The spoon theory

vinesqueen · January 29, 2006

The spoon theory is what one woman came up with to describe what it's like living with Lupis. http://www.butyoudontlooksick.com/2004/11/the_spoon_theory.php I don't have Lupis, but I do have cronic fatague. I sort of thought everyone one felt like this, that they had a limited amount of things they could accomplish in a day. Her theory broght me to tears, I guess mainly because she is telling my story on one level.

Parvathi · January 29, 2006

Thanks for that, Crystal.

My grandmother has lupus .. was just diagnosed year before last. Its hereditary so its something I have worried about more than once. That story definitely has me understanding more what her life must be like ...

the best me · January 29, 2006

Whoa.

Nope, I take my spoons waaaay for granted. I won't anymore. Thanks. :hail:

NJChick · January 29, 2006

What a great story, she sounds like one heck of a lady.

leatha_g · January 29, 2006

Interesting site. Thanks for sharing. I was diagnosed with Lupus at the age of 23. My daughter was 2 yrs old and they basically told me I MIGHT live another 12 years or at the very least, I may end up in a wheelchair. That was 23 yrs ago and the only time I've ever sat in a wheelchair is if they forced me to because of hospital regulations.

I certainly have had many days that I ran out of spoons, however and did have to learn early on that I had to ration mine and that some days just couldn't be spent without lying down and regrouping. Interestingly, however, the more I dwelt on the disease, the more the disease HAD ME. Today, 23 years later, I've learned that I HAVE the disease, the label, the diagnosis, but it has me no longer. Perspective is a powerful thing..

vinesqueen · January 29, 2006

oh exactly Leatha, exactly. I was diagnosed with fybromyalgia, and there are days when I run out of spoons, but I make sure I hold the spoons.

thistle · January 29, 2006

I don't have lupis, but I do have rheumatoid arthritis. I only have so many spoons to spend, too. My husband and child understand, but it's hard to explain to my mom, sister, friends, that I can't keep up because it feels like I'm walking on bone shards in my feet sometimes.

I'm lucky that my husband and daughter understand. I did a lot of walking and standing today and I can feel my feet and knees flaring up. Robert and Emily (husband and daughter) made plans to go to a movie tonight and didn't even think to ask me. Most people would be upset about not being invited. They saw me come home and realized I have no more spoons. Robert told me to relax and enjoy myself--not even fold laundry. Emily told me to take a bath and read a good book.

On the one hand, I'd love to go out with them, but on the other, I am touched that they understand me and my needs so well.

Plus, I've already seen the movie once...

Busy · January 29, 2006

My husband has lupis and MS, the Spoon Theory has help me understand more about how he functions through the day. I appreciate that. Guess maybe I have been taking my "spoons" for granted and did not understand why he did not have as many "spoons" as I. Back on track now, thanks.

PJ