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Hidradenitis Supporitiva ?



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Oh my god I am so happy to see this thread. I have had this for a while and I didn't realize it was something other people got. I have it quite bad under my arms. I apologize if this is graphic but how do you guys deal with it? I have to put pads on my shirts and I'm always self conscious that there is a smell. I have been to a dermatologists i have been on some antibiotics and has not resolved. I am currently trying some treatment I read about where they suggested using common acne treatments. I am 10 months post op and it has not improved.

I have been dealing with this for some years now, and I have found somethings that have worked for me... I use medicated powder, gold bonds... And I use medicated chap stick- yes, you read that correctly. The medicine in the powder and chap stick closed abscess faster then anything I've tried before. I keep the space faulty dry as well... And recently I have discovered Aquaphor as well. For the smell, that usually gave me the most trouble. I would gauze it and tape it and spray perfume on my shirt in the spot of the smell.

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I am a year post op. My HS was fairly active in the beginning post op but in the last couple of months things have died down tremendously. I may have had one or two nodes that popped up but nothing has opened up and drained in months. Like I said, if something does pop up, it seems to just go away on its own. Fingers crossed it stays like this for me. I had it bad under my arms.

Congrats! I know how embarrassing and self conscious this can make you feel.

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Oh my god I am so happy to see this thread. I have had this for a while and I didn't realize it was something other people got. I have it quite bad under my arms. I apologize if this is graphic but how do you guys deal with it? I have to put pads on my shirts and I'm always self conscious that there is a smell. I have been to a dermatologists i have been on some antibiotics and has not resolved. I am currently trying some treatment I read about where they suggested using common acne treatments. I am 10 months post op and it has not improved.

I have been dealing with this for some years now, and I have found somethings that have worked for me... I use medicated powder, gold bonds... And I use medicated chap stick- yes, you read that correctly. The medicine in the powder and chap stick closed abscess faster then anything I've tried before. I keep the space faulty dry as well... And recently I have discovered Aquaphor as well. For the smell, that usually gave me the most trouble. I would gauze it and tape it and spray perfume on my shirt in the spot of the smell.

Sent from my iPhone using the BariatricPal App

do you use any kind of deoderant? I am so self conscious about the smell. Ive been using panty liners on the inside of my shirts

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Oh my god I am so happy to see this thread. I have had this for a while and I didn't realize it was something other people got. I have it quite bad under my arms. I apologize if this is graphic but how do you guys deal with it? I have to put pads on my shirts and I'm always self conscious that there is a smell. I have been to a dermatologists i have been on some antibiotics and has not resolved. I am currently trying some treatment I read about where they suggested using common acne treatments. I am 10 months post op and it has not improved.

I have been dealing with this for some years now, and I have found somethings that have worked for me... I use medicated powder, gold bonds... And I use medicated chap stick- yes, you read that correctly. The medicine in the powder and chap stick closed abscess faster then anything I've tried before. I keep the space faulty dry as well... And recently I have discovered Aquaphor as well. For the smell, that usually gave me the most trouble. I would gauze it and tape it and spray perfume on my shirt in the spot of the smell.

Sent from my iPhone using the BariatricPal App

do you use any kind of deoderant? I am so self conscious about the smell. Ive been using panty liners on the inside of my shirts
I have used many different deodorants to try to mask the smell. I usually use Cucumber Melon Deodorant by Dove, or I use Suave Deodorant in tropical paradise.

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I began having these on my groin area after my last child. A year ago I went gluten free (my child has pretty bad gluten intolerance)....thought I would try it. I did not have a aingle breakout until I started eating gluten again (gained my weight back as well. Maybe the absence of carbohydrates, especially those loaded with gluten is the reason wls seems to help. Just a thought. Good luck with your journey!

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I began having these on my groin area after my last child. A year ago I went gluten free (my child has pretty bad gluten intolerance)....thought I would try it. I did not have a aingle breakout until I started eating gluten again (gained my weight back as well. Maybe the absence of carbohydrates, especially those loaded with gluten is the reason wls seems to help. Just a thought. Good luck with your journey!

Sent from my SM-G900P using the BariatricPal App

Interesting, I never thought of trying that. I'll give it a try! Thank you for that information

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I started taking a Turmeric Curcumin supplement 500 mg daily at least a year ago. Haven't had a flare up since. I feel for you, it's an awful condition

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