Newbie, recently de-banded

[Believer 0]

Hi Maygetbanded.

Thanks for the suggestion, You have a good point and I believe it is valid. The problem is that I am in a 12 month trial program to take the Chemotherapy to see if it is helpful to other people with fatal systemic scleroderma. If I bail out 3 months before it is over the world will not have the valuable input needed to complete this trial and see if anything I have done can help others... Diane

[maygetbanded 0]

Hello Diane,

So let me get this straight: you are willing to use your body as a guinea pig just so "the world (can) have the valuable input needed to complete this trial"? I'm not sure if you'e being noble, silly (sorry) or just plain bullied by doctors into this so-called trial. Its a no-brainer: take away the allergen (metal, in this case), and the sclerdoma goes away. Don't need to wreck your body even more with chemo that will only adress the symptoms you're experiencing, without getting to the root of your problem (i.e. the METAL). Please do what's best for yourself. YOU'RE too valuable to be trivialized and mistreated. Get the metal out, my dear.

[Believer 0]

Hi Newbie,

I understand and agree to your point to some extent. I need more time to explain and I am in Portland with family... I will write back in a day or two...

Thanks for responding to me.

Diane