Anyone with VSG have MS?

[SuNMooNStaRS816 423]

I am asking not for myself but for a friend with MS. She is supposed to be getting sleeved has the date set and now her neurologist doesn't think its a good idea for a few months. Just wondering if anyone can give us some insight on this situation. Share your experience.

[gaijingal 62]

I'm sure I read a post recently from someone with MS, but I can't remember who, sorry.

So, I'm not that helpfu. I did, however, work on a neurology ward for several years, and my best advice would be to listen to the neurologist, as long as s/he isn't just being passive-aggressive and trying to prevent the surgery because they don't believe in it.

There's a lot of stuff that can go wrong with MS, and the smallest thing can set off an exacerbation, let alone something as traumatic as a gastrectomy. Your friend will want to have her neurologist 100% behind this decision, as her road is likely to be a bit more bumpy than yours or mine.

I'm thinking your friend is possibly having an exacerbation right now, and that's why the neuro wants her to wait?? If the doctors are open to it, it might be helpful to put her neuro and her surgeon in touch with each other. Some of the meds they use in an exacerbation will impede healing, and some need to be taken with a lot of food, so coordinated docs would be the ideal.

Personally, I had the experience of having the surgery with an active neurological condition, which made it a bit more terrifying, so I'm certainly not one to say someone shouldn't have the surgery just because they're sick. If nothing else, her MS will be easier to manage when there's less of her to lug around, and she'll reduce her risk of pressure sores and things like that in the long run. I just recommend proceeding with caution.

(Sorry if I was being one of those windbags who insist on replying, even though they don't know the answer...I just know how challenging things can be for neuro patients, and how hard it is to get answers.)

[cathyem1 5]

I am asking not for myself but for a friend with MS. She is supposed to be getting sleeved has the date set and now her neurologist doesn't think its a good idea for a few months. Just wondering if anyone can give us some insight on this situation. Share your experience.

Hi, I have secondary progressive MS and want to have a better quality of life. That is why I'm going to have VSG surgery in November. Your friend may well be relapsing/remitting (as I was for 16 years). If so she needs to talk to her neuro to understand possible additional problems.

[MandaPanda 173]

I have had the sleeve a few months ago and am currently going through testing to see if I have MS.

[cathyem1 5]

I have had the sleeve a few months ago and am currently going through testing to see if I have MS.

I really hope you don't have it, but if you do please know it's not the end. There's loads of support out there. Please keep me updated.

Cathy x

[AmandaRaeLeo 2,146]

I developed optic neuritis over a year ago in my right eye. It is an indicator of MS. So far no signs of MS but that possibility and my now increased chance of developing it prompted me to get my weight under control.

I knew at 400+ lbs I'd be wheelchair bound in no time if things got bad.

I hope I never have to find out, but I'm glad I took control of my situation either way.

[MandaPanda 173]

I really hope you don't have it' date=' but if you do please know it's not the end. There's loads of support out there. Please keep me updated. Cathy x[/quote']

Thanks. Having MRI of brain and seeing an ophthalmologist next week. I just want to know what is happening with me so I can address it and move on. I will let you know! Thanks

[Heyher 581]

Diagnosed with relapsing remitting ms 10 years ago at the age of 20. Talking to neurologist about my possibly developing secondary progressive. So thankful I had this surgery. Pain and fatigue have improved.

[cathyem1 5]

Diagnosed with relapsing remitting ms 10 years ago at the age of 20. Talking to neurologist about my possibly developing secondary progressive. So thankful I had this surgery. Pain and fatigue have improved.

How was your recovery from surgery? I'm taking a month off but I don't know if I'll be strong enough to go back to work by then. It would be great to have some relief from the fatigue.

[nsquared 232]

I was dx with relapsing remitting MS in 2000. This surgery has improved my life in immeasurable ways! My neurologist was not a fan initially but did not think it would harm anything so I did it. I am so glad I did. Because I am lighter, working out is such a joy and I just like me more.

[Heyher 581]

How was your recovery from surgery? I'm taking a month off but I don't know if I'll be strong enough to go back to work by then. It would be great to have some relief from the fatigue.

I took six weeks. I had disability from my work. The fatigue in the first four weeks was rough. But after I was able to start getting some carbs it helped. I could have gone back after five weeks, but the first few days back wore me out.

[cathyem1 5]

I took six weeks. I had disability from my work. The fatigue in the first four weeks was rough. But after I was able to start getting some carbs it helped. I could have gone back after five weeks' date=' but the first few days back wore me out.[/quote']

Thanks so much for this. I only work part time now and it's sedentary work so I hope the month I'm taking will be enough. :-)