so I'll be practically carb free from here on out, with the exception of fruits, veggies, Beans etc.

If you are having gastric bypass or another surgery that changes your intestines it is a problem. Sleeve should be fine.

My GI has me doing a capsule endoscopy- I swallow a pill sized 360 camera that photographs my intestines and the damage caused to them by celiac. I'll repeat the procedure 6 months later so we can conpare the photos and see if my intestines have begun to repair themselves under the absence of gluten.

My one big regret regarding the sleeve so far (and it's a big one, it bugs me every day) is that I didn't try 6 months of a gluten free diet before getting sleeved. Celiac is autoimmune and doesn't just act on your intestines- you can have immune responses in almost every system in your body. It's entirely possible that my great difficulty losing weight was in part due to celiac and many of the other problems I had chalked up to obesity. Experts now believe up to a third of celiac sufferers are obese. But in the end does it really matter? No, because getting healthy by losing weight is the plan and I'm doing that already.

If you want to talk more let me know. I'm only 6 weeks post op and still learning about celiac and the gluten free diet myself. But, God I feel so much better already and I really don't think it's just the sleeve to thank for that. I hope you feel better too.

Oh! And besides the obvious stuff like bread and pasta- gluten hides in other places you wouldn't expect. Soy sauce, Worcestershire sauce, anything with malt vinegar, some Vitamins. So keep an eye out.

[higher 966]

No he said it could make it worse. I just see it as another auto-immune issue with Graves' disease. At this point I feel pretty great, so I will test the waters but no reason to drink the whole River.

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Oh no, do you also have Graves? I'm sorry to hear that. There is a much greater chance of having other auto-immune diseases alongside celiac so I've heard of that before. I've heard of people having concurrent RA and Hashimotos as well.

[amazon 579]

Hi

I don't have celiac's, but I'm intolerant to gluten (belly ache, bloating, potty issues - not pretty!). Celiac's is in my family. I also have Grave's disease. So I live GF.

I've been living GF for a for almost 4 years now. I just had my 2 year "surgerversary" (yay me!) on Monday. I think being GF in advance of the WLS was helpful. I had all ready started to tackle some of my food issues. But living GF after WLS has been pretty simple. Sure, I still have to watch labels. But I eat so "clean" that I know what I'm eating 90% of the time. The other times are because it might be prepared food...When you eat out, most places are really good at handing you a GF menu.

I'm sorry that you've been dealt that card. But it's not as bad as you may think - at least in my opinion. The consumer market has come a long way to accommodate the GF people out there.

I've also not heard of the sleeve making celiac's any worse. I'd wonder why seeing that they don't touch any of the intestines. Getting on the proper diet, I would hope that if the damage was minimal, your intestines would recover, no?

Keep us posted - Good luck!!

[rebecca wills 190]

Thanks for the input! Yeah I've read that anyone with Graves can also have Hashimotos disease. I believe I was swinging between both. 20 years ago after my youngest was born I was diagnosed with Fibromyalgia. Well since then I've experienced remission and of course polycystic ovaries, which is classic Graves. But diagnosis didn't come until 2014. I've been tested and they diagnosed me with osteo-arthritis. But since my sleeve I feel great!!!!

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[ocgirl15 667]

I have never been diagnosed with celiac but going gluten has made me feel so much better. No more brain fog, lethargy less achy joints, and my psoriasis it almost non-existent. I wish I had gone gluten free a long time ago. And I don't plan to ever make it a significant part of my diet ever again.

[higher 966]

Thanks for the input! Yeah I've read that anyone with Graves can also have Hashimotos disease. I believe I was swinging between both. 20 years ago after my youngest was born I was diagnosed with Fibromyalgia. Well since then I've experienced remission and of course polycystic ovaries, which is classic Graves. But diagnosis didn't come until 2014. I've been tested and they diagnosed me with osteo-arthritis. But since my sleeve I feel great!!!!

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Very sorry to hear about all your troubles! Pregnancy is a big trigger for autoimmune diseases. My understanding of celiac is that we are born with the gene for it, but it might not activate until it is triggered by something - pregnancy, a virus, stress. For me - I'm pretty sure it was stress.

Fear of the increased risk of developing other autoimmunes and cancers is what has made going gluten free so easy for me. Also - the sleeve is a big big assist.

I recommend you do the capsule endoscopy if you can. I like hard data and I'm really looking forward to seeing the difference in my intestines in 6 months. I'm hoping it's a dramatic change !

[sshawk69 17]

I have celiac disease and a hashimotos thyroid, polycystic disease . I was sleeved 8/17/15 I haven't had any adverse affect from the sleeve. If anything it makes it easy I can't eat a lot of shit food. My thyroid is the best it's been in over 25 years. Losing 100 pound have made everything better.