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RA is a degenerative autoimmune disease so no cure but it can be slowed down with medication. I was really lucky that my GP didn’t delay with the tests and referral to Rheumatology so I don’t have too much damage to my joints. Fatigue can wipe me out though!

I agree with Arabesque, this sounds like a post viral syndrome. I'm so sorry you are going through this! You were doing so well!! What many people (and doctors) don't understand is getting any sort of virus that hits the body hard can result in a number of conditions afterwards, some caused by trying to recover from the virus, some caused by opportunistic viruses showing up when your system is low from one virus already, and some can actually be autoimmune conditions that are triggered to show up from a viral infection. Any of these could be contributing to your condition. A few years ago I got cat scratch fever (that's what I get for fostering litters of kittens! LOL). I was sick with it for a few weeks. My immune system had already been behaving badly that year, I have an autoimmune disease that flared so bad it effected my digestive system, my eyes (I was having vision problems), as well as my joints. But the virus kicked my butt royally. Then a few weeks later I started spiking high fevers at night out of the blue. I was so exhausted I started sleeping more and more every day until I was sleeping about 18 hours a day. My doctors were absolutely useless and said it was probably chronic fatigue syndrome caused by the autoimmune flare and started putting me on courses of steroids. My bones started aching so bad I would cry. I could barely walk to the kitchen to get a glass of water. My GP made out I was pain med seeking so I fired her, her lack of support was appalling. I started fainting when I tried to shower. I had vertigo all day. After fainting twice with temps over 104 I ended up in the ER where they did labs and said nothing was wrong, it was probably a virus and to go home and sleep it off. A week later I ended up in the ER again where a wonderful doctor said I was experiencing acute kidney damage from dehydration due to the fevers and that I was NOT leaving the hospital until someone figured out what was wrong. I was in the hospital for almost 2 weeks, two different hospitals where I continued to run fevers at night up to 105, it was absurd. Then suddenly one day the fevers and pain stopped. The infectious disease doctor was baffled. But when my advanced labs came back they finally understood what was going on---I had atypical Epstein Barr Virus. Atypical because mono didn't show up when tested for in the ER and I only had one lymph node swollen on my whole body, a tiny one behind my ear. Apparently atypical presentation doesn't show up on mono tests, only the two week test. Epstein Barr Virus is notorious for showing up with other viruses and generally making a pain of itself. It took me another two months before I could reliably get out of bed, and honestly my body took several years to return to a new normal. They thought I had POTS but turns out it was just severe physical deconditioning from the virus and bed rest. All this to say--if you still can't figure out what is going on after a couple of months, you might want to consider talking to an infectious disease doctor or immunologist, whoever is in your area that can treat long Covid and can test for other viruses that might be complicating the picture, as well as autoimmune conditions. Your symptoms sound so viral or autoimmune in origin. My Dad ended up with post viral arthritis. Viruses are such weird things and they can really give our bodies a hard time! Oh and one suggestion. You might want to give this device a look, it was made by two guys, one who had long Covid. https://www.makevisible.com/ I've considered getting one as I love that it helps track your activity in relation to pacing which is shown to help with post viral recovery, and in managing autoimmune conditions, chronic fatigue, fibro, etc...

Lovely suggestions!! I'm an autoimmune patient and I incorporate these every day. I'd also suggest for the fatigue and mental fuzziness due to the liquid diet, add ELECTROLYTES. You can buy all sorts of sugar free ones. Often during the liquid diet our body is trying to shift into fat burning mode/ketosis. This can feel very unpleasant and we go through carb withdrawal. We are also low in calories. So electrolyte supplements once a day help give us the things the low calorie, sugar free diet is lacking and it often eases the fatigue and headache some... Good luck with your surgery!! ❤️ I have found mine has really helped my systemic inflammation and fatigue!

I don't have this but I was tested for it during an Epstein Barr Virus flare... I remember it can mimic a fair few conditions. I think the vampire myth came from it because of the relation to heme helping alleviate the symptoms of certain porphyria if the attack is caught early. Of course in reality this needs to be a heme analog given through IV, not heme in human blood consumed with fangs, but what is accuracy in historic myths?? LOL I'm so sorry you are dealing with this. Unfortunately with any significant trauma to the body (car accident, illness, surgery, death of a loved one) you can trigger an autoimmune condition or genetic condition to express itself. It's frustrating because there is no way to know if something will cause it, and there is no way to know what genetic things lie dormant in our systems, waiting to be triggered and misbehave. I hope they have luck with all the testing and find a source to the symptoms you are experiencing... It is distressing to have things going on and not know the cause of them. ❤️

Wow, you look amazing!! What a stressful month though! I wonder why your body decided to kick out your implant. This isn't weird for people who have autoimmune diseases (our bodies are extra emo about foreign occupants), but I have heard of it in perfectly healthy people too. I'm glad the asymmetry isn't too dramatic, that gives you time to heal up and consider what to do next. You had soooo much done at once, I think given the complications you've faired pretty well all in all! I am so glad to hear you feel at home in your body now. That is a priceless win and well worth the pain. I hope you have a much smoother healing process from here on out!

