Jachut 487 Posted December 23, 2005 My sister is hypothyroid, she only found out recently. She was always the most petite thing, she has a stomach like a washboard, not a gram of fat on her. She lived on virtually no food, she just never had an appetite, she'd skip Breakfast and lunch, and eat literally 3 peas and half a loin chop for dinner. When she began treatment, her appetite suddenly appeared and she gained 7kg. She had to work looooooong and hard and even started running half marathons to lose that weight, where she'd never had any trouble staying very thin before, now here metabolism and consequently her appetite are regulated, she has to watch it like most of us now. You never know how its going to affect you I guess but I really hope it works for you Vines, you deserve it. Share this post Link to post Share on other sites
ConnieA0278 0 Posted December 23, 2005 I've been taking Synthroid for years and never felt that it did any good so I decided to take myself off of them w/o dr. permission.....about 2 months after not taking them I completely lost my voice for about 6 weeks. When I finally went to the dr. I thought he was going to kill me. You may not think that thyroid meds are a magic pill (I don't) but not taking them put me at extreme risk and caused all kinds of side effects that I never knew about. Make sure that your dr. is giving you the full thyroid test. There are two level and some docs don't routinely do the more comprehensive test. All they did was a blood test. normal level is 0.350 ---5.500 in April mine was 2.889 Yesterday mine is 11.366 if this helps anyone out. Share this post Link to post Share on other sites
It's me-Debbydo 0 Posted December 23, 2005 Vines, Hi I have been on Synthroid for almost my whole life, not that I am an expert but an MD who soes a two week rotation in endocrinology isnt either. Thyroid levels are very sutle and can mean very different things to different people. My rambling point - a specialist can and will take the time over time to regulate you properly for you. The generic for Synthroid is not a true generic formulation. People and MD's stay brand loyal to Synthroid for some reason. I have hachimoto's disease (hypothyroidism). I definitely spelled that one wrong. God luck to you with this - hopefully our thyroid holds to golden key to your wl journey. Hugs, Debby Share this post Link to post Share on other sites
liberty2003 0 Posted December 24, 2005 Hey Vines! :Bunny I have HYPO thryroidism, I started synthroid on 4/28/2005 Within 2 months i was totally back to normal (thyroid levels) However this pass test (dec 10th) it came back HIGH again:confused: ..So now they have increased my medicine, I was loosing Slowly BUT i was loosing..Last month (Nov i only lost 2 lbs) They sd its because my thyroid was out of control again..Now hopefully i will loose more.. I am down a total of 55lbs..some months i loose 5-10 others and some i don't. I am hoping once they get me regular again i will loose steadly again.. Kristen Share this post Link to post Share on other sites
Kryssa 1 Posted December 27, 2005 I'm marginally happier but I can still eat and eat and eat if I don't watch myself. Time for another fill! Share this post Link to post Share on other sites
vinesqueen 2 Posted December 28, 2005 Well, tomorrow I go to the docs and get either some more answers or more questions. The results of the blood work should be back. I feel weirdly at peace. Share this post Link to post Share on other sites
Jachut 487 Posted December 28, 2005 You're a bloody marvel Vines, to still be hanging in there after all this time. I really really hope you get your answers. Share this post Link to post Share on other sites
the best me 6 Posted December 28, 2005 Can't wait for the update Vines. I have been anxious for you for weeks now...waiting patiently!!! Share this post Link to post Share on other sites
live2canoe 1 Posted December 28, 2005 Hell with being patient!! I hate being patient. Vines better get her little butt back on this board the very minute she comes home from the doctor and let us know what's going on!! :-) We're with you Vines - all the way! Share this post Link to post Share on other sites
vinesqueen 2 Posted December 29, 2005 Okay, I've been home for just a few, my DH is out geting my prescritpion filled. SIGH my test results came back spot on normal. My thyroid is smack dab in the middle of normal range. My other test results came back as well. The doctor has no clue why i'm not losing weight. He's baffled. I'm baffled. The next step is to get a referal to see an endocrenologist. I got an unfill last week, so Im back to about 1000 to 1200 calories aday. He really hopes that I don't gain weight on that amount of calories. I really thought I would get some answers, but I didn't. I don't even know if I have a different set of quesstions. But the best news is that I've stopped obsessing about food. Whats' the point anyway? Share this post Link to post Share on other sites
gentlespirit 1 Posted December 29, 2005 Did your doc do just the TSH (thyroid stimulating hormone) or the T3 and T4 (deeper level testing)? My aunt is a nurse practitioner and said that the THS can be within normal range but when you get the more definitive tests they can show abnormalities. I'm glad you're going to an endocrinologist...they're the specialists that deal with this all the time. Maybe ask him about the more definitive tests?? I think about you often and every time hope that you can get some answers and start losing again. Emily Share this post Link to post Share on other sites
donali 57 Posted December 29, 2005 I thought this article was very interesting. Perhaps the synthroid isn't working properly because your T3 levels aren't being addressed? http://www.worldwidehealthcenter.net/articles-159.html I took my temp this morning before getting out of bed as instructed, and it was 97.6. He says a good indicator of low thyroid is that first morning temp, and if it's below 97.8 it's likely your thyroid is low... Per the article, some of the most common symptoms caused by hypothyroidism include poor concentration, mental confusion, memory disturbances, cold hands and feet, overweight, difficult weight loss, menstrual problems, dry skin, thin hair, and low energy levels. Other symptoms include Migraine headaches, hypertension, depression, hypoglycemia, atherosclerosis, diabetes, infertility, and even acne. In his book, Hypothyroidism: The Unsuspected Illness, Dr. Barnes described over 47 symptoms that may be related to poor thyroid function. I have a lot of the symptoms mentioned above, like dry/rough skin, fatigue, poor concentration, mental confusion, memory disturbances, overweight, difficult weight loss, thin hair, low energy levels, depression, hypoglycemia... I think I'm going to try some thyroid med myself. My blood tests have always come out "normal" - I have no idea if that was low normal, and I'm sure they didn't do any of the more extensive testing. Share this post Link to post Share on other sites
vinesqueen 2 Posted December 29, 2005 They did the full battery of thyroid tests, and they all came back spot-on. But because I have most of the symptoms of low thyroid, he put me on the meds. He was just a baffled as I am. So, I'll call and make an appointment with the endocrinologist. I just need to check my clinic to see if they have a specific one they want me to see. Apperently most Endos only deal with diabetics, and my sugar levels were just fine. Share this post Link to post Share on other sites
donali 57 Posted December 29, 2005 Vines, check out this other very interesting site: http://www.wilsonsthyroidsyndrome.com/ Share this post Link to post Share on other sites
MorningHibiscus 0 Posted December 30, 2005 Hi - There is a major controversy going on about "normal" TSH levels. Read about it here -http://thyroid.about.com/od/gettestedanddiagnosed/a/tshtestwars.htm I have Hashimoto's and both took the article about the reference range to my PCP and went to an endocrinologist. Meanwhile, I think Mary is right, don't take "high" or "low" for an answer - get the results. You paid for them, it is your right to have them. Share this post Link to post Share on other sites