Cushing's Disease

SomethingClever · June 26, 2011

This year I was diagnosed and treated (with surgery) for Cushing's Disease. I don't yet know for certain if I am in remission, but I am hopeful. Cushing's, for those of you that don't know, causes among other things weight gain. My BMI is now 57 thanks in part to Cushing's.

My question for anyone that knows -- would a surgeon even be willing to take me on as a patient? I am very slowly losing weight right now after my pituitary surgery, but my weight is so high that I really need to get as much help in getting the weight off as possible. A BMI of 57 is obviously very dangerous.

Anyone know? I don't want to waste much time persuing WLS if it isn't even a possibility for me.

Thanks in advance!

TijuanaPlication · June 26, 2011

Hi, I've heard of people with BMIs of 70 getting the Duodenal Switch. DS is a VSG plus intestinal re-routing. You can talk to some ex-high BMI patients here http://www.obesityhelp.com/forums/ds/a,messageboard/board_id,5357/

The intestinal part of the DS causes malabsorption, which helps with weight loss (80% of the fat you consume and 50% of the Protein is malabsorbed), but you you have to be very diligent getting in Protein and taking Vitamins.

Nancy Rivers · June 26, 2011

The only way to know for sure if a surgeon would be willing to take you on is to talk to them. Go to an informational seminar and ask - it won't cost you anything but a bit of your time. Good luck.