My experience is valid!

[Baba Wawa 543]

I've tried to tell my story here and been shot down over and over...I'm done. I suffer every hour with the damage done to me by this band. I swallow, it comes up, over and over again. I'm losing, but there's no celebration. I hurt, but there's no supportive words to help me cope. My voice doesn't matter. I've never met a more unsympathetic or insensitive group of people. I hope you never feel like I do right now, cause some of you will.

Have a good life.

[Banjo257 920]

Good luck and good health to you. Yup, you have written somethings that came off harsh, but your opinion should have been just as valid and respected as others that are candid and don't coddle, who also come off hatsh.

I think LBT missed the boat on no cyber bullying.

[m1aman 944]

Good luck and good health to you. Yup, you have written somethings that came off harsh, but your opinion should have been just as valid and respected as others that are candid and don't coddle, who also come off hatsh.

I think LBT missed the boat on no cyber bullying.

Funny you mention cyber bullying. If you only knew the what this person has pulled behind the scenes on here and Amazon. And I am sure what I know about is just the tip of the iceberg.

[this sucks 557]

I've tried to tell my story here and been shot down over and over...I'm done. I suffer every hour with the damage done to me by this band. I swallow, it comes up, over and over again. I'm losing, but there's no celebration. I hurt, but there's no supportive words to help me cope. My voice doesn't matter. I've never met a more unsympathetic or insensitive group of people. I hope you never feel like I do right now, cause some of you will.

Have a good life.

I've tried to tell my story here and been shot down over and over...I'm done. I suffer every hour with the damage done to me by this band. I swallow, it comes up, over and over again. I'm losing, but there's no celebration. I hurt, but there's no supportive words to help me cope. My voice doesn't matter. I've never met a more unsympathetic or insensitive group of people. I hope you never feel like I do right now, cause some of you will.

Have a good life.

I'm so sad to hear that you've given up...my heart goes out to you and the complications that you are dealing with as a result of your band. I would love to keep in touch with you, if you are interested. Just PM me.

[Baba Wawa 543]

Funny you mention cyber bullying. If you only knew the what this person has pulled behind the scenes on here and Amazon. And I am sure what I know about is just the tip of the iceberg.

Perhaps you're acquainted with Dr Rachel Dees?

[labwalker 1,177]

I wonder about the surgeon, and if you were qualified to have the surgery to begin with. Sorry, but blaming the band seems a bit lame. There are too many unanswered questions here.

[fingers crossed 2]

I have heard good and bad things about the band and I'm guessing its like winning the lotto there's a chance things will work out good an a chance they won't. Sorry to hear ur in pain one of my friends was telling me her friend had the same problem as u. Nothing worse than pain an frustration

[Sojourner 2,446]

I've tried to tell my story here and been shot down over and over...I'm done. I suffer every hour with the damage done to me by this band. I swallow, it comes up, over and over again. I'm losing, but there's no celebration. I hurt, but there's no supportive words to help me cope. My voice doesn't matter. I've never met a more unsympathetic or insensitive group of people. I hope you never feel like I do right now, cause some of you will.

Have a good life.

I'm certain that your experiences are valid...your perceptions are your reality. We are each individuals, and no two of us will have identical experiences. I am sorry that you are experiencing complications with your band. But we do owe it to ourselves to understand the complications, and be proactive to decide on a solution path to resolve the problems.

I am currently experiencing band related complications. I understand the etiology of them, and am doing my best to manage my situation.

I question why it is that you feel that there is so much negativity with your posts. Perhaps it may be that there is a perception that your intent is to post negative comments instead of offering support, encouragement, and sharing with others your journey to resolve the band related issues you are currently experiencing.

I may loose my band, and if I do, it will be a sad day, but at least I would have attempted to do everything within my power to avoid having it removed. Despite my similar situation, I am not actively "bashing the band" at every opportunity, and perhaps scaring other "newbies" who hopefully would not have my similar experiences.

