Complications....so broken and sadden

[boojak2003 24]

thanks everyone for the encouraging words...I went on monday for a GI swallow study and today I went to see my doctor for the results....LEAK HAS HEALED...AND ALL BLOOD WORK IS NORMAL (AT LEAST WERE HE WANTS IT))...

I just screamed thank you jesus...I am a woman of faith and this has been one of the hardest things I have every went through. He took out one of my drains and put me on Clear liquids...still on tpn til I can eat enough Protein.

I am so happy..

This has been a long journey this month...I just thank God for seeing me through this...I pray He can continue to heal me and to carry me though the rest of this journey.

one question for all...the place where he took out the drain is leaking a lot of like pus stuff...doesn't hurt or stink...called nurse and she said it was okay as long as it didn't stink or was like a deep yellow or green color... has anyone experienced this?

[KSTUZ 438]

I am so very sorry u have to go thru this- but I am an xray tech and we do swallowing studies, message me with ANY questions and I'd be happy to explain what will happen and what to expect.

I'll be thinking of you.

Stay strong, this too shall pass.

[RJ'S/beginning 5,358]

thanks everyone for the encouraging words...I went on monday for a GI swallow study and today I went to see my doctor for the results....LEAK HAS HEALED...AND ALL BLOOD WORK IS NORMAL (AT LEAST WERE HE WANTS IT))...

I just screamed thank you jesus...I am a woman of faith and this has been one of the hardest things I have every went through. He took out one of my drains and put me on clear liquids...still on tpn til I can eat enough Protein.

I am so happy..

This has been a long journey this month...I just thank God for seeing me through this...I pray He can continue to heal me and to carry me though the rest of this journey.

one question for all...the place where he took out the drain is leaking a lot of like pus stuff...doesn't hurt or stink...called nurse and she said it was okay as long as it didn't stink or was like a deep yellow or green color... has anyone experienced this?

The drain entrance will leak a little and or a little more. Just dab it gently and wear a band aide for a few days until it dries up. There may even form a bump where the liquid has gathered. But it is not to worry about. The only thing is if it is green or funky smelling accompanied by fever. Then go get it checked out...okay

[swimbikerun 1,045]

So very happy to hear that at least some things are starting to work out for you!

[boojak2003 24]

so....leak did not heal as i thought....

a few days later I was taking my medicine and i smelled some of my jp output and it smelled a lil like the meds...so i did the blue dye Water test...blue showed up in my jp drain output...so i went back to NPO...

doc did CT scan and it showed no leak...blood work shows everything is normal ....so he just said that i still need to

now a week later I tried the blue dye test again...blue dye showed up again...so my doc said he is going to be talking to a gastroenterologist and formulate a plan....don't know what that means

I have no fever, chills, pain, or infection...i am actually feeling better than i have in a while....still NPO and kinda depressed about that

I can't wait to drink something...starting to get my hunger and thrist back

what should i do??

[swimbikerun 1,045]

I am so very sorry. Wsh I could give hugs. That has got to be frustrating. Why is it they need to work with the GI? That is a surgical issue.

[boojak2003 24]

my doc said something about getting a clip and endoscopy...at this point im ready to cuss everyone out and go somewhere else...i have been NPO for over a month and im going crazy...im thristy and hungery and can't do anything about it...im out of work and ready to go back...im miserable...i feel like i should not have done this and im very upset at my doc

[swimbikerun 1,045]

Something isn't right and I agree with you. Who is paying for this?

[boojak2003 24]

my insurance is paying for most of it...i have small percentage co-pay..

[metoonow 4]

I went through the same thing thought I was healed and I was not they put a stent in for 3 months which hurt every day but I am now healed and lost over 100 lbs it was so worth it keep your head up

[boojak2003 24]

so i get a endoscopy today....no leak shown...everything comes back normal...so the GI doc said he didn't feel i needed a clip or stendt....so not only does that not show and leak, my GI swallow test and CT scan shows now leak....im so fustrated...

still NPO...i just don't know what to do now...

anyone went through this?

[swimbikerun 1,045]

Not that but similar types of problems. What is still ongoing now? Have they ruled out GI issues or motility issues?

[boojak2003 24]

they both told me that everything seems normal as far as things moving through my GI tract...

[swimbikerun 1,045]

They did a gastric emptying study? EGD/colonoscopy? There is another test I had done with swallowing a capsule, one for intestines that included just x rays 5 days apart (others do them different times apart) and another one where I had a monitor on all day and the capsule went the whole way down.

[boojak2003 24]

no i haven't had anything like that...they just said i have a small pin hold size leak in the upper part of my stomach...i dunno what else they are going to do...the GI doc said he was going to talk to my surgeon and some other GI docs and get back with me tomorrow or saturday to tell me the next step