Jump to content
×
Are you looking for the BariatricPal Store? Go now!

Recommended Posts

Hi guys,

Im now 22, but have always been a fit and active teenager. At ages 20, I developed narcolepsy and the amount of exercise I could do in a day dropped dramatically thanks to always been insanely tired, and the medication I've been prescribed has side effects of weight gain.

I'm now BMI 35, but since I developed narcolepsy I've tried to get back into my sport (which I do enjoy), gyms, personal trainers etc but I just can't do enough exercise to keep up with how much I eat and I'm worried that if I don't change something, I'll keep getting bigger and have worse health complications like diabetes etc.

Has anyone got narcolepsy and has considered weight loss surgery?

Thanks!

Share this post


Link to post
Share on other sites

I do not have an answer for you, but I did a site search on narcolepsy and it returned 112 threads. Have you tried that?

Share this post


Link to post
Share on other sites

the medication I was ordered was Ritalin. it made me racy and anxious so I stopped taking it. I know there are several medications for narcolepsy so ask your doctor to try another. might help with your hunger.

Share this post


Link to post
Share on other sites

Hi,

I have checked those by searching the forum but no luck, no information, mainly just passing comment.

Yeah im on. dexamphetamines, which makes my heart race and worry even more about the effects of my weight

Share this post


Link to post
Share on other sites

I don't really have anything to offer here...

Are you more worried about wls exaggerating the narcolepsy or fixing it? Most if not all bariatrics surgeons require you to sit through a free seminar and you can ask the surgeon directly your questions/issues.

Share this post


Link to post
Share on other sites

Hi,

I have checked those by searching the forum but no luck, no information, mainly just passing comment.

Yeah im on. dexamphetamines, which makes my heart race and worry even more about the effects of my weight

Hi I am almost 7 months out have lost 30lbs one fill in my 5th month. Might need another this time. But my interest is I have bipolar disirder and am currently inva very delicate depressive state. I take about 30 pills a day...only 10 are psych drugs but a couple are weight gainers. I am not sleeping good or hardly at all. No matter what time I go to bed I'm up between 2 am and 4 am. It's been going on for over a month. Whether it has anything to do with wls ...probably not. It has to do with my depression and yes I see my psych dr soon. But again another pill..probably a weight gainer. It's frstrating that I do try very hard and the weight is sooooo slow it seems impossible that reaching goal is no where in sight. My only other concern is I have a 10 cc band had 3cc put in and maybe another soon. How am I going to get all those pills down? Really concerned and thinking that another fill no matter how hungry I am may not take place if I'm too tight for pills to go down plus all the other problems compound my depression. Help!!!!!!

Share this post


Link to post
Share on other sites

Zappo, I don't have narcolepsy but I've always slept very little. Since having the surgery my sleeping has totally changed

For the better. I'm like a normal person. I know everyone is different but I'll bet the surgery would help.

Share this post


Link to post
Share on other sites

Hi Zappo

I have narcolepsy. I take provigil. I does not make me jittery at all. I can take my prescribed afternoon nap and sleep well each night. 8 or more hours. I also have sleep apnea so I wear a c-pap.

I good friend takes a different med. she takes adderall it works for her for narcolepsy.

I have had no problems having had surgery with it effecting narcoleptic symptoms either good or ill.

Narcolepsy is neurological and not likely to change with weight other than you may sleep better because you can breath easier and are more comfortable. I would ask about your meds because most of the keep awake medicines cause weight loss not gain.

If I drink my Water and eat my Protein I have plenty of energy. I can work out.

Share this post


Link to post
Share on other sites

I am 21 and developed narcolepsy with cataplexy when I was 12. I am trying to decide which surgery is right for you. I am going to an appointment with my surgeon to get to my decision.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Trending Products

  • Trending Topics

  • Recent Status Updates

    • rinabobina

      I would like to know what questions you wish you had asked prior to your duodenal switch surgery?
      · 0 replies
      1. This update has no replies.
    • cryoder22

      Day 1 of pre-op liquid diet (3 weeks) and I'm having a hard time already. I feel hungry and just want to eat. I got the protein and supplements recommend by my program and having a hard time getting 1 down. My doctor / nutritionist has me on the following:
      1 protein shake (bariatric advantage chocolate) with 8 oz of fat free milk 1 snack = 1 unjury protein shake (root beer) 1 protein shake (bariatric advantage orange cream) 1 snack = 1 unjury protein bar 1 protein shake (bariatric advantace orange cream or chocolate) 1 snack = 1 unjury protein soup (chicken) 3 servings of sugar free jello and popsicles throughout the day. 64 oz of water (I have flavor packets). Hot tea and coffee with splenda has been approved as well. Does anyone recommend anything for the next 3 weeks?
      · 1 reply
      1. NickelChip

        All I can tell you is that for me, it got easier after the first week. The hunger pains got less intense and I kind of got used to it and gave up torturing myself by thinking about food. But if you can, get anything tempting out of the house and avoid being around people who are eating. I sent my kids to my parents' house for two weeks so I wouldn't have to prepare meals I couldn't eat. After surgery, the hunger was totally gone.

    • buildabetteranna

      I have my final approval from my insurance, only thing holding up things is one last x-ray needed, which I have scheduled for the fourth of next month, which is my birthday.

      · 0 replies
      1. This update has no replies.
    • BetterLeah

      Woohoo! I have 7 more days till surgery, So far I am already down a total of 20lbs since I started this journey. 
      · 1 reply
      1. NeonRaven8919

        Well done! I'm 9 days away from surgery! Keep us updated!

    • Ladiva04

      Hello,
      I had my surgery on the 25th of June of this year. Starting off at 117 kilos.😒
      · 1 reply
      1. NeonRaven8919

        Congrats on the surgery!

  • Recent Topics

  • Hot Products

  • Sign Up For
    Our Newsletter

    Follow us for the latest news
    and special product offers!
  • Together, we have lost...
      lbs

    PatchAid Vitamin Patches

    ×