Pseudotumor cerebri

[Ilovecats1985 100]

I was diagnosed with pseudotumor cerebri last week. I am still pre-op, I go to meet with my surgeon and set up my surgery date tomorrow!!! Woot!! Anyways has anyone been diagnosed with pseudotumor cerebri and how has it been for you since your surgery? Have your symptoms gone away? Were you able to stop taking the medications? Any tips?

[nikkimapr 177]

I was diagnosed last year with ptc. I stopped on my own taking sulfur meds after surgery (consult your doc) and I will go for another optic nerve pic once I hit 200 lbs. To make sure swelling down. Haven't had any headaches or vision loss since surgery

[xoxo_sha 0]

I've been diagnosed Pseudotumor

Cerebri (intercrainal hypertension) since 2005 the more weight you gain the worse it gets. I've never had problems with my optic nerve or "swelling" but retinas both have holes in them. After years of seaking treatment my doctor basically said there is nothing we can do but spinal taps when the pressure is to high. My opening pressure is always high no matter what & I always have the wooshing sound in my ears from the pressure. Daily headaches and eyes always feel swollen =(

[Dream4tc 192]

I was diagnosed by my eye doctor many years ago, but my primary care did a CT and that didn't show anything. So not sure really. Occasionally I have headaches and it is always on the right side of my head, but I really don't know. Which specialist diagnosed you all?

[Ilovecats1985 100]

I had to see an ophthalmologist, then I was referred to a neurologist. My neurologist diagnosed me. My experience with the spinal tap was HORRIBLE! My neurologist stuck me 6 times with no success, so a few days later I had to go get it done again. They radiologist was successful but the my recovery was rough. I ended up in the hospital from dehydration. I think it was a combo from the leaking spinal Fluid and starting the diamox.

[Dream4tc 192]

@ - how horrible. Spinal taps are awful! Radiologists do a much better job actually because they do more of them. Yeah it sounds as though you did have it rough. I am so sorry you had to go through that. I just had my eyes looked at on Friday and she gave me an all clear with no mention of increased intraocular pressure which is really good. However she did have to increase my RX, I guess I am getting blind in my old age haha!!! So until, I hear differently or experience more headaches, I will just try and watch my symptoms.

[nikkimapr 177]

Try techs didn't give enough local anesthesia then stuck far down and made me come off table. I cried whole time. Never again another spinal tap. Kinda my final events made me decide on gastric sleeve. Was never going through that again