Jump to content
×
Are you looking for the BariatricPal Store? Go now!

Recommended Posts

Several folks have asked me about Cushing's, so here is some basic information about it. I've been diagnosed for just over a month now, and I'm still learning about it. The following is information that I've cut and pasted, so the links will take you to the source I pulled them from. Something like 90% of Cushings is caused by a tumor on the pituitary gland in the brain, with something like 8% caused by tumors on the adreanal glands (near the kidneys), the final 2% is caused by a tumor somewhere else, such as the lungs, or it is caused from being on long term steoroids, such as Prednisone.

Right now, the fatigue is opressive.

Cushing's Syndrom http://www.niddk.nih.gov/health/endo...s/cushings.htm

Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of the hormone cortisol. Sometimes called "hypercortisolism," it is relatively rare and most commonly affects adults aged 20 to 50. An estimated 10 to 15 of every million people are affected each year.

... Treatment depends on the specific reason for cortisol excess and may include surgery, radiation, chemotherapy or the use of cortisol-inhibiting drugs. If the cause is long-term use of glucocorticoid hormones to treat another disorder, the doctor will gradually reduce the dosage to the lowest dose adequate for control of that disorder. Once control is established, the daily dose of glucocorticoid hormones may be doubled and given on alternate days to lessen side effects.

(this site has some good information, I especially like the symptom list. My DH was quite shocked when he realized that out of something like 43 symptions, I have 33 of the indicators.:faint:)

http://www.wrongdiagnosis.com/c/cushings_syndrome/intro.htm

Share this post


Link to post
Share on other sites

Vines Im so sorry if this is what is going on with your weight loss? maybe now you will get some answer. best of luck to you! your friend JOHNQ

Share this post


Link to post
Share on other sites

Vines,

How was your diagnosis detected? Did they do blood work or run thyroid tests??

Kelli

Share this post


Link to post
Share on other sites

Thanks for sharing that info vinesqueen. I can't imagine how you feel, but I'm sure your in the best of care. Learn as much as you can and ask lots of questions when you see the docs. Of course, you already know this....I'll keep quiet. :kiss Keep your chin up and try to post as often as you can. :hug: You are a very special person and have a lot to offer here and there is so much we can all learn from you.

Share this post


Link to post
Share on other sites

I am so glad you finally have a diagnosis - as happy as you can be being diagnosed with something like this. I just know all the frustration you have been through, all the wondering if it was you and why the band wasnt working for you. You have an answer now and the relief to know that must be immense. You are such a strong person to keep going like you have. I know I would have given up long ago.

Good Luck Vines - you deserve it.

Hugs

Share this post


Link to post
Share on other sites

VQ looks like you are on top of things. I wanted to share some websites with you that you might find helpful. I am sure they will just reiterate what you already know. But any info can be helpful. M

http://csrf.net/index.htm

This is a Cushing's Support and Research Foundation that has some wonderful info and BEFORE and AFTER PHOTOS of folks that have been treated. It will knock you over with a feather to see the changes in these folks.

www.pituitary.org.uk

This is a uk organization but in has good info in the patient leaflet. Do a search for Cushings and it will come up.

www.merck.com

This is the Holy Grail book for healthcare professional students. Section 2 Chapter 7 deals with Pituitary Disorders.

www.Endocrineweb.com

Has a section of Laparoscopic Adrenalectomy. Limited but useful.

Hope this is somewhat useful. M

Share this post


Link to post
Share on other sites

Wow, those pictures are something else!

Hang in there Vines! Looks like there's hope! :confused:

Share this post


Link to post
Share on other sites

Vines,

You are such a sweet lady. Hang in there and I hope everything goes ok for you. Take care.

Share this post


Link to post
Share on other sites

Glad you gave us something to read. I was one of those that needed this info.

Getting this properly treated means that you should lose weight on you own?

Share this post


Link to post
Share on other sites

Hi Vine,

I have a close friend that had Cushings. She had a tumor in the pituitary gland. They surgically removed it and the first surgeons could not get all of it, so she had a second surgery. She is doing well now. I am sorry that this has happened to such a nice person like you.

Hugs,

Babs in TX

Share this post


Link to post
Share on other sites

thanks everyone. I admit to that part of me is releaved to finally have an answer, but I'm terrified by that answer. I don't know if this is the answer. I'm terrified if I have it, and yet I'm terrified if I don't have it.

I can't find the energy to be supportive for hardly anyone here. I'm scared, freaked out and I don't know what else.

Share this post


Link to post
Share on other sites

Wow vines, thanks for this info. I've never known anyone with Cushing's and it's great to have more information on the subject. I hope that once you've had your blood work and find some sort of way to monitor/control it that you'll start losing weight again. *hugs*

Share this post


Link to post
Share on other sites

Big Hugs. That's all I can offer. I hope you get the final word, soon.

Keep Dancing, Vines.

We all love you.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Trending Products

  • Trending Topics

  • Recent Status Updates

    • cryoder22

      Day 1 of pre-op liquid diet (3 weeks) and I'm having a hard time already. I feel hungry and just want to eat. I got the protein and supplements recommend by my program and having a hard time getting 1 down. My doctor / nutritionist has me on the following:
      1 protein shake (bariatric advantage chocolate) with 8 oz of fat free milk 1 snack = 1 unjury protein shake (root beer) 1 protein shake (bariatric advantage orange cream) 1 snack = 1 unjury protein bar 1 protein shake (bariatric advantace orange cream or chocolate) 1 snack = 1 unjury protein soup (chicken) 3 servings of sugar free jello and popsicles throughout the day. 64 oz of water (I have flavor packets). Hot tea and coffee with splenda has been approved as well. Does anyone recommend anything for the next 3 weeks?
      · 1 reply
      1. NickelChip

        All I can tell you is that for me, it got easier after the first week. The hunger pains got less intense and I kind of got used to it and gave up torturing myself by thinking about food. But if you can, get anything tempting out of the house and avoid being around people who are eating. I sent my kids to my parents' house for two weeks so I wouldn't have to prepare meals I couldn't eat. After surgery, the hunger was totally gone.

    • buildabetteranna

      I have my final approval from my insurance, only thing holding up things is one last x-ray needed, which I have scheduled for the fourth of next month, which is my birthday.

      · 0 replies
      1. This update has no replies.
    • BetterLeah

      Woohoo! I have 7 more days till surgery, So far I am already down a total of 20lbs since I started this journey. 
      · 1 reply
      1. NeonRaven8919

        Well done! I'm 9 days away from surgery! Keep us updated!

    • Ladiva04

      Hello,
      I had my surgery on the 25th of June of this year. Starting off at 117 kilos.😒
      · 1 reply
      1. NeonRaven8919

        Congrats on the surgery!

    • Sandra Austin Tx

      I’m 6 days post op as of today. I had the gastric bypass 
      · 0 replies
      1. This update has no replies.
  • Recent Topics

  • Hot Products

  • Sign Up For
    Our Newsletter

    Follow us for the latest news
    and special product offers!
  • Together, we have lost...
      lbs

    PatchAid Vitamin Patches

    ×