Frustrated... (Tmi Warning)

[mamaplumlee 58]

So, I was so excited to get this surgery. It was going to be life changing and going to help me extend my life and the quality of it. I was so optimistic for once and so determined.. I had my surgery Oct. 1 and right off the bat I get some heart issues from my Vagus nerve being injured which makes my heart beat stay around 36-60 for the first 7 weeks with pvc's and I get a nasty Uti/kidney infection that won't clear because it's some super cell bad germ resistant to most medications and need IV infusions to clear it. Constipated right off the bat and so nauseous all the time. I am unable to drink the Proteins as I once did before. I was told don't bother with them for now, focus on drinking. Talk of a pick line is mentioned for hydration. The doctor is gonna decide when I go back. Whatever, things happen. I'm losing weight and I'm so happy and still optimistic that this is a speed bump.

Fast forward 4 weeks post op and I'm still puking and if not puking on the verge 24/7 of puking, my stomach physically hurts when I eat or drink to the point that I am unable to do either barely. I feel like I have so much air in my pouch and it hurts. I'm taking multiple medications for nausea (3 to be exact), my prilosec, and pain medication as needed. I am told to stop my Vitamins for the time being because they are making me barf. I am told don't worry about the proteins still focus on drinking. Pooping is a really big problem still and I try to keep on it. I go like every 7-10 days with Milk of Mag. Talk of a pick line is mentioned for hydration but the doctor decides to wait a little longer. It's just a speed bump..

7 weeks post op and now I have no energy. I never exercise and constantly hurt everywhere all over my body and still in my stomach anytime I eat or drink. The nausea is worse then ever and I am barely drinking most days.. I try but when I drink it hurts and cramps and I get so nauseous that it hardly seems worth it. I am still not taking vitamins and the only Protein I get is like 3 oz of food a day, so minimal at best. The doctor wonders if I have a leak or if it's my type 1 sphincter of oddi acting up and we schedule a Catscan of my stomach and blood work to rule out the leak or other surgery issues. There is mention of getting an endoscopy and fixing the sphincter of oddi with cauterizing and a stent but it needs to be at least 6 weeks further out otherwise I risk being seriously injured. I'm getting worried but hopeful that things are gonna be answered and fixed soon.

8 weeks post op I got impacted with stool 2x this week and got a fissure which is so terribly painful. My husband seems like he hates me and like I'm an inconvenience at this point. I'm getting really frustrated with the lack of support and empathy from him. I bleed so much earlier tonight and get stuck so I was sent to the hospital where let's just say it was humiliating and utterly painful... I got an enema, liquid laxative, a rectal exam, IV for severe hydration, an Xray, and blood work. I was informed again by my husband that this is my fault.. So now I am have kidney issues from not enough protein, need a GI to fix my fissure and impacted intestine issues that they are calling ileus from electrolyte imbalances and possibly something else underlying, need to take 3 more medicines to poop softer and hopefully at all, my muscles and joints hurts so bad all the time now, and I barely sleep. To say I feel defeated.. I feel like I am so unhealthy and like for the first time I regret this surgery..

I go to my surgeon at 9 to go over the Catscan, tests, and talk about the hospital results and get a new game plan..

[MichiganChic 3,262]

So sorry to hear of all your troubles! Please hang on to that determination and hope you've mentioned throughout your post - you will get to the other side of this. This isn't your fault, it's an unfortunate series of events and complications that could have happened to any of us. I'm sure your husband is upset and scared, rather than hating you.

One thing to consider is getting another opinion. The best physicians can benefit from consulting with others, and in no way implies he doesn't know what he's doing. I'm sending prayers and good thoughts your way for a speedy recovery.Please keep us posted as to your progress!

[CrissyRing77 232]

Oh this is terrible, I'm am soooo sorry you are having to go through all of this, just seems so unfair! I pray things start to turn soon and they get this figured out! My thoughts are demand to be admitted to the hospital and not leave until they have you fixed or at least a game plan! Hang in there, you seem to still have your whits about ya, maybe have a sit down with your hubby, this is the time he needs to step up...hugs for you, please keep us updated! Edited for spelling lol!

Edited December 5, 2013 by CrissyRing77

[MississippiQueen 48]

I'm so sorry u r going through all this! Will be praying for u. On a lighter note, if it makes u feel any better my husband is an asshole too! lol Thankfully I havent had complications, BUT if I had I KNOW, he would say "its your fault" too.

(I know him too well). Dont give up.

[Ms.AntiBand 2,984]

Im really sorry for all you're going through.

I agree that you need to get another opinion. You should not be experiencing this many issues. Obviously, something is wrong and needs to be fixed.

As for your husband. . Well, sometimes guys can be weird when they have no clue how to help. Dont worry about him right now.. you have enough on your own plate and if needed you can handle him later. Get the second opinion it very important. Not all drs are able to admit when theyre clueless. This your life.. youre only life. It's important