detoxing

[donna12 742]

wow where do I begin: Let me begin back on Aug 17th when I came in from outside from taking my dog to potty and (as some of you know I live with my mom) I came in and the room was spinning, I immediately couldn't stand up, I was falling to my right side and all of the sudden I went down. She finally managed to get me up with the help of furniture and walls to get me to my bed. She called my best friend over and after and hour and half of debating whether or not I could walk to the car to go to the ER I was unable and of course she thought I was having a stroke so she called an ambulance. So off to the local hospital I go, small town here...after an hr in ER the dr came in after a CT scan and said I had a blood clot on the brain, What??? Talk about scared to death so I was immediately prepped to be transferred to Nashville by ambulance. Tons of testing went on throughout the night and next day only to find that I did not have a blood clot nor no signs of a stroke at this time, the neurologist on staff suggested for me to see an ENT that it must be inner ear. So I came home and made an appt with my reg. PCP and he said well it could have been a mild TIA and not shown up or yes inner ear so let's get you in to see an ENT. Went to the ENT here in town, he gave me Meclizine, I was on that for 1 month, did not help with my dizziness, nausea or sometime walking drunk. My mom has been driving me since I am still dizzy. Fast forward to 3 weeks ago when I decided this ENT wasn't helping and I made an appt to see another, out of town, he said we'd get to the bottom of it. Now fast forwarding to 2 weeks ago, I went in to my PCP because over the last few months my legs have been aching, ankles hurting when I walk, so he took blood and it came back and tested positive for an autoimmune disease like fibromyalgia, lupus, RA. He suggested for me to see a Rheumatologist. I've searched and searched for one in Nashville but all are full with appts till December and the one we have here in town is not good and so I found a group in Paducah Ky that has a dr there but yet again I have to wait to get in, so I wait and still in pain.

You ask why the title of detox? I was reading the side effects of aspartame and it was horrible and let me tell you I was addicted. Every bottle of Water I drank and that added up to 5,6,7 a day and every bottle had a packet of Crystal Light in it, I cannot stand plain Water, it gags me so Friday I had my last Crystal Light but tonight I fell off the wagon, I couldn't stand it any longer. I had a MIO bottle around and squirtted a few drops of it in my water. Now it is sweetened to with Sucralose, got to study up on that one. I had been drinking bottled water with crystal light in it for years so maybe this has caught up with me, I don't know.

All I know is that 16 months ago when I had surgery my thoughts were "oh I'm gona lose weight and feel like a million bucks and exercise", well that hasn't come yet for me because of my aching body and other health issues along the way.

I do wish and hope the Rheumatologist can find out something when I go and shed some light on maybe why I am in pain everyday and I also read where autoimmune diseases can also go along with inner ear probs, lovely. huh?

Thanks for listening to my so called rant.

Donna

[Sharpie 3,306]

Donna I had a similar problem a few years ago.. I woke up one morning and felt kinda woozy.. got up went to the bathroom and went back to bed for a bit.. when I got up the second time the room was spinning.. I couldn't get to the bathroom unless I crawled. Husband was gone to town, I was alone, scared the heck out of me.. I crawled to the phone and called him to come home.. He knew it was bad when I asked him to call ambulance.. I was thinking, my blood sugar or something maybe a heart attack or stroke.. went to ER, had a cat scan and all test came back negative.. they said it was inner ear.. I was sent to ENT and they put me on Meclazine also.. which for me it worked.. I had Fluid in my inner ear..

I sure hope they figure yours out . it's miserable.. yes I agree about aspertame.. people have had migraine's and lots of other issues because of using it... I do not use anything but Truvia...Take care and let us know how you are doing...

[parisshel 1,892]

Glad they have ruled out stroke and such. The symptoms do sounds consistent with vertigo, which is not life-threatening per se but a real tough diagnosis to manage. I hope you feel better soon.

