NORCALRN 60 Posted March 1, 2013 So i finally got the NJ tube out and a low profile MIC-KEY J tube placed. surgery went well adhesions, scarring as expected. Although my surgeon ordered 5 kits - not one was the correct size, so she modified it at bedside the day before discharge. i chose no pain meds to come home with. in patient = IV zofran with ativan to go with the dilaudid. came home with the zofran but it doe not help much. not incapaciatated with nausea this time around. in 6 weeks my surgeon will replace this j tube with a more approriate fitting one (in office since the tract with be well-developed. in the meantime, i have to super careful since there is no retaining ball of saline anchoring it inside. my folllow up is 3-6-13...maybe she can tweek the design a bit so it is more secured. i wanted to start walking during PO am one but up until my discharge my bp was 80's over 50's but i did walk with 3 people. foley out after 24 hours (my bladder was too distended for me to pee. weird feeling but foley and peeing took over. now, if the swelling goes down quicker - i will be happy. my belly feels huge of course. so, i think i have turned the corner. real food even sounds good sometimes. looking forward to our sunny day in the low 70,s, and maybe a quick visit to sit next to the pool. have 2 new VS swimsuits to wear. cannot wait! the shopping has been fun. so for those of you that are early in your unexpected journey - hang in there. it does get better. it really does!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ' Share this post Link to post Share on other sites
magtart 603 Posted November 9, 2013 How is everything going NORCALRN? I had never heard of a Jtube until I just now looked it up. My husband has been on a PEG tube for 18 months. Share this post Link to post Share on other sites
NORCALRN 60 Posted January 18, 2014 So here is an update....still with a J tube, had it replaced twice. very few foods I can eat. very few. I an struggling with a desire to return to an active lifestyle. cardio irritates my tube. i am still not at my goal weight even though i needed to lose about 65 pounds...so I continue to moderate my life. I hope to have this out soon but nutrionally, I am limited to food. I know things will get better, but it bums me out. loose skin removal/lower body lift will have to wait, no doctor will touch me at this point. one day. anyone with question are welcome..i have a ton of information that i would be happy to share!!! Share this post Link to post Share on other sites