vinesqueen 2 Posted January 29, 2006 The spoon theory is what one woman came up with to describe what it's like living with Lupis. http://www.butyoudontlooksick.com/2004/11/the_spoon_theory.php I don't have Lupis, but I do have cronic fatague. I sort of thought everyone one felt like this, that they had a limited amount of things they could accomplish in a day. Her theory broght me to tears, I guess mainly because she is telling my story on one level. Share this post Link to post Share on other sites
Parvathi 2 Posted January 29, 2006 Thanks for that, Crystal. My grandmother has lupus .. was just diagnosed year before last. Its hereditary so its something I have worried about more than once. That story definitely has me understanding more what her life must be like ... Share this post Link to post Share on other sites
the best me 6 Posted January 29, 2006 Whoa. Nope, I take my spoons waaaay for granted. I won't anymore. Thanks. :hail: Share this post Link to post Share on other sites
NJChick 3 Posted January 29, 2006 What a great story, she sounds like one heck of a lady. Share this post Link to post Share on other sites
leatha_g 4 Posted January 29, 2006 Interesting site. Thanks for sharing. I was diagnosed with Lupus at the age of 23. My daughter was 2 yrs old and they basically told me I MIGHT live another 12 years or at the very least, I may end up in a wheelchair. That was 23 yrs ago and the only time I've ever sat in a wheelchair is if they forced me to because of hospital regulations. I certainly have had many days that I ran out of spoons, however and did have to learn early on that I had to ration mine and that some days just couldn't be spent without lying down and regrouping. Interestingly, however, the more I dwelt on the disease, the more the disease HAD ME. Today, 23 years later, I've learned that I HAVE the disease, the label, the diagnosis, but it has me no longer. Perspective is a powerful thing.. Share this post Link to post Share on other sites
vinesqueen 2 Posted January 29, 2006 oh exactly Leatha, exactly. I was diagnosed with fybromyalgia, and there are days when I run out of spoons, but I make sure I hold the spoons. Share this post Link to post Share on other sites
thistle 0 Posted January 29, 2006 I don't have lupis, but I do have rheumatoid arthritis. I only have so many spoons to spend, too. My husband and child understand, but it's hard to explain to my mom, sister, friends, that I can't keep up because it feels like I'm walking on bone shards in my feet sometimes. I'm lucky that my husband and daughter understand. I did a lot of walking and standing today and I can feel my feet and knees flaring up. Robert and Emily (husband and daughter) made plans to go to a movie tonight and didn't even think to ask me. Most people would be upset about not being invited. They saw me come home and realized I have no more spoons. Robert told me to relax and enjoy myself--not even fold laundry. Emily told me to take a bath and read a good book. On the one hand, I'd love to go out with them, but on the other, I am touched that they understand me and my needs so well. Plus, I've already seen the movie once... Share this post Link to post Share on other sites
Busy 0 Posted January 29, 2006 My husband has lupis and MS, the Spoon Theory has help me understand more about how he functions through the day. I appreciate that. Guess maybe I have been taking my "spoons" for granted and did not understand why he did not have as many "spoons" as I. Back on track now, thanks. PJ Share this post Link to post Share on other sites
