Beed Help!

[MrsKrish 0]

Well i lost my way for the past year and need help badly... i will provide the background of my story & why im at a point where i really need help getting back on track.

. I had my Gastric sleeve surgery in jan 2013. At the time i had been struggling with multiple autoimmune diseases ( sjnogrens syndrome, SLE or lupus, RA, fibrimyalgia) about 4 months post op my marriage was falling apart & the nasty 27 months of a horrid divorce started. I was doing well til i was diagnosed wirh cervical cancer in march 2014. That is when it really went down hill. sfter treatment i ended up back on more steroids and balooned. .. let me explain why...its a little long sorry. I hope you can follow and someone can help even if its just words of wisdom.

i moved to New Mexico in 2007 from Michigan . When i was pregnant with my daughter that year is when i got sick.No one down in those small communities could figure out why! After she was born in nov 2007 i got worse & worse. On a visit back to my hometown in Michigan i fot extremely ill and decided enough was enough & went in to see the dr i had most of my life! After lots of tests he discovered i had multiple auto immune diseases. Upon returning to NM he had set me up with a rhuematologist in Lubbock texas which was 2 hrs away from our home in NM. This dr put me on such high doses of steroids & methotrexate( it looks like yellowgreen toxic waste & is used for cancer trestment as chemo therapy & also used on auto immune patients to eipe out their immune systems) injections that in Dec 2009 i had been hospitalized for weeks and my family had enough and moved me back to michigan. My ( now ex) husband went back and forth as he was a oilfield supervisor for halliburton. After moving back i got a good rhuematologist and internest. i was on 85 mg of prednisone a day at that point & it was killing me. I ballooned over 300pds. After i got pregnant with our son in 2011. Things got really bad weight wise. I was at 380ish at the time of his birth in april 2012. That is when my drs snd i decided gastric sleeve surgery was the only way that i was going to loose weight after several failed diets that they suoervised. Unlnowingly the stress i was under was not going to make things wasy. My son was born with a rare type of spina bifida called lypomeleomeningicle. He had surgery in sept 2012 at 5 months. They found things that they were not expecting when they opened my 5 month old baby up. Long story short we were at U of M for almost 3 weeks. Got home and within 45 min wrre rushing back & he had another 2 week stay. In Nov my body just gave out. I was hospitalized for 3 weeks. My drs said thsts it. Your approved for this surgery. They weened me off the prednisone which i was down to 35 mg a fay at that point. So end of dec 2012 and beginning of january 2013 i did preop. Lost about 38 pounds. I did well post op as well. But then my diseases slowed my healing process & progress had a few hospital stays. In April my marriage had gotten to its boiling point and began the process of one of the ugliest nastiest divorces i could have imagined. But i still was doing better and loosing weight everyday. I was ginalky able to participate in life again with my children etc. Instead of sitting on sidelines or canceling olans because i was sick. In the end of August 2013 i went out eoth some girlfriends ( i was under 300 pds by this time.) And met the most wonderful man. I wasnt looking at all it judt happened. We ended up habing one of those " holy cow what a small world" conversations. And how wed never cross pathsbor met before then was amazing. I was updront about my situstion, disease & gadtric skeeve surgerybupfront. And i wasnt looking to date. But from that night on we were inseperable. By Dec 2013 my divorce was in full swing but my soon to be ex husband was not happy that i was happy ( even though he never had been home even when he had weeks off and stayed 1500 miles away from us. whichbi found out he was having affairs when i decided i wanted a divorce because of a text my daughter whom was 5 at the time showed me. and when he was home he slept the whole time & never wanted to participate with our children or myself. even when i begged) he got a secret bank account & all our joint accts he closed and left me with NO money. Mind u he kept me a stay at home mom. He was very sbusive and controlling. Things were getting worse every day. My grandmother passed on dec 12th which is my oldest sons birthday. It was such a huge loss. In january 2014 i had alot of pain and called my gynocologist. I had a paps and check up in Nov previous and was all clear. They did biopsies. Long story short after 2 round of biopsies on my cervix and uterus. I was diagnosed with the end of stage 1 A cervical cancer. Jeffs ex was also a psycho. They had been divorced for a few years before i met him. He had one child with her.she had began withholding his son because we were dating. She knew many people i did and it got ugly. I was in no shape to handle all of the things thst were entering my life from his ex wife. but i had fallen so in love with him unlike id ever fallen in love with someone before. We ended up breaking up for oh.. a week.lol. and it was one of the hardest weeks in my life when it came to a break up. he still texted and called me daily. But he called begging for me to forgive him at day 8 & we got back together. I needed him. He hadd become my best friend & a huge support system. my divorce had gotten so ugly. My ex cut off the medical flex card i used for myself and the kids for copays on drs visits, medication etc. Mind u our son needed this as much as i did. He also came up unannounced and threw all of my things put. When i came home thst day after picking up kids he called the police and i was told i had to sleep somewhere else while he was home as he has no family etc of his own in michigan. This is when i had no choice but to move in with jeff. which was his idea. Its not how we wanted to do things. But my still husband was becomming increasingly physically , emotionally etc abusive and would show up unnannounced often. But i was fighting cervical cancer. Going through surgery & treatment. I needed almost 24 hr care or someone to be there. As i said things just kept getting worse. my treatment was done by august 2014. I tried working again. But ended up passing out at my job. friend of the court finally ordered child support to be paid to me that Oct. Things escalated to peak after that. Including me finally calling thebpolice after he assaulted me when we were doing kiddo drop off in dec. He fles the state when he foun out i called and filed charges. He decided he didnt want to pay 1800 a month in c.s mind u he was making about 260,000/ a year at thisnpoint. So in feb 2015 he wuit his job. By august 2015. He was behind thousands of dollars. I was in and out of the hospital and my drs snd lawyer felt this divorce would kill me before it was finished if it wasnt over soon. So i settled just to have it done. my kids & i had lost our amazing medical insurance when he quit Halliburton. Jeff and i had gotten engaged. For the first time in my life i was truely happydidnt say yes because i felt obligated because of my kids. ON Dec 16th 2015 my Jeff was at work and dell aprox 37 1/2 feet at work. His back explodednon impact as well as his spinal sac holding his spinal cord. It was by far the biggest trama of my life.

