Destroyed my life

[sc_mama4 92]

Dear Friends,,

In May I underwent the RNY procedure through a military instillation. After it happed I developed a night mare only producers come up with with a scarie movie. in 2011 I was having extreme belly pain no one figured it out. After a billion surgeries, feeding tube and PIC line I nearly died, I live in SC age four prescritions the rest is out of pocket . can never get my kepra filled thanks to insurance companies.Iver developed the seizurs agin and now I;ve devloped espohgaus spasims, This stomach thing is killing me.PP;L jinternet said valium works on itnot so sure This surgery I initiated was not smart, I don;t ahav energh one day that i don;t feel sick.

Im sick now because of it. So would I do it again,,NO. Do any of u have tricks for stopping this?/////

[joyaskins34 31]

Yikes! I am having surgery hopefully first of may...what have doctors told u? I have heard of a few ppl that this has happened to but they had a stricture ..hope someone can offer you some advise!

[Nel 189]

Goodness. I have surgery Monday. I have no idea, but I hope your going to be okay.

[sc_mama4 92]

well I'm five years post op. I've had a total of 7 surgeries with 7 blood transfusions. My favorite assumption ppl say is "your not following the rules" NO I follow them to the tee. My weight leveled off at 124lbs and has been that way for 4 years. Not following protocol would result in weight re-gain. My health issues are so severe that I'm epileptic and now disabled due to it. When I get sick I get sick, ICU, main floor hospital stays and countless pokes and prods. This surgery is the most horrific kind to have. If i could go back I would have put my butt on a treadmill. There is so much more to this surgery than ppl think. SURE you went thru your psych eval but have you thought about the psychological ramifications of when u wake up? NOBODY does, until your lying in bed alone and viola it hits I was a food addict and now what can i do to cope? Some foods you eat work some you vomit, I vomit A LOT. There are days I give up and could careless if I eve eat at all. I can't even pay with my children because most of the time I feel so bad all I can do is lay on a couch and observe. Yeah this is life and yeah I'm a size four but at WHAT cost? Ask yourself that before u get on that table because I'm telling you the first PEG tube I had I hurt so bad I wrirthed the strongest drug available couldn't ease it. I seize now randomly. My life is destroyed I visit the dr almost once a week. My life is destroyed and its all my fault. Now I'm stuck with these spasims that comes and feels as if somebody is punching me in the chest so hard I couldn't breathe. I vomit and that hurts worse. At times I really feel like dying would be a better option than surviving this, but I have three kids that depend on me. sad part is I can't do the same things I did before cheerleading gamess etc. Now I'm stuck in a house sitting on a couch and getting energy to clean for 30 minutes and sit back down. I've been to a oncologist and give Iron supp;iments which made me violently ill. I've had blood from countless strangers. My body is truly no longer mine. Im tired to be honest i just want my normal life back and I'd take being a size 16 over a size 4 any day, Truly you all I am speaking from the heart this surgery isn't all what its cracked up to be, its dangerous and completely life changing in a lot of ways. Maybe somebody here can have suggestions on this spasm stuff and help me because I'm at my ropes in in pain,

[FabMomof4 22]

I have a close friend who also became an epileptic after surgery...

[sc_mama4 92]

Did they say why theirs started?? Mine was due to severe emaciation and mineral imbalances. That began in Oct 2010. I was admitted to the hospital because a part of my intestine had rotated and I needed surgery. While there I wound up having severe granmaw seizures. They placed a PIC line into my arm and began feeding me TPN that way so that I wouldn't starve to death. I laid for two weeks unconscious, seizing and unresponsive. Finally I became stable enough for them to do the surgery and it nearly took 6 hours. Once in there he had to repair several places and re anchor a lot of things that had worked lose. He also fitted me with a PEG tube into my old stapled stomach. I wore that from March 2009 til May 2010. The tube came out and the seizures continued. November of 2010 I had became emaciated again and developed what was called blind loop syndrome. They took me to surgery and had to fix a stricture in my pouch/esphogas putting in a stint like thing. I was again refitted for a PEG tube and I wore that one from November 2010 til July 2011. Finally, to be honest I gave up complaining. Doctor after Doctor and specialist after specialist, I give up. I take my Vitamins, I never eat more than I'm supposed to, I'm lactose intolerant and the list goes on and on and on. I have three children under the age of 11. It's hard for me to get up and ride a bike with them. My medication list is longer than it was pre-surgery.

