8 Weeks Of This Leak And I'm About To Go Crazy.need Help From Other Leaders !

[stephwb 1]

I had my surgery on July 10th and discovered I had a leak on July 15th was rushed to the ER . I was then put in ICU for 5 days cuz I was septic. I spent the next 4 weeks in the hospitAL on TPN saline and 4 antibiotic and 2 drains. I got to start drinking and they next day try some yogurt everything was staying out of the drain .so I was allowed to go home on a Monday and did great till Thursday when I was drinking purple Protein and my drain turned purple. Got in to see the doctor on Friday did a leak test and I watched it myself leak. I was then admitted for 2 more weeks and still leaked so I was sent home with pic lines and home healthcare . I am having such a problem with allergy drainage and horrible dry mouth and nothing works. Everyone I have seen healed In 4 weeks or so but I am double . It got so bad this weekend I started snicking ice and sucking on it . Can anyone give me advice that has been through this, I have 4 kids to take care of and my poor husband and family are wore out.

[Ready4success 380]

I don't have any advice, but my heart goes out to you and your family. I hope you get well soon. ((Hugs))

[SleeveandRNYchica 1,155]

I don't have any advice, but my heart goes out to you and your family. I hope you get well soon. ((Hugs))

Me too!

[ISleevedIt 380]

So sorry to hear about your leakage. I wish you and your family all the best and hope you heal soon.

[mommeof3 58]

I am really praying hard for you as i don't know what to tell you. I have 3 children and have not had my surgery yet. Stuff like this really scares me. I am praying that my surgery goes smoothly as we are to 2 parent working household. I will keep you in my prayers. I can't imagine going to the hospital for so long.... Stay strong and don't give up....

[peacequeen 434]

The only thing I can offer is follow your doctors recommendations to a T..no sneaking ice either I know it's very difficult, but you have to tough it out to get well. I am SOOO sorry you are going through this! I was down for 2 months and I have children too. My husband was my saviour..I hope you have alot of support from home..they have it easy compared to what you are going through so don't feel bad for them..take their help.

[Ljp 157]

Very sorry to hear this & will be praying for healing in the Name of Jesus!

[stephwb 1]

I have stuck with it to a T for

8 weeks but when ur mouth gets so dry u throw up but one piece of Ice keep u from it. I told my doctor about it too. And he said won't tell me to do it or not to do it ! I appreciate all the prayers and well wishes but please don't down me for some ice. I really am looking for some advice from anyone who had been through this or know some one who has . I may start looking for a second opinion from another doctor soon.

[peacequeen 434]

I'm sorry,,I wasn't downing you. I did have a leak as well,,I was just trying to encourage you..sorry it didn't come off the way I meant it. You just said you were sneaking ice,,if your doctor says it's ok,,then by all means whatever makes you comfortable and is ok for you to do. I know how important it was to not have a single drop in my stomach while healing. I too was on tpn with a pic line and antiobiotics,,home healthcare..the whole bit so I do know what you are going through.

[lessofmeismore 1,405]

Peacequeen, you are always so helpful and sweet. Your posts are always caring. I'm glad you are doing better from your leak.

[gettingmyhealthback 1]

I had a sleeve done in December and was in the hospital till March. I had a leak, I was septic, I had chest tubes, I had strep on my spleen , got C-Diff due to my antibiotics, I had it all. First of all, I can't give you medical advice, only your doctor can do that, I can only tell you what they did for me. They put a stent in via an endoscopy to cover the leak. That one slipped, and they put in a second one on top of the first one. I was exteremely nasueous, but eventually it did heal. I was not able to do anything by mouth until they knew the leak was healed and they verified that by a CAT scan. I sucked on sponge sticks dipped in iceand cold Water. It did suck. It was the worst time of my life. I went home on TPN and by then was allowed very small amounts of liquid and BOOST Protein Drink. My progression of my diet was very slow I was on Clear Liquids for a month even after the leak was healed. Then I progressed very slowly to a blended diet, and eventually to a soft diet.I did not get to a general diet until almost June. I am praying for you, but I am here to tell you that you will get through this and it will be OK in the end. I have lost 90 poundso far and have some residual pain in my left lung and lower abdomen that I probably will live with for the rest of my life. However, I can walk without being out of breath, I feel much better and I am getting healthier every day. I am confused as to why you are out of the hospital if you still have an active leak, but that's again up to your doctor. I would like to tell you that in spite of evrything I've been through I would do it again, it was worth it, in spite of the complications, since I think I will live longer and have a better quality of life. If you do not feel you are getting the care that you need, then consider a second opinion. Find a bariatric center of excellence and go have your case reviewed. It's a long road ahead, but you will make it. I have you in my thoughts and prayers. Ask me any other questions that you have.

[Justine13 264]

Ohhh so sorry you're dealin wih this. I haven't had surgery yet but I do have experience with such complications from removing my gall bladder. Leaks- stents- MRSA- pancreatitis and a very long time in the hospital so I do feel for you. I'm familiar with having home health and pic lines etc and that was the pits!!!

A second opinion isn't a bad idea if you honestly think your doc isn't competent enough. I feel, though, that this probabaly isn't the case and surely s/he must be consulting with others too? I would ask if you haven't already.

It does seem long for you to be dealing with this. I'm sorry f this is a dumb question but did they go in and re staple/suture at all or are they addressing it by hoping it heals? Just wondering and if not- why would they not try that? Maybe they did.

You will get better- what have they told you lately as prognosis and treatment planning?

[Pparrisss 46]

May God send you the strength and healing u need love .

Cheers

Parris

[gettingmyhealthback 1]

@Justine13: The stomach is a very friable tissue, so they cannot go back in and re staple or resuture. I found that out through my experience. It has to heal on its own. It's unfortunate but true...