Pituitary tumor

[paula 4]

Hey Crys., Ive been out-of-pocket for a while. So Im just now catching up on threads....

any more news on your PT?

how are youi doing (in general) these days?

...and your mom, how is she?

[vinesqueen 2]

no, no news yet. I have been concentrating on my mother for the last month or so.

Physically she's doing really well, her surgeon is pleased with her progress. Mentally she's still a head-case. But she's been a head case all my life.

Since she's on here way to being better, now it's time to concentrate on me. I have a new PCP and am using a new health clinic, and they are taking me seriously.

[Anwyn 0]

Vines, I'm so glad your Mother is doing better. Time to concentrate on yourself now. What is your next step at the new clinic? (((HUGS)))

[vinesqueen 2]

Well, the current step is to try to get these headaches under control. I did accupunture last week, but the head aches are no better, but my energy level is higher.

[vinesqueen 2]

Well, the weirdness that is me, continues.

I"ve lost 15 pound in the last two weeks. I'd like to take some of the credit, but my tumor shut off last week, rather spectacularly I might add. When Pitunia shuts down, she stops secreting cortisol. This causes a lot of other symptoms, and sudden weight loss is one of the things.

And my mother is really miffed that she didn't die... Some much for the weirdness that is my mother.

[gadgetlady 4]

Vines, I missed this thread until just now. You and your mother will be in my prayers.

[the best me 6]

I"ve lost 15 pound in the last two weeks.

I sat at my 'puter and read that...partly shocked, happy, relieved, and amused. I just had to chuckle! GREAT!!!!!!!! So, I'll just sit back and enjoy the ride...wait for more updates, and keep you in my prayers. :biggrin1:

[Victoriana 10]

Dear Vines, It looks like the only thing consistent with Pitunia, is inconsistency! I have had to chuckle that out of the blue, you were surprised with such a nice weight loss, Doesn't that still count as an NSV, even though its on the scale? or would that be a SV? We wouldn't want to much consistency now would we? Bless you Moms turn for the better even if she is miffed, She is probably dealing with things out of shock. Will see you soon!!

[vinesqueen 2]

It's funny, and like Kathy, I'm just amused at the sudden drop in weight. I dropped another 2 pounds in the last 24 hours. At this point, all I can do is laugh. That and track my symptoms.

My DH was worried when he found out that I'm weighing myself everyday again. He was worried that I'd returned to my obsessing about every thing that had to do with eating or drinking. That there had to be a physical reason that I couldn' lose weight on 700 calories, that I was gaining weight on 1000 calories. But I'm at a place where I know that I have absolutely no control overy my weight. None whatsoever.

I wonder if I've already counted that as an NSV, being out of control. Because, you are right. In a weird way, that is an NSV for me.

I know that right now my tumor has shut off. Very dramatically, I know that it's shut off. So, I just have to keep things in perspective when it turns back on, and I gain 25 pounds in a month. Again.

[live2canoe 1]

Ahh Vines - I am truly hopeful that by the time Pitunia decides to turn back on, it will be too late! She will already have been removed to a jar filled with formaldehyde and be sitting on your desk where you can jeer at her whenver you want.

Please keep us all posted!

[CCBSTX 0]

Vines, I watched a show on The Learning Channel (TLC) last night. It was call "Mystery Diagnosis." It's real cases in which doctors are stumped at first.

This particular episode was of a flight attendant...formally a size 2 that gained 50 pounds in 2 months and more after that. She went to every doctor imaginable. After 7 years of undiagnosed symptoms, she got ahold of her hospital records and did some research of her own. She noticed that her Cortisol levels were in the 190's (extremely high). Anyway, she ended up diagnosising herself on the internet, then hooked up with a UCLA-Medical Center endoctrinologist (sp?). Of course, you know what she had...Cushings! She ended up having surgery for the tumor on her pituatary gland via her nose. She lost all of her symptoms, lost 50 pounds with more to go, and started a support group for Cushing patients.

Very interesting topic. I hope you get whatever treatment that you need. Also, it's good petunia has given your a break, even temporary!

Shawn

[Alexandra 55]

Vines, your spirit and attitude are so refreshing and inspirational, I wanna hug you. :hug: You are a winner in every way, and today I feel better because of you. Thank you.