Pre-surgery I took:

Levisin

Lisinopril

Humulin

Nexium

Baby Asprin

Lasix

Post Surgery:

Kepra

Depakote

Sumatriptiphan

Levisin

Zantac

Restoril

Lopermide (sp) rx strength not oc.

Tylenol because I hurt so bad everyday.

Phenegrin to stop me from vomiting

and then when things get bad Marinol to help with hunger.

I've had a total of 3 PIC lines and now I have a port. So they can gain acess to take my blood because even with Vitamins and Iron suppliments I still keep severe anemia. I ask ppl all the time from obesity groups was it really truly worth it. For me, it wasn't and I am living proof that even though this surgery has now became main stream it is NOT to be taken lightly nor to be considered a miracle because it is far from it. I worked as a paramedic many years and now I'm disabled. All because I was told by a Dr it would make my life better. Has it? Is it better that my kids has watched me hit the floor and seize? No, what would have been fair is taking myself to a gym and doing it the proper way. This way, has left me completely broken and I wonder every day of my life how many more years do I have to live this way.

[kristy3k 1,133]

So sad that your surgery turned out this way for you. I pray that a medical physician some where can heal you and make you whole. Sending prayers your way seems almost hollow to what you are going thru. But I don't want you to give up. Please keep searching whether its the net or trying different doctors until you can find a better quality of life... Those babies need you!!!

[sc_mama4 92]

Thank you so much. I just tell you life like this is very hard and it infuriates me when people tell me "Oh you went the easy route" no way shape OR form is gastric bypass easy. It messes with you emotionally, physically, spirtually..basically completely! I'm going the 10th to see what is supposed to be a very good bariatric surgeon. My lower half seems fine now, but its the upper I guess where the stint is. My spasims are so severe they feel like a heaart attack. It's horrible. I can truly honestly understand why suicide rates are so high due to this surgery. It's horrible.

I'm probably scaring all these poor people to death, but i'm just trying to be honest and show you all that not everyone wakes up off that table "healed." Obesity is a disease something we all have to figure out ourselves. How why when did we get this way and then comes the hard part accepting you did it yourself...no matter how hard you try to deny it. Trust me I did it.

Advice to those having surgery. Listen to your bodies you hear full, you stop walk away. Learn to eat things you thought you never would. Tofu is my favorite and your going to laugh but dehydrated vegies are also my favorite. I can't drink any milk because I became lactose intolerant afterwards. Be careful and listen to your body please. i have a friend who is the same amount of time out of surgery as I and she's already gained back. I teeter between 124-133 and have since 2011. 5 years post op and saying that I feel is a big thing. I'd like to see the ones having surgery come back wih the same success stories. I wish you luck and if you need me just hollar.

Thanks yall

[FabMomof4 22]

She has researched it... They say it is rare, no consolation for you all going through it But it is also from mineral imbalance

[joyaskins34 31]

How long after your surgery did u start having problems? And where are you from?

[sc_mama4 92]

17 mos is when the volvulus occured. Then a week after that the epilepsy began. Since then I have had several more surgeries w pic peg and then finally the port.

I'm in SC.

[Cherry 71]

this is a wayyyyyy out comment, but is there any chance you were allergic to the staples?? It's rare to be allergic to titanium but possible.

[sc_mama4 92]

Actually ur half right I was severely allergic to the dermabond. Now I can only get sutures ...ur body does get sensitive to stuff after. Like I'm lactose intolerant and now allergic to fish. Its weird.

[joyaskins34 31]

So if u can only get sutures have they considered the staples may be cauSing some of your problems?

[joyaskins34 31]

Also have they offered to reverse the rny..I know it's unusual..but I was told only the sleeve is irreversible