Perceptions of your posts may be quite different if along with your complications you posted about how you are actively looking for a solution path.

IMHO, we are much healthier emotionally when we empower ourselves to seek solutions instead of wallowing in our problems. And then scaring others by writing about complications which they hopefully never experience.

Whatever the eventual outcome with your band, best wishes to you.

[Baba Wawa 543]

I'm certain that your experiences are valid...your perceptions are your reality. We are each individuals, and no two of us will have identical experiences. I am sorry that you are experiencing complications with your band. But we do owe it to ourselves to understand the complications, and be proactive to decide on a solution path to resolve the problems.

I am currently experiencing band related complications. I understand the etiology of them, and am doing my best to manage my situation.

I question why it is that you feel that there is so much negativity with your posts. Perhaps it may be that there is a perception that your intent is to post negative comments instead of offering support, encouragement, and sharing with others your journey to resolve the band related issues you are currently experiencing.

I may loose my band, and if I do, it will be a sad day, but at least I would have attempted to do everything within my power to avoid having it removed. Despite my similar situation, I am not actively "bashing the band" at every opportunity, and perhaps scaring other "newbies" who hopefully would not have my similar experiences.

Perceptions of your posts may be quite different if along with your complications you posted about how you are actively looking for a solution path.

IMHO, we are much healthier emotionally when we empower ourselves to seek solutions instead of wallowing in our problems. And then scaring others by writing about complications which they hopefully never experience.

Whatever the eventual outcome with your band, best wishes to you.

I have posted about finding a solution, often. My objective is to encourage those considering a band to ask for a manometry test to screen for a predisposition towards these problems. This seems to be tied into hiatal hernia repair as well, so very relevant to our WLS community. I hope hope you are able to overcome your issues too. I've fought hard to keep my band, but it must come out.

[MiniMi 1,468]

Msmaui, I'm sorry to hear that. It must be a real disappointment for you. Are you going to have a revision?

As for the comment about the lotto...( for the newbies) you have twice as much chance of being struck by lightening than winning the lotto ( big $ I mean)

I believe the chances to live with a successful band story are much greater than that.

Best wishes to you.

[Maddysgram 6,159]

I've read up on your condition,msmaui and I'm very,very sorry for you.

2000 ppl annually get what you have and the reports don't show one thing about those being banded. Also, out of all the reports I read, I did not find one thing about hiatal hernia repair being a cause of it.

Matter of fact, when it came to LBS and esophageal immobility (achalasia), most the time they say either patient already had it, b/c it can take years to develop , or patient compliance with the LB ( not my words,theirs).

So to bash LBS or call for expensive test b/c of a less than 1% chance, is like getting rid of every drug on the market b/c of their side effects.

Like I said, I'm sorry you have a problem and I hope its taken care of. But constant LB bashing is just not right. Maybe you can save 1 person this problem, but how many can die an early death from morbid obesity b/c you scared them to DEATH? The odds for that I'm sure are a lot greater.

Get treated. Achalasia can be treated. I'm wondering why your band has not already been removed and you treated?

Your experience is valid, as far as achalasia!

My grandaughter has a G & J tube, nothing to do with LB.

We support what your going through.

[Baba Wawa 543]

I've read up on your condition' date='msmaui and I'm very,very sorry for you.

2000 ppl annually get what you have and the reports don't show one thing about those being banded. Also, out of all the reports I read, I did not find one thing about hiatal hernia repair being a cause of it.

Matter of fact, when it came to LBS and esophageal immobility (achalasia), most the time they say either patient already had it, b/c it can take years to develop , or patient compliance with the LB ( not my words,theirs).

So to bash LBS or call for expensive test b/c of a less than 1% chance, is like getting rid of every drug on the market b/c of their side effects.

Like I said, I'm sorry you have a problem and I hope its taken care of. But constant LB bashing is just not right. Maybe you can save 1 person this problem, but how many can die an early death from morbid obesity b/c you scared them to DEATH? The odds for that I'm sure are a lot greater.