So here is where i am worh my post op that i need help with. In feb 2015 i got shingles again asbi fo almost every year at that time. But i needed to be back on prednisone and lots of it for about 4 months. And have been on & off it til january this year. Between the steroids, stress etc i ate bad as well. but also stopped eating toom so when i did eat it was something fast. Especially since jeffs fall. Between taking care of him bow, my kids, my sons special needs which hes facing 2 surgeries one next month. My body breaking down. The fact i havent seen my surgeon for my sleeve since my ex quit his job snd we lodt thst medical insurance. I had gotten down to 170 pds. I began my sleeve preop journey at 396 pds. So that is 226 pounds and i felt i had reached my goal. But a month later is when the steroids started again and the climax of my divorce and then jeffs accident. Jeff and i did get married in january. Its not whst we had olanned. We had a wedding olanned, dress bought etc for October 1 2016. But for legal reasons etc and the fact i had almost lost the love of my life we decided to get married on jan 15th.

So i know this is a long post and basically i laid my life out for all to see. But i need help. Im back to 240 pds. Jeff is also going on the diet with me. We began today. I don't have my diet book that i got when i had the surgery. If anyone has a copy of one they could maybe email me if love one. My husband has gained weight but has alot of muscle atrophy. Can anyone give any advice how i can get back on track. I know mh stomach didnt stretch out huge as it still only allows me to eat so much and i get full very fast. Im off the prednisone. But have been put on a new short term steroid. And i am not sure ifnit will hinder my diet. But weather it does or not i need to get back to my lifestyle. Yes it was a life style chsnge for me. Thank you for taking the time to read or give advice in advance. Again so sorry for the long post and kinda vent session. Lord knows i have alot to vent these days. Lol.

Mrs.Krish

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[MrsKrish 0]

Also please excuse the spelling mistakes my ra has made my hands crappy.

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[Inner Surfer Girl 12,015]

Wow, it sounds like you have been dealing with a lot of life.

As far as your post-op food plan, can you get another copy from your surgeon? Try googling "Bariatric Center of Excellence manual" and you should be able to find some examples.

I would suggest you make an appointment with your surgeon and/or NUT to discuss your health issues (especially your use of steroids). A good bariatric NUT should be able to help you get back on track. It's never too late.

[MrsKrish 0]

Wow, it sounds like you have been dealing with a lot of life.

As far as your post-op food plan, can you get another copy from your surgeon? Try googling "Bariatric Center of Excellence manual" and you should be able to find some examples.

I would suggest you make an appointment with your surgeon and/or NUT to discuss your health issues (especially your use of steroids). A good bariatric NUT should be able to help you get back on track. It's never too late.

Thank u. I have gotten new medical insurance now so am in that process. Just hard to schedule with my husbands accident he is paralized in pelvic region which means im wife, mama and nurse in this house. I am scared to leave him for to long by himself and he csnt always go on long car trips. So we have all kinds of dr appts, physical therapy etc for him . And my sons surgery next month has required alot of u of m visits. Seems like unless i drop i dont have time for me. But i need to im in bad shape and need to be back on track.

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