Jump to content
×
Are you looking for the BariatricPal Store? Go now!

Calling all AUTOIMMUNE sleevers



Recommended Posts

Welcome! So if you had surgery sept 17 and have stalled a bit, I wouldn't worry about it. As long as you've lost over the last 30 days, then occasional stalls are to be expected. From what I have read, for those with autoimmune, the best diet is one that is 40% Protein, 40% fat! and 20% carbs. That's what I switched to a month ago, and it has really helped my weight loss start up again. You might try that and see if it works?

Diet is really messing me up – I'm doing my best to follow it but it is difficult at times. I don't always know what to eat. It's completely opposite of what I've always been talk to eat and then at the same time, I'm dealing with all this pain and all of the different medical issues that I have and it's not so easy to plan and cook and prepare for when I'm in pain.

I have already been diagnosed with endometriosis, PC OS, spinal stenosis, rheumatoid arthritis, osteoarthritis, fibromyalgia, nerve damage, just to name a few and now I apparently have psoriatic arthritis as well. I'm just trying to work on the right now. My husband recently up and filed for divorce without warning and I'm kind of at a loss there as well. I'm just not sure what to do! My rheumatologist is wonderful – I love her to death… I finally reached the time postop where I can actually go back on my Re: minutes… he is already dating...

I've been on prednisone, methotrexate, and Orencia. I'm also on various medications for pain. Now with the psoriatic arthritis, she's considering switching me to another drug…

I'd really like to get a handle on the diet though. So much of what I've been shown doesn't make sense. The dietician says one thing and then another. People have suggested that I go see another dietitian but that's not something I can afford to do, So in the meantime I just feel stuck…

Share this post


Link to post
Share on other sites

I don't know about everybody else but I was prompted to download an app called BariatricPal and it's everything seems to be in the app format instead of having to go to the website

Share this post


Link to post
Share on other sites

I didn't see where to join...if I understand correctly I have to be on a computer?? I have psoriasis as well as lichen planus and wanted to join.

Share this post


Link to post
Share on other sites

Redbean I think the groups kind of got lost in the transition. Let me see if I can find it again.

Share this post


Link to post
Share on other sites

all right, here's the new link. I still haven't figured out how to access it from a mobile device. I'll give Alex a few days of breathing room before I hit him with this one :)

http://www.bariatricpal.com/groups/357-autoimmune-sleevers/

Share this post


Link to post
Share on other sites

I have fibromyalgia and it has been horrible the last 3 weeks. I can barely walk and the headaches are non stop. I was wondering if my loss of 48 pounds in 3 months has caused the increased pain, but reading this topic I am wondering if it is a lack of vit. D. I am going to try to up my dose and see if things improve. I am so tired of not feeling good. I can not even walk, which I really enjoy.

Share this post


Link to post
Share on other sites

I have fibromyalgia and it has been horrible the last 3 weeks. I can barely walk and the headaches are non stop. I was wondering if my loss of 48 pounds in 3 months has caused the increased pain, but reading this topic I am wondering if it is a lack of vit. D. I am going to try to up my dose and see if things improve. I am so tired of not feeling good. I can not even walk, which I really enjoy.

Interestingly, I almost feel like I'm having more flareups too but I don't know if that's because I want to be more active now, and so perhaps I notice it more when I can't go walk or do something I want to do.

I do know that in between flares, I hurt a lot less so I count that as a blessing. You may need your pain/fibro meds adjusted perhaps? Mine have been adjusted downward but perhaps yours need increasing or you may need something different. Maybe time for a phone call to the doc?

Share this post


Link to post
Share on other sites

Gamergirl, I woke up feeling better today so I am hoping that the increased D vit, is going to be the help I need. Believe it or not I only take tylenol or Ibuprofen for my really bad flareups. I failed on all the others. So I gut it out most flare ups with just conventional over the counter meds. Yesterday's flare up was a doozy, but today I feel better. I did also take a walk which maybe made me feel better(even if I limped along). I have a curious type of Fibro which is only really bad enough to whine about 2-3 months out of the year,the rest of the time the pain, I perceive, is mild 3-4 on a 1- 10 scale, so I just keep moving. Yesterday was a 10+. I also remember someone, maybe you, posting about having pain after losing weight. Its like all my joints are loose and my bones seem to be clicking in places they never clicked before. I think an adjustment by a DO is in order. I think you are right a trip to the DR is in order.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Trending Products

  • Trending Topics

  • Recent Status Updates

    • cryoder22

      Day 1 of pre-op liquid diet (3 weeks) and I'm having a hard time already. I feel hungry and just want to eat. I got the protein and supplements recommend by my program and having a hard time getting 1 down. My doctor / nutritionist has me on the following:
      1 protein shake (bariatric advantage chocolate) with 8 oz of fat free milk 1 snack = 1 unjury protein shake (root beer) 1 protein shake (bariatric advantage orange cream) 1 snack = 1 unjury protein bar 1 protein shake (bariatric advantace orange cream or chocolate) 1 snack = 1 unjury protein soup (chicken) 3 servings of sugar free jello and popsicles throughout the day. 64 oz of water (I have flavor packets). Hot tea and coffee with splenda has been approved as well. Does anyone recommend anything for the next 3 weeks?
      · 1 reply
      1. NickelChip

        All I can tell you is that for me, it got easier after the first week. The hunger pains got less intense and I kind of got used to it and gave up torturing myself by thinking about food. But if you can, get anything tempting out of the house and avoid being around people who are eating. I sent my kids to my parents' house for two weeks so I wouldn't have to prepare meals I couldn't eat. After surgery, the hunger was totally gone.

    • buildabetteranna

      I have my final approval from my insurance, only thing holding up things is one last x-ray needed, which I have scheduled for the fourth of next month, which is my birthday.

      · 0 replies
      1. This update has no replies.
    • BetterLeah

      Woohoo! I have 7 more days till surgery, So far I am already down a total of 20lbs since I started this journey. 
      · 1 reply
      1. NeonRaven8919

        Well done! I'm 9 days away from surgery! Keep us updated!

    • Ladiva04

      Hello,
      I had my surgery on the 25th of June of this year. Starting off at 117 kilos.😒
      · 1 reply
      1. NeonRaven8919

        Congrats on the surgery!

    • Sandra Austin Tx

      I’m 6 days post op as of today. I had the gastric bypass 
      · 0 replies
      1. This update has no replies.
  • Recent Topics

  • Hot Products

  • Sign Up For
    Our Newsletter

    Follow us for the latest news
    and special product offers!
  • Together, we have lost...
      lbs

    PatchAid Vitamin Patches

    ×