TinyMamiOf3kids 1,280 Posted July 22, 2013 upstate ny? what county? or NYC? Queens Share this post Link to post Share on other sites
TinyMamiOf3kids 1,280 Posted July 22, 2013 Yes it's very rough. Share this post Link to post Share on other sites
DevilBlueDress 189 Posted July 23, 2013 Do you have access to any respite care funds, so that you can get a break from time to time? Share this post Link to post Share on other sites
erinkenny 7 Posted July 23, 2013 My 17 year old son is autistic and when he was 2 he would climb out the window (until we got locks for the windows) so I know a little of what you are going through). I have no idea what I would have done if I hadn't had a supportive husband. Hang in there, mum. We're all pulling for you. Share this post Link to post Share on other sites
TinyMamiOf3kids 1,280 Posted July 23, 2013 Do you have access to any respite care funds' date=' so that you can get a break from time to time?[/quote'] I wouldn't know but I will look into it Share this post Link to post Share on other sites
TinyMamiOf3kids 1,280 Posted July 23, 2013 My 17 year old son is autistic and when he was 2 he would climb out the window (until we got locks for the windows) so I know a little of what you are going through). I have no idea what I would have done if I hadn't had a supportive husband. Hang in there' date=' mum. We're all pulling for you.[/quote'] We instal gates on the window when we notice the climbing. Share this post Link to post Share on other sites
DevilBlueDress 189 Posted July 25, 2013 In Wisconsin, we have access to Medicaid waivers that include intensive therapy (in-home or in a school setting) and respite care. I'm not sure if New York has something similar. Look for a Katie Becket Medicaid waiver. In Wisconsin, it also qualifies your child for a county case manager who can help you navigate all the different systems (county, state, federal, school, etc.). I did find that NY has an insurance mandate for autism therapy. This is in addition to what public schools offer. For respite care providers, I put ads in the student job center at my local university. Share this post Link to post Share on other sites
TinyMamiOf3kids 1,280 Posted August 26, 2013 In Wisconsin' date=' we have access to Medicaid waivers that include intensive therapy (in-home or in a school setting) and respite care. I'm not sure if New York has something similar. Look for a Katie Becket Medicaid waiver. In Wisconsin, it also qualifies your child for a county case manager who can help you navigate all the different systems (county, state, federal, school, etc.). I did find that NY has an insurance mandate for autism therapy. This is in addition to what public schools offer. For respite care providers, I put ads in the student job center at my local university.[/quote'] Yes we have something called respite here in New York. He is in school full time. He goes to therapy outside of the school weekly for 1 hour. He is now starting to get better. He has stop climbing on the window but every so often looks out if he notice I step out even if someone is home he is looking for me awww. I feel so overwhelm though when he is home cuz I have to cook & he loves watching me fry the meat turn the rice but he gets to close that he almost got burn lucky I push him a little when the oil was splashing. Now he has a distance. I don't want to take time away from my teen to watch him she has a social life as well. I'm now trying to prepare dinner when they are in school so all that's left is to make the meat & just hear up the food. So I also spend time with my kids. Feeding them is extremely important but that's all they see me do. Cook all day when they are home or clean. Even when we are out my 5 year old says your gonna cook on the BBQ (when we are on the boat) I say nope let daddy do that I'm taking a cooking break. I can cook on a charcoal BBQ gas grill stove hot plate anything & electric stove which i hated but i manage. I was raise the old fashion way. If things start to get out of hand as he grows I will seek extra help. Thanks Share this post Link to post Share on other sites