Diagnosed Today After A Long Battle

[dylanmiles23 2,198]

Hi donna,

I am very sorry to hear about the Lupus. I think being on Plaquenil is super. My husband has a form of Lupus and at first was on so much Predisone his sugar went very high and he had 6 shots a day and now is on 2 pills a day with the Plaquenil. He never had any side effects. He did find going to the gym and working on his muscles helps a lot. I know it is an immune problem and he is missing 'A', his sister is missing A, B and C. I had my sons checked and they are fine. If you have children, maybe have them checked.

Feel better and keep your wonderful smile on.

Arlene

[gowalking 10,790]

I know you've had some tough things to deal with this year Donna. Wishing you all the best and know that we are keeping you in our thoughts.

[chasingadream 1,311]

Wishing you all the best and hoping the meds treat you kindly and makes you feel better...keep us posted on how you are doing! :wub:

[catfish87 3,471]

Prayers for you Donna!

[DELETE THIS ACCOUNT! 12,703]

How ironic. My daughter was just prescribed Plaquinil (I'm spelling it wrong) tonite. She was diagnosed with Mixed Connective Tissue Disease, which is essentially like a combination of Lupus, Scleroderma, and Polymyositis. We thought she had RA but her blood work came back with MCTD instead.

We'll have to keep in contact, Donna. We can compare notes how you and my daughter are both doing on the med. She started it tonight.

[Lady VS 1,147]

Sending peace and blessings your way.

[Debbie3sons 1,936]

Hey Donna don't let it get you down to much as we know you have been through a lot there for you have over came a lot and , you know you have the tool and tools like talking to someone and other things so just follow the regimine as you have been doing and are about to do you will get better I say this cause I know you can e strong and overcome things as you have.

[donna12 742]

Missy I stopped taking the Plaquenil after 2 days, have heard and read so many bad side effects to it and irreversible eye probs with it that I didn't want to take a chance. Although my doc says its safe I know what I read and he even stated see an eye dr every 6 months, hello, it can mess up your retina. My pain is sporadic, not constant, don't know if weather plays a part in it or not but today we had an ice storm here in western ky and it is bitter cold and i've been in pain all day today, took a pain pill but its not knocking it, still in pain as i sit here, getting ready to go to bed, hopefully tomorrow will be a better day. PM me if you want. Sorry to hear about your daughter. My doc mentioned that with me along with lupus.

[kll724 3,055]

Sorry Donna, I am glad that you finally have an answer. I will add you to my prayer list, too! Better the "devil" you know than the one you don't know! ((((hugs))) to you! I can only wish you healing prayes and support for our group! Karen

[DELETE THIS ACCOUNT! 12,703]

Missy I stopped taking the Plaquenil after 2 days, have heard and read so many bad side effects to it and irreversible eye probs with it that I didn't want to take a chance. Although my doc says its safe I know what I read and he even stated see an eye dr every 6 months, hello, it can mess up your retina. My pain is sporadic, not constant, don't know if weather plays a part in it or not but today we had an ice storm here in western ky and it is bitter cold and i've been in pain all day today, took a pain pill but its not knocking it, still in pain as i sit here, getting ready to go to bed, hopefully tomorrow will be a better day. PM me if you want. Sorry to hear about your daughter. My doc mentioned that with me along with lupus.

I read about the possible eye problems, too. However statistically speaking, it's a very rare side effect. She's doing very well on it so far and I've made an appointment with my ophthalmologist for her to get a base line exam. I have to get my eyes checked every 6 months because of the MS so I figure I'll just hers checked at the same time.

[donna12 742]

Thanks Missy for the info and thanks all of you all for ur input on the plaquenil. I think I will start it back, awoke today in tremendous pain. I can't go on like that!

[Mel7 47]

You are in my thoughts.

[chasingadream 1,311]

Sorry to hear that you are in so much pain...hope you get some much needed relief soon.

Sending hugs and good thoughts your way! Have a better day!

[donna450 130]

Thanks Missy for the info and thanks all of you all for ur input on the plaquenil. I think I will start it back, awoke today in tremendous pain. I can't go on like that!

Donna12

Is your pain related all to muscles?

I have fibro in my back and my rheumetoligist dr gives me flexeril to help with the pain of knotting muscles. Would this be any help to you? I'm sorry you're going thru so much it must be discouraging....but try to keeo a smile in your heart. You have many friends here concerned for you and coming here to vent does help. Bless you and prayers coming your way.

[FLORIDAYS 3,040]

Donna.... Being informed is the first step to healing. I am sorry to hear about your situation but you are a strong gal!! You will be just fine!!