Numbness and neurological complications

[teecee 2]

Has anyone had numbness or neurological complications from their gastric sleeve? I have numbness mostly from the chest down but sometimes everywhere including my head and face. I am pretty much on a 3 month waiting list to see a neurologist where I live. I went to see one where my surgery was preformed but he came up with nothing. My surgeon acts like he never heard of this yet I can read about this complication. Has anyone else had this happen to them? I read thst this can happen from Vitamin deficiency and when I first got out of the hospital I didn't take good Vitamins and I threw up all the time. I need help but don't know where to get it. My surgeon was no help.

[phantompouch 19]

Yes: I have been ill for the last 2 yrs.....with the same terrible symptoms..been in and out of the ER and several hospitals....the surgeon turned me away and ssaid to see a gastroenterologist... there is a fine neurologist that I will consult with at JOHNS HOPKINS UNIVERSITY in Baltimore,Maryland......his name is: Dr. Michael Polydefkis ..try and see if you could go and see him......you couls find him on Healthgrades

[phantompouch 19]

You need to obtain ALL of your medical records......I hope that you get better.....do you have terrible pain in your feet and hands ? Are you taking medication ? Who operated on you ? What hospital ?

[swimbikerun 1,045]

I've had problems. They were helped by banana bag/fluid infusions, and jacking up the EMG's power to the point where I felt the after effects in my muscles for hours. Steroids have helped tremendously.

Btw, my surgeon said the same thing. He was not correct, as there is literature about neuro problems after surgery. They just don't read the research.

[phantompouch 19]

I agree......and I am still very sick 2 yrs after the VSG....wehn I went to see the surgeon ,,he was cold,walked away and was not interested in helping me...NEVER did he say this could happen to me......NEVER....I cannot work,sleep,walk,,,,have to go to a pain management doctor..before the sleeve surgery,I never even took a tylenol.....I was healthy except for the weight.....anyone ever had these severe ,miserable pain issues and numbness???????????

[bellabloom 2,467]

I have numbness in my legs caused by Vitamin b deficiency

[swimbikerun 1,045]

I've had issues also. It has to do with allowing the bariatric surgeon community to get away with it. 40-45% is the profit margin I've seen for bariatrics. The aftercare, especially past a year, is horrid.

Out of places like this, thanks to Alex Brecher, I owe a lot. This is where you get a lot of support.

[phantompouch 19]

Have you been tested for the Vitamin deficiency to see if infact,that is the case ?Could it be something else? I have consulted with many physicians and now, they suggest that I take a glucose tolerance test.....as wel as an antibody test that tests for Fabry Disease as well as an antibody test for something called: Anti -Hu ?They also suggested having a surgeon do a

deep tissue biopsy of the fat,muscle,nerve in my leg/thigh ......?there is a neurologist that I will try and see at: Johns Hopkins Hospital in Baltimore,Md. who specializes in problems post operation of the vertical

sleeve bariatric surgery..his name is: Dr. Michael Polydefkis You are right......after the operation....the surgeon does not want to deal with the issues he/she never told you about........

[swimbikerun 1,045]

Yes. I requested a muscle biopsy and got overruled. This is on top of situation where the creatinine level dropped in half.

[phantompouch 19]

If possilbe...gather and request ALL of your medical records and consult with a specialist in neurology who is familiar with these issues.........perhaps, the Dr at Johns Hopkins......? I have been in touch with NIH National Institutes of HEalth...try and read their research on these issues..........

[teecee 2]

Does anyone know of a specialist that deals with this complication in Northern California ?

[phantompouch 19]

I do not know of anyone in California......however, it might be a good thing for you to do research.....Mayo Clinic and NIH National Institutes of Health

I am going to see someone at Johns Hopkins Hospital in Baltimore,Md ...

perhaps,you could call and get a name in California......with all of the fine medical centers......ie...Skripps,Cedar-Sinai,Rush ? You could write to NIH at the Rare and Undiagnosed Disease Program and see if they could help?