[Sojourner 2,446]

wow where do I begin: Let me begin back on Aug 17th when I came in from outside from taking my dog to potty and (as some of you know I live with my mom) I came in and the room was spinning, I immediately couldn't stand up, I was falling to my right side and all of the sudden I went down. She finally managed to get me up with the help of furniture and walls to get me to my bed. She called my best friend over and after and hour and half of debating whether or not I could walk to the car to go to the ER I was unable and of course she thought I was having a stroke so she called an ambulance. So off to the local hospital I go, small town here...after an hr in ER the dr came in after a CT scan and said I had a blood clot on the brain, What??? Talk about scared to death so I was immediately prepped to be transferred to Nashville by ambulance. Tons of testing went on throughout the night and next day only to find that I did not have a blood clot nor no signs of a stroke at this time, the neurologist on staff suggested for me to see an ENT that it must be inner ear. So I came home and made an appt with my reg. PCP and he said well it could have been a mild TIA and not shown up or yes inner ear so let's get you in to see an ENT. Went to the ENT here in town, he gave me Meclizine, I was on that for 1 month, did not help with my dizziness, nausea or sometime walking drunk. My mom has been driving me since I am still dizzy. Fast forward to 3 weeks ago when I decided this ENT wasn't helping and I made an appt to see another, out of town, he said we'd get to the bottom of it. Now fast forwarding to 2 weeks ago, I went in to my PCP because over the last few months my legs have been aching, ankles hurting when I walk, so he took blood and it came back and tested positive for an autoimmune disease like fibromyalgia, lupus, RA. He suggested for me to see a Rheumatologist. I've searched and searched for one in Nashville but all are full with appts till December and the one we have here in town is not good and so I found a group in Paducah Ky that has a dr there but yet again I have to wait to get in, so I wait and still in pain.

You ask why the title of detox? I was reading the side effects of aspartame and it was horrible and let me tell you I was addicted. Every bottle of Water I drank and that added up to 5,6,7 a day and every bottle had a packet of Crystal Light in it, I cannot stand plain Water, it gags me so Friday I had my last Crystal Light but tonight I fell off the wagon, I couldn't stand it any longer. I had a MIO bottle around and squirtted a few drops of it in my water. Now it is sweetened to with Sucralose, got to study up on that one. I had been drinking bottled water with crystal light in it for years so maybe this has caught up with me, I don't know.

All I know is that 16 months ago when I had surgery my thoughts were "oh I'm gona lose weight and feel like a million bucks and exercise", well that hasn't come yet for me because of my aching body and other health issues along the way.

I do wish and hope the Rheumatologist can find out something when I go and shed some light on maybe why I am in pain everyday and I also read where autoimmune diseases can also go along with inner ear probs, lovely. huh?

Thanks for listening to my so called rant.

Donna

There are specialized blood tests that your PCP can order to either rule out or confirm a autoimmune diagnosis. You should not need to see a rheumatologist for a Dx. The rheumatologist may be better able to manage an autoimmune spectrum disease, however I have had much better treatment outcomes with my board certified internal medicine PCP.

I'm sorry you are having to go through all of this...it's scary and when you don't feel well all of that is amplified. Perhaps your PCP can order additional tests for you to rule out specific disorders. What was the name of the test you tested positive for?

I hope you feel better and have some answers to your questions very soon...

[mrsto 2,925]

Donna - just curious..... Do you ever get ringing in your ears? My dad has Miniere's disease, and the episodes are a lot like what you went through. He was carted off by ambulance a few times, and after ALL the testing, that is the diagnosis he was left with. Certainly better than a brain tumor, but still very hard to manage.

Keep us posted of the outcome. I hope it's nothing life threatening. VERY scary when we're out of control with our bodies.

[donna12 742]

There are specialized blood tests that your PCP can order to either rule out or confirm a autoimmune diagnosis. You should not need to see a rheumatologist for a Dx. The rheumatologist may be better able to manage an autoimmune spectrum disease, however I have had much better treatment outcomes with my board certified internal medicine PCP.

I'm sorry you are having to go through all of this...it's scary and when you don't feel well all of that is amplified. Perhaps your PCP can order additional tests for you to rule out specific disorders. What was the name of the test you tested positive for?

I hope you feel better and have some answers to your questions very soon...