Get treated. Achalasia can be treated. I'm wondering why your band has not already been removed and you treated?

Your experience is valid, as far as achalasia!

My grandaughter has a G & J tube, nothing to do with LB.

We support what your going through.[/quote']

Thank you and I understand what you are saying. The difference is that I didn't have any symptoms or signs of this preop. My GI doctor believes this is caused by my band. My band doctor is seeing it in the last couple of years at an increasing rate. The hiatal hernia repair is relevant, since there is a wrap placed at the lower esophageal junction where the now malfunctioning sphincter is located. I didn't say the hiatal hernia repair caused it, but that there are various HH repair techniques that are specific to those with a predisposition to achalasia. I am going to be treated by one of the best esophageal specialists in the country, my appointment is Thursday. It's taken months to arrive at a dx. As you're familiar with the slow turning of the wheels of medicine, it takes time to be tested, tests to be evaluated. I've read the early reports of band associated pseudo achalasia, saying that noncompliance was the cause. This was an assumption, as my doctor put it. Since more cases are cropping up in patients considered to be compliant, the opinion is changing. How does a disease process that takes decades, manifest as end stage in a few months? BTW, I'm not bashing the band...I'm trying to create awareness that more testing before banding or HH repair is needed to avoid this type of complication. All of my medical team is on board with this assessment...thus I have posted the information so that others can benefit.

Thanks again for your kind words.

[JACKIEO85 308]

MsMaui : I am TRULY Sorry your going through such Pain with your lap Band,

I have to agree about postings made to be informational, BUT instead ,are attacked as "bashing" If you presented here and said Don't get a Band!! you will have These complications..to me that is bashing..but again this is a public forum and you have that right, either way. I also find it amusing that support only comes in Cliques. If these "support groups" were truly for support/information then one would think that the "powers that be" would also post ALL new and relevant information regarding the WLS' on this site,not just the things that have a positive spin..But Why bite the hand that feeds you!

Only TIME will give us the answers...I PRAY you find positive ones soon!!!

~~~~~~~~~REMEMBER KARMA IS A GOOD THING~~~~~~~

[27852413 12]

Ms Maui, hope you start feeling better soon! You post in the correct section: complications, so I don't understand why you get bashed so much.

It's not like you are posting in the pre-op section!

Continue to update us.

And no, I am not Ms Maui!

[lellow 1,713]

MsMaui you and I had a small run-in on a thread and you PMed me when I explained why I thought you had been negative. You were lovely and I really appreciated you clearing the air, so I feel like I know some of your motivations at least, and I do believe that they stem from frustration more than anything.

But from what I have seen here on LBT I can understand why your posts sometimes gets people's nose out of joint because there have been some that were fairly alarmist for what is in fact a rare condition, or about the inferiority of the band instead of your personal experiences. I think that for anyone who has put their faith in the band (and you need faith to succeed), or had success with the band, this makes them feel like you're insulting them, and their choices. It also makes them feel like you're saying they're stupid for their choice.

I am not saying you're actually saying that, but it can be how it comes across. I wouldn't wish what you're going through on my worst enemy and if I were you, I'd be damned angry and hell yes I would blame the band and want to shout from the rooftops so people know what might happen to them. But constant and repetitive posting of stats and opinion pieces on band failure and the band's inferiority *will* make it look like you're band bashing (see paragraph 2 above). You may not be able to see it, but I'm not part of any clique that I know of, and I see it. I have reacted to it, despite my usually cool exterior, so I'm telling you that's how it comes across.

I would love to support you through your complications, and hold your hand (virtually) when things get hard or you get down. Other have done that for me and more. I too got some interesting responses that weren't always what I considered supportive (and funnily enough these were more 'why are you not just revising to a sleeve?') but if you're really looking for support, you tell your story, you invite people into your life and empathy will follow.

Huge hugs, hunny.