5 weeks still sick

[msmomrules 2]

Hey all,

Have not posted in a while. I was sleeved 12/21 released from hospital 12/27 and readmitted 12/30- jan 6th. I had massive internal bleeding , pleural effusions, chest tubes, pain etc. since I have been home still dealing with pain from chest tubes , shortness of breath and I am being followed by pulmonology.

My tummy cannot tolerate much at all. No Protein drinks. I have thrown up Water and cannot tolerate more than two spoonfuls of full liquids. My stomach makes loud noises just sipping on Water. When I do eat within 30 min I am in restroom with painful gas, loose stools and I cannot believe how awful it is. I am so weak basically go from couch to restroom to bed.

Big deal I am down 30 lbs but at what cost? Has anyone else had these symptoms? Reading everyone's posts about what they can eat and how great they feel is so upsetting. I am going to speak with surgeon in the am since it is quite late. I am hoping anti nausea med my help or is this a sign of stricture?

I am tired of feeling so sick.

[NORCALRN 60]

I did go through this so i am very sorry to hear that you are suffering. I was getting better but i will likely have to have my feeding tube replaced. the pain, nausea and inability to eat or drink makes me feel terrible. bed-couch-bed. I hear ya! I suggest you go to the emergency dept in case you have a leak, infection, etc. I am not having an infectious process - just poor nutrition so my weight stalls super easy. i am 5"5 started at 205.5 surgery day and weigh in at 152ish. goal is 140. more important is that we get our nutrition. please go take care of yourself. the sooner the better. BTW, i still cannot drink Water - makes me feel sick. good luck --keep us posted plz.

[msmomrules 2]

I ended up going in for IV fluids and having a ct with contrast. It shows there is still some old blood in my abdomen. It is being absorbed but slowly. My lung problems are better and now I have zoo ran for nausea.

I am trying to keep a better perspective but as you know, it sucks to feel sick.

That being said, my thoughts and prayers are with you as you are certainly going through it. How are you getting nutrition? Water?

I hear you when you said it is hard to advocate for ourselves . I am a nurse too.

Please update when you can.

[NORCALRN 60]

I feel so much empathy for you. I know the feeling...bed, bathroom, couch, etc. It does get better. I kept being told to look back t where i was a few days ago, afew weeks ago, etc and it is only then i can see my progress. I am a bit afraid of going back in next monday for the J tube again even though it should just be for 2 nights.. not sure if i will have to have a stoma this time but last one i did not. this one will have a balloon(no falling out this time) - i think it is a MIc Key by Kimberly Clark. not 100% sure but it is a low profile which is nice. anyway, keep in mind there will be a time when you can look back and see your progress nutritionally, physically and then weight wise. I have that horrid NJ tube - on Peptide I send 1.5 for 14 hours/day. which is hard to reach and it is about 1400 kcal!! too much but i need my carotene to bump up from "3" to the twenties and increase my Protein so i can have the surgery.you hugs cuz i know know it is rough but you are awesome and you must remember that.. Another thing, this has made me a better nurse that is for sure!

Trish

[albertagirl1002 3]

OMG!!!! that is terrible....what Dr. did you have the surgery done by?