Should I Be Concerned?

[Drasan 23]

Do any of you experience this?

I'm 28 months out from surgery. I'm experiencing a grabbing cramp in the area between my port and the band. This seems to happen especially when I bend forward at the waist. I literally have to massage this area of my stomach to get the grabbing cramp to relax so that I can stand straight again. This started happening occasionally after the first year. I told my surgeon about it during a routine check. He didn't think it was anything to be concerned about.

Now it is happening regularly, many times a day. Oh and my surgeon left his practice. A new doctor can't see me until September, 2 months away.

Any thoughts or advise will be appreciated.

Thanks!

[Drasan 23]

I'm really hoping to hear from somebody. Is it possible for the tubing from the port to the band to get twisted? I'm not sure what's going on, but it doesn't feel right.

Any thoughts please.

[DizzyLizzy 21]

I've heard of them getting flipped. But I also wonder, I know since I've lost weight my skin has shifted from my port. Like my scar where hey put the port is is down way lower from where the port actually is because I have some loose skin. So I wonder if they didn't get your port deep enough in your tissue that it's moved as your muscles, skin, etc changed and it's pulling the line?

I know I would be a little tender around my port area after doing crunches and stuff. Ask your doctor to check it.

[vlp1968 83]

Call your dr. office and tell them it seems like an emergency. Ask to explain the situation to one of the nurses and they may be able to get you in. That's what I've done when I needed an unfill. Good luck and feel better soon!

[honk 780]

My port was pretty deep at surgery. I've lost 70 pounds and my port does not stick out. I have notice however more muscle pulling at the port. Esp. When I go for long walks.

[Drasan 23]

DizzyLizzy, VIP, Honk, thanks for the replies! It makes sense that muscle or tissue could attach to the port or the tube and then pull on it. I sure hope this doesn't mean more surgery. That would be awful. I found the first surgery much more painful than anticipated.

The kink, pulling tug, cramp (sort of) is happening more and more frequently. It certainly doesn't feel right. I have to stretch and massage the area to make it feel like it's getting unkinked or untwisted.

Unfortunately my doctor recently left his practice.

The new surgeon group I want to see doesn't have an appointment open until September, even after I explained my situation to the appointment clerk. She told me the only way I could be seen is to go to the emergency room. Really?

Is this really an emergency room issue?