Anyone Suffer From Pseudotumor Cerebri?

[JPrez10706 17]

Awww good luck. Lumbar punctures are no fun. I ended up hospitalized after both of mine. Lay flat for as long as possible and drink tons of Water. And if a headache starts tell them you need IV fluids and IV pain med. it will cure it instantly. Keep me posted.

[MrsLulu 69]

Aww no fun! Hate going through that, totally understand the pain. My sis has had over 60 lumbar punctures in her life because of the Psuedotumor Cerebri. She has to have them often, even though it is so dangerous.

[JPrez10706 17]

60?? That's awful!

[LilBoo007 491]

This was only my second... It hurts like hell !!! Well like I already knew my csf was high, opening pressure was 38. Just waiting to get a call from my Neuro in what his action plan will be. Laying down in the bed all day and night. Hopefully I won't get another spinal headache !

[JPrez10706 17]

Rest up and good luck!

[LilBoo007 491]

Thanks! Dr. Called me and is raising my Diamox back up to 2,000mg daily.... I hate taking that much because the side affects are horrible on that much! But it does help out a lot !

[JPrez10706 17]

Just wondering how you're holding up? Hope you didn't get the dreaded spinal headache!

[JPrez10706 17]

Just wondering how you're holding up? Hope you didn't get the dreaded spinal headache!

[LilBoo007 491]

I did... But this time it hasn't been as severe as last time but my back killed me until today! It felt like a truck ran over my spine! My Neuro is still hoping it goes away when I loose the rest of my weight(45lbs.) but has brought up a vp shunt in the event it doesn't since I seem to have this severely. Not really sure what the heck that is but I'm sure he will explain it in Aug. if I am still suffering

[JPrez10706 17]

It's basically a tube that runs from your brain to your abdomen to drain the fluid...

[JPrez10706 17]

Hopefully losing the rest of the weight helps!

[LilBoo007 491]

Jprez, how long did it take before you were symptom free???

[JPrez10706 17]

Sorry, I didn't see your post sooner! Within the first month. I was very fortunate. How are you doing?

[LilBoo007 491]

Still the same... I get Migraines and headaches most days still probably 5-6 days a week. Some last all day starting when I wake up and others don't come till the evening. I told my dr. This and he said there's really nothing more he can do for me, but that he is convinced that with further weightloss I will see improvement. I don't know why he didn't up the dosage of my diamox to 1500 or 2000mg ? So I guess for now I just live with the pain and other symptoms. When I see him in aug I will be getting some more definite answers for sure!!!

[JPrez10706 17]

How awful. So sorry to hear this. I can't believe there's been no relief. How far post op are you?