Sannah 258 Posted February 2, 2013 Hello!! I have had a leak and I am going through a lot with the sleeve. I am wanting to find someone who has been down or is currently going down this road. It's rough. I have been reaching out and receiving amazing support from other sleeved friends Dec Sleevers are nothing short of AMAZING!! I think it would be nice chat or text with someone who has been here. Share this post Link to post Share on other sites
mikeross 216 Posted February 2, 2013 sorry to hear about your leak situation... I wish you the best in finding additional support and a speedy recover. 1 MamaC reacted to this Share this post Link to post Share on other sites
SeriouslyChange 319 Posted February 2, 2013 I'm sure Iggychic will chime in at some point. She has been through a lot as well and I believe she would be your best resource Share this post Link to post Share on other sites
Sannah 258 Posted February 2, 2013 good luck' date='[/quote'] Thank you so much. It's been real hard. I feel so lost and broken. Share this post Link to post Share on other sites
SeriouslyChange 319 Posted February 2, 2013 I remember you posting a while back. If you don't mind me asking, how has everything progressed? Share this post Link to post Share on other sites
Sannah 258 Posted February 2, 2013 sorry to hear about your leak situation... I wish you the best in finding additional support and a speedy recover. Thank you kindly. This has been a very hard two months. Stents ( I had two) were a beast, finally had them removed and have some physical relief. But my emotions are running crazy. I have been on liquids since dec 4th. I am not allowed to drive because the anti-nausea medicine blurts my vision. My surgeon has turned into a nasty lady. I may be switching care over to a new dr. Share this post Link to post Share on other sites
SeriouslyChange 319 Posted February 2, 2013 Oh my gosh! I am so sorry to hear that! 1 MamaC reacted to this Share this post Link to post Share on other sites
Sannah 258 Posted February 2, 2013 I remember you posting a while back. If you don't mind me asking' date=' how has everything progressed?[/quote'] Hi!! Things have been real rough. I had the two stents for six weeks. They were very hard to live with. The pain was unreal and lots of vomiting. I was going to day treatment everyday for five hours to get hydrated, medication and nutrients. I am trying to learn to nourish my body by mouth. I still Go to day treatments, but every other day. I had my PICC line out. Now I have a mid line on place. I was hospitalized again after the stents because Fluid had collected on my heart. So I was in the cardiac unit for a while. I have never had high blood pressure, but suddenly do. My body is very sensitive to antibiotics. So I had to meet a infectious disease dr who would have access to strong enough antibiotics to treat the infection from the leak. I took these drugs for two weeks in the hospital and came home on them. My body is very very weak. It's hard to walk up or down stairs. I keep trying, but my legs feel so heavy and ache. Like on the verge of Charlie horse. Other stuff has gone on. Last week my surgeon told me I was asking stupid questions. I don't think I can handle anyone who isn't supportive. Kidney function was too low for a while. It's coming back. I have lost a total of 60 pounds, but when I feel so emotional and crazy these numbers don't matter. I will be allowed to have puréed foods when I no longer vomit and I can prove that I am able to get in 64 oz of Water a day and 85 g of Protein orally with no help. Not sure when this will be. I try so hard, but don't get too far. I get sick when I consume so its hard to get fluids and Protein. Things are progressing at a slow rate. Some days are better than others. I am really feeling lost and broken. Not sure what to do with myself. How has your journey been? Did you have a leak? Best, Samnah Share this post Link to post Share on other sites
Sannah 258 Posted February 2, 2013 Error: keep 64oz and 85g consumed orally for 7 consecutive. Then I can try puréed foods. I am currently in day treatment every other day. Share this post Link to post Share on other sites
SeriouslyChange 319 Posted February 2, 2013 Wow, I just remember you posting thinking that you may have a leak and someone saying they remember you because of your banana phone. I have not had a leak, my progress has been okay. I still struggle with fluids and Protein. Your doctor should never tell you that you're asking stupid questions!!! File a grievance and switch doctors. That's so rude. 1 MamaC reacted to this Share this post Link to post Share on other sites
Sannah 258 Posted February 2, 2013 Wow' date=' I just remember you posting thinking that you may have a leak and someone saying they remember you because of your banana phone. I have not had a leak, my progress has been okay. I still struggle with fluids and Protein. Your doctor should never tell you that you're asking stupid questions!!! File a grievance and switch doctors. That's so rude.[/quote'] I am glad to hear you're progressing. When were you sleeved? Do you have nausea? What stage of food are you on? Yes, been so hard. Some days I am not sure where to dig or how to find strength. I completely agree with you about my surgeon. It's insane that this ever happened. We all have bad days I get it. What I don't get is taking it out on someone else. I am seeing her Tuesday and I am talking to her about how I feel and what this has been like. Wish me luck. She has to know. 1 gibson_girl reacted to this Share this post Link to post Share on other sites
douglas 30 Posted February 2, 2013 do they go back in and fix the leak ,,, im have the sleeve done feb. 7 next thurs Share this post Link to post Share on other sites
Sleevealicious 43 Posted February 2, 2013 Hey there! I had leak as well. Same situations as you. Two stents, etc . Definitely had some emotional damage , not to mention physical. Stents are hell. Plain and simple. TPN, PICC Lines, all the drains, chest tubes, NG tubes are miserable. Anti nausea meds don't even work that well unless through an IV. And yes , blurry bison , Constipation , not being able to read anything up close sucks. ( nothing helped me unless it was through an IV, the only thing that could even touch my pain were large doses of dilaudid from IV, the pills did not do much) being on liquids only for months sucks. The whole situation is terrible and feels like it will never end. But I promise you It WILL! I know what you are going through, and I totally feel for you. but you got the stents out, it's all uphill from here . The liquid diet will end . Eventually you'll be able to eat real food. And it will all just be a memory . Focus on the good , I know it's hard. try to feel grateful that you lived! People do die from this. I know how emotional it's makes you , I'm six months out and am still struggling, but I try to hang on to the fact that I am lucky to be alive. I have gone on Wellbutrin , which has somewhat helped. I still break down and cry about sometimes though, just definitely less frequent. I am totally here for you! If you want to private message me i would be more than happy to talk with you and provide as much support as I can. I will say this, I am down almost 100 lbs and am 3 lbs from goal in six months, so you have lots of weight loss to look forward to! I have gained almost all my strength back now and can eat anything I want, just small portions. please feel free to message me! You are in my thoughts and prayers! 4 MamaC, AnaBanana, NewSetOfCurves and 1 other reacted to this Share this post Link to post Share on other sites
Sannah 258 Posted February 3, 2013 do they go back in and fix the leak ' date=',, im have the sleeve done feb. 7 next thurs[/quote'] You get stents. I will see if I can attach a photo some how. Share this post Link to post Share on other sites