My hands are getting smaller!! Specifically, my fingers. I've had chubby little hands since I was 14 and my autoimmune disease showed up. When I was 200 lbs last time I was still an 8 1/2 on my ring finger in US sizing. Yesterday I finally took off my wedding rings when I noticed that even with the ring snuggies they are spinning around on my finger and threatening to come off. So I decided to measure them. I had gotten up to a US size 9. Now my ring finger measures as a US size 7!!! Never in my life have I ever wore a 7 in rings except maybe when I was 12?? 😂 I cannot get over how differently our bodies lose weight with these surgeries. I have to find a substitute ring to wear now because at this rate I'll be a US size 5 when I'm at goal! LOL I never thought I might have to sell my wedding rings because they can't be resized due to the difference being too much! This is so fascinating...

Yeah, not buying it. The medical community looks for what it wants to see. I married a statistician. They constantly remind me "Correlation does not equal causation!!" The medical community wants to believe that more physical activity will miraculously solve obesity issues because it puts the cause and the remedy right back in our laps, instead of admitting that this is a disease that is very complex and no one smoking gun is the cause or the cure. We need holistic approaches. I was a very active child. So were my siblings. My brother is a normal weight, my sister is often underweight, and I ended up over 300 lbs. My parents are normal weight though they both have siblings with weight issues. I gained a ton of weight while I was still active. Puberty hit and it was like someone switched on a helium tank and I just ballooned up. I've had more doctors than I care to count tell me that if I just got more physical activity and stopped eating McDonalds all would be well, ignoring the fact that I hate McDonalds and until my autoimmune disease got severe I was quite physically active. I know a lot of thin people who are couch potatoes. I know a lot of fat people who are active. These "studies" do nothing but continue to give doctors more ammunition in the shame game that is current obesity management. My partner is Chinese, was raised on traditional Cantonese food (which is very healthy in general), in a family where everyone is effortlessly thin except their grandmother who was diabetic... Several years ago my partner was diagnosed with diabetes. They've had weight issues all their life, despite being very active for most of it. Is it genetics? Perhaps. Is it current lifestyle? It probably contributed to it. Was it due to a childhood diet based on rice? Not likely, that diet also incorporated a ton of healthy protein options and a healthy variety of vegetables, including plenty of greens. A lack of exercise was certainly not the cause of it and increasing exercise is not going to be the cure for it either...

Oh Ashley, I am SO very sorry!! It must be quite rare for that to happen, my heart hurts for you. I'm glad your surgeon was so proactive about ensuring this wasn't being caused by vitamin deficiencies. Hair is one of those things that for many of us is part of our identity and to lose it all so dramatically on top of the stress of bariatric surgery is a huge load. I hope you are being very gentle with yourself. This isn't your fault. I've heard of this happening on occasion with autoimmune patients... Have you thought about seeing a therapist to help support you as you go through this? I've found them incredibly helpful when my body has done rare, weird things that caused a lot of mourning and grief. I'm glad you updated us, this is a safe place for you to come vent and mourn. I wish I had wise words to offer you in solace, but some things are really beyond our language. Just know I am sitting here alongside you with a generous measure of empathy. Please let me know if there is anything I can do to support you. I just want to give you the biggest hug!

