AutoImmune Diseases & Swelling

[tym4me 206]

Hi gang. So i was banded 10/07/11 and have had slow an steady weight loss.

I also have had Fibromyalgia since 2003 (28yo) an recently have been diagnosed with Secondary Raynaud's and Lupus.

I have noticed that as of lately when I am in a flare up my band is Super tight! Does anyone with autoimmune disorders experience this to? And how do you deal with it?

Mis73 I know you deal with something too (not trying to call you out) do you have any tips?

Right now its even tough getting down my meds. I also am going with warm liquids tea, chicken broth and such.

Thanks guys!!

[DELETE THIS ACCOUNT! 12,703]

Hello and yes I do, and I don't mind being called out

I have Multiple Sclerosis which is also an autoimmune disease. I was also diagnosed with Fibromyalgia years before the MS diagnosis, but I honestly think it was just MS all along.

I actually just came out of a flare a couple weeks ago. I have symptoms all the time, but when when I'm in an exacerbation it all gets a lot worse. I had about 2 weeks where my band did feel tighter than usual and I had zero appetite. I found during that time, I drank Protein shakes a couple times a day to keep my nourishment up. Normally I'd never advise someone to do that, but when you have a medical condition that's temporarily making it rough to eat, you do what you need to do to get through the rough patch.

This is actually partially why I don't do the whole high Protein diet. I try to keep my diet as anti-inflammatory as possible because it does lessen the effects of autoimmune disease. If you're curious, here's a basic anti-inflammatory food pyramid. http://www.drweil.com/drw/u/ART02995/Dr-Weil-Anti-Inflammatory-Food-Pyramid.html

If you're having problems taking your meds, see if your pharmacist can give you a liquid version of it temporarily. Or, if it's safe to crush or cut them. Your meds are really important right now.

Hang in there, I know how bad it sucks. Just rest and do whatever is necessary to get through this flare.

[tym4me 206]

Thanks Missy. I was hoping you'd see this post. I too believe that my condition has always been the Lupus but until there was concrete evidence the Dr. just went with Fibro, too.

I deffinitely appreciate the link to the anti-inflamatory food pyramid.

I also had sent hubby to see if there were alternative ways to take my meds.

Sorry to hear you just had a flare up. An YES they really do suck.

Thanks

[DELETE THIS ACCOUNT! 12,703]

Thanks Missy. I was hoping you'd see this post. I too believe that my condition has always been the Lupus but until there was concrete evidence the Dr. just went with Fibro, too.

I deffinitely appreciate the link to the anti-inflamatory food pyramid.

I also had sent hubby to see if there were alternative ways to take my meds.

Sorry to hear you just had a flare up. An YES they really do suck.

Thanks

I suspect in your case it was Lupus all along, too. Fibro is a "syndrome" and a syndrome by definition means "unknown". Essentially, when doctors can't find a firm diagnosis for deep tissue pain, they slap a Fibro diagnosis on it. Then, in cases like yours and mine, the true diagnosis finally emerges and it's like "Ohhhh so that's what was wrong all along!"

Just remember, get your rest. sleep is truly your best friend when trying to get past a flare.

Btw, it sounds like your hubby is a keeper. I'm glad you have him

[tym4me 206]

yah hubby is great.

sleeping is all i can just about handle right now. And that is sometimes work. Lol

Here's to getting through another flare

[sam3841 57]

Hey! I found I had lupus when I had to see my dermatologist's nurse bc he was too busy and she thought the rash on my face wasn't just a rash but checked for lupus. I was lucky, though cause my mom has lupus and got to learn a lot from her. I agree sleep should be your best friend and stay out of the sun, but I have a lot of the skin issues. I also use that emerg-c for immune support 2x a day during a flare up. They make 5 calorie ones. My dr says any purple or orange veggies are good. Also I know this sounds weird but I have found I have less flare ups if I workout more.