diagnosed with pemphigus

mayflower419 · November 26, 2005

Hi all has anyone ever heard of pemphigus. Well it what I have. Awful

peeling of my gums. This was brought out from the stress of my lap surgery.

Prendizone is the treatment and ammune supressing drugs. I will be devestated if all my hard work of losing weight will be all in vain because

prendizone will cause me to gain weight and get all bloated. And how will

these drugs affect my band I called my dr. but he didn't call back. Not taking

these drugs is not a choice because this is a skin disease causing blisters and

mouth sores and other compications. I'm told its very rare. I hope someone

hear has some insight you guys seem to know alot. Need alittle support

thanks for any info.

tomorrowsdream · November 26, 2005

Has it caused ulcers to form on your lips? I'm surprised they didn't first try a steroid creme. Prednisone is the best treatment for this but it definitely has it's drawbacks. Usually the disease itself causes weight loss, but when it's being treated with prednisone it won't have that affect. I have no idea how it will affect your band as you have to take the drug to keep this from spreading to your esophagus or other parts of the body. It's very important it gets stopped before it gets a real head start. It's rare to get it, and you had to be one of the unlucky ones. Your dr. should be responding to your really valid concerrns.

Try googleing it and I think you will find a lot out about the disease and the treatment and complications of not taking the prednisone. Good Luck.

pepsi32861 · November 26, 2005

I typed it in on the web and there is a whole lot of info to be had. One woman says she cured it with eating the right foods for her blood type. I am sorry you have this and wish you all the best. I think you can find a lot of information on the web that may be able to help you out. You are in my prayers. God Bless.