I'm so sorry you are going through this @Ashley Amari!! That is a LOT of hair loss. It is so shocking the things our bodies do when under stress. When I was in my early 20s I had an autoimmune flare and lost over 1/3 of the density of my hair. I've always had fine hair but a lot of it, that's no longer the case. In time some of it came back, but I kept having autoimmune flares and with each one I'd lose more and more. It has stabilized now that I'm on a biologic to stop the flares, and it is growing back now though I don't think it'll ever be as thick. But I am DREADING the shed from surgery. I had one after having a hysterectomy. It has all come back from that, it wasn't any worse than the autoimmune triggered ones, but at least it all came back from that! I have high hopes for you that while you have lost a lot for now, it should come back, and often comes back even healthier than before, probably because of all those vitamins we are taking! LOL There is *nothing* we can do to avoid this shed cycle, it is natural after a major surgery and serious weight loss, so don't worry it is something you did. It isn't. It will come back in its own sweet time and until then I bet you'll rock the hell out of that wig!! ❤️

I agree with this. At your starting weight you should have been offered a Duodenal Switch or a SADI procedure. If you weren't, I'm assuming it is because your surgeon can't perform those surgeries, so just offered you the sleeve? If you were offered these options, why did you opt for just the sleeve? My highest weight was 320. Two surgeons agreed I should have a traditional duodenal switch. I did the research and agreed with them, though originally I just wanted the sleeve. I was terrified of the switch portion of the surgery, especially because I've had ulcerations of the small intestines due to my autoimmune disease. So my surgeon called and consulted with my GI doctor and together they decided the DS was the best option for me and worth the risk because of how many benefits it would offer me. So I decided to accept my fear and go with the DS anyway. I'm so thankful I did and that it was an option offered to me. It has changed my life in so many ways for the better... The sleeve is the first part of a duodenal switch, that's where the sleeve operation actually came from. The intestinal part can be added at any stage by a surgeon qualified to do it, but only a small percentage of surgeons can perform it, as it can be rather complex. We see revisions from sleeve to DS all the time in my support group.

I don't have MS, but I do have several autoimmune diseases along with Fibro and Chronic Fatigue Syndrome. I am almost 3 months out from a traditional duodenal switch. I have found my energy level and ability to exercise has increased a lot, I no longer get post exertional malaise. I also have less pain because the surgery causes your inflammation levels to decrease and as you lose weight, those levels will continue to go down. Since I am so early out, I have not had any nutritional issues. However, my surgeon did advise I go with a longer common channel than the standard 100cm cookie cutter length that most doctors go with, because I have a history of nutritional deficiencies. I went with 175cm. I'm really glad I had the DS, I'd do it again every year if I had to just for the fact it put my diabetes and high blood pressure into remission immediately after surgery!! Plus I have more energy than I've had in 2 decades. There is a different forum that has more DS patients on it, you might try posting there. It is www.bariatricfacts.org I'm not sure if anyone there has MS, but they are great with recommendations. There's also a support group for DS patients on FB called "Duodenal Switch SUPPORT Group" and there are a TON of DS patients there, you might try posting and seeing if any have experience with the switch and MS. As for surgeons, I had my surgery done with Dr. Pilati at WakeMed Bariatrics in Cary, NC which is right outside of Raleigh. We have a number of excellent DS surgeons in this area because of our world class healthcare centers. I don't know of any in the DE area but the women at bariatricfacts might, a lot of them are vets of the surgery for 10+ years!

Mine was coming out in HANDFULS. About month 2 after my procedure I got deathly ill with pneumonia and wasn't able to eat much for several months. My hair loss was BAD. I've since been diagnosed with an autoimmune disorder and I lose hair again every time I have a flare-up mostly because it makes it so I can't eat. I just keep it short now, no reason to try to grow it out and end up heartbroken again.

I agree with NickelChip, your PCP not knowing about the surgery is not a big deal IMO. What is most important is that YOU understand your surgery and whatever anatomy you end up with, and that you are able to communicate that to emergency responders and ER doctors in an emergency. Everyone close to me knows what surgery I've had done, knows the technical term for it, and it is in my phone's health info that emergency responders can access. A lot of SADI and DS patients carry a card illustration of their surgery in their wallets or on their phones. When I was considering the SADI and two surgeons recommended I do the DS instead I had reservations. I live in North Carolina and we have some really stellar bariatric surgeons here in Raleigh. But I plan on moving back to New Zealand in the next few years and DS surgery is really rare there, there are only 2 surgeons I know of in the country who can perform it and they are both in Auckland. My surgeon here told me as long as I planned on having the first few years locally here in Raleigh, and as long as there was one surgeon that could be consulted about my care in the area I move to, I should be fine with the DS... The same applies to the SADI. What we tend to forget is that people have surgery on their small intestines for a variety of reasons besides bariatric surgery. Cancer, Crohn's, etc... Many people have designer insides and while not every gastro doc is trained to do a DS or SADI, they have the technical skill to find a surgeon to consult with about your surgery should they need it. In terms of your PCP what she most needs to know is that it is vital to order a FULL panel of bariatric labs for you