He did do specific blood test but not sure what. He is a internal med dr. I'm at a loss

[DELETE THIS ACCOUNT! 12,703]

Yes, your doctor should be able to tell if you have Lupus or RA by blood makers. You don't need a specialist to test that. I would call and ask specifically what you were tested for and the individual results.

Also, if you do test negative for these diseases via bloodwork, I would insist on an MRI to test for Multiple Sclerosis. It won't show up in bloodwork but it will show on an MRI as well as in spinal Fluid. Unfortunately, the symptoms you describe can also be caused MS (I have MS btw).

A small piece of advice about the whole Aspartame thing- conspiracy theorists have been trying to blame everything from RA, to Lupus, to MS on it and it's completely unfounded. Many tests have been done and there are no links between Aspartame and these diseases.

Hang in there ((hugs))

[Toddy 758]

Wow! I just recently learned about the connection of aspertame to lupus and MS. In 2004 I started getting a terrible rash on my forearms and cheeks every time I'd be in the sun. I went to a dermatologist and they did a biopsy. It came back as lupus like. I went to the rhumatologist and he said I didn't have lupus "yet". I was so terrified of getting "a diagnosis" that I didn't even ask what the "yet" meant, left his office and never went back.

Fast forward to January 2012. As part of my pre-op diet I cut out Diet Pepsi completely, after having a 5 to 6 can a day habit for years. 2013 I move to the coast and have been in the sun more than ever before and have had NO RASH whatsoever!!! Don't recall having the rash at all in 2012 either, but just made the connection recently when I heard about the aspertame/lupus and/or MS connection...

Scary, scary stuff. Hope you get to the bottom of this and I hope and pray that more people get the word about how dangerous this stuff can be!!!

[Toddy 758]

A small piece of advice about the whole Aspartame thing- conspiracy theorists have been trying to blame everything from RA, to Lupus, to MS on it and it's completely unfounded. Many tests have been done and there are no links between Aspartame and these diseases.

I've never been one to buy into the conspiracy theorists' condemnation of this or that. However, I can't think of any other explanation of why my "lupus like" rash that I had lived with every summer since 2004, just all of a sudden stopped when I stopped consuming aspertame. It's made a believe out of me!

[DELETE THIS ACCOUNT! 12,703]

I've never been one to buy into the conspiracy theorists' condemnation of this or that. However, I can't think of any other explanation of why my "lupus like" rash that I had lived with every summer since 2004, just all of a sudden stopped when I stopped consuming aspertame. It's made a believe out of me!

I understand your concern, but I just wanted to point out there is zero medical evidence linking Aspartame to any diseases, including Lupus and MS.

[Toddy 758]

I understand your concern, but I just wanted to point out there is zero medical evidence linking Aspartame to any diseases, including Lupus and MS.

For years the link between cigarette smoking and lung cancer was considered a conspiracy theory, too. Unfortunately when something being banned will have a potentially huge financial impact, it usually takes many, many years for a definite conclusion to be reached and accepted.

[jsws91 153]

my son has scleroderma which is also an autoimmune disease. but you would probably have a skin rash of some sort and thickening skin in that area. my sons is on his left leg from foot to hip. anyway, he has alot if dizziness, lightheaded feelings also, they have not been able to determine cause yet.

but I did read that some rheumatoid and auto immune diseases have some ear involvement also. so for now they are just telling us his is either from his disease or stress..

[jamilyne 102668 1,207]

I hope you feel better - so scary. Keep us posted!

Sent from my iPhone using LapBandTalk

[donna12 742]

well I fell off the wagon, I couldn't take it with the plain Water, it was gagging me, literally. I put Walmart brand squirt flavored stuff or back to my crystal light, just couldn't take it. feel like a failure at detoxing.

[kll724 3,055]

Donna, please try Truvia, it is natural. My son-in-law is very affected by aspartame. He gets bad headaches, and other problems. studies are not always as accurate as people are. Sorry, missy, don't want to start a debate here. But, if this problem just started, it is so worth a try to get off something and try something else! best wishes!