Zappo 8 Posted March 11, 2014 Hi guys, Im now 22, but have always been a fit and active teenager. At ages 20, I developed narcolepsy and the amount of exercise I could do in a day dropped dramatically thanks to always been insanely tired, and the medication I've been prescribed has side effects of weight gain. I'm now BMI 35, but since I developed narcolepsy I've tried to get back into my sport (which I do enjoy), gyms, personal trainers etc but I just can't do enough exercise to keep up with how much I eat and I'm worried that if I don't change something, I'll keep getting bigger and have worse health complications like diabetes etc. Has anyone got narcolepsy and has considered weight loss surgery? Thanks! Share this post Link to post Share on other sites
PdxMan 4,292 Posted March 11, 2014 I do not have an answer for you, but I did a site search on narcolepsy and it returned 112 threads. Have you tried that? 1 endless80 reacted to this Share this post Link to post Share on other sites
terrydumont46 1,954 Posted March 11, 2014 the medication I was ordered was Ritalin. it made me racy and anxious so I stopped taking it. I know there are several medications for narcolepsy so ask your doctor to try another. might help with your hunger. Share this post Link to post Share on other sites
Zappo 8 Posted March 12, 2014 Hi, I have checked those by searching the forum but no luck, no information, mainly just passing comment. Yeah im on. dexamphetamines, which makes my heart race and worry even more about the effects of my weight Share this post Link to post Share on other sites
kimk1999 450 Posted March 12, 2014 I don't really have anything to offer here... Are you more worried about wls exaggerating the narcolepsy or fixing it? Most if not all bariatrics surgeons require you to sit through a free seminar and you can ask the surgeon directly your questions/issues. Share this post Link to post Share on other sites
donna450 130 Posted March 12, 2014 Hi, I have checked those by searching the forum but no luck, no information, mainly just passing comment. Yeah im on. dexamphetamines, which makes my heart race and worry even more about the effects of my weight Hi I am almost 7 months out have lost 30lbs one fill in my 5th month. Might need another this time. But my interest is I have bipolar disirder and am currently inva very delicate depressive state. I take about 30 pills a day...only 10 are psych drugs but a couple are weight gainers. I am not sleeping good or hardly at all. No matter what time I go to bed I'm up between 2 am and 4 am. It's been going on for over a month. Whether it has anything to do with wls ...probably not. It has to do with my depression and yes I see my psych dr soon. But again another pill..probably a weight gainer. It's frstrating that I do try very hard and the weight is sooooo slow it seems impossible that reaching goal is no where in sight. My only other concern is I have a 10 cc band had 3cc put in and maybe another soon. How am I going to get all those pills down? Really concerned and thinking that another fill no matter how hungry I am may not take place if I'm too tight for pills to go down plus all the other problems compound my depression. Help!!!!!! Share this post Link to post Share on other sites
Meintraining 104 Posted March 12, 2014 Zappo, I don't have narcolepsy but I've always slept very little. Since having the surgery my sleeping has totally changed For the better. I'm like a normal person. I know everyone is different but I'll bet the surgery would help. Share this post Link to post Share on other sites
windfaerie 41 Posted November 17, 2014 Hi Zappo I have narcolepsy. I take provigil. I does not make me jittery at all. I can take my prescribed afternoon nap and sleep well each night. 8 or more hours. I also have sleep apnea so I wear a c-pap. I good friend takes a different med. she takes adderall it works for her for narcolepsy. I have had no problems having had surgery with it effecting narcoleptic symptoms either good or ill. Narcolepsy is neurological and not likely to change with weight other than you may sleep better because you can breath easier and are more comfortable. I would ask about your meds because most of the keep awake medicines cause weight loss not gain. If I drink my Water and eat my Protein I have plenty of energy. I can work out. Share this post Link to post Share on other sites
RiskyGirl21 19 Posted November 25, 2014 I am 21 and developed narcolepsy with cataplexy when I was 12. I am trying to decide which surgery is right for you. I am going to an appointment with my surgeon to get to my decision. Share this post Link to post Share on other sites
atrim1 0 Posted March 11, 2016 Hi if you have Facebook I just started a group for this! Come visit and we can all help each other! https://www.facebook.com/groups/1123754284325100/ Share this post Link to post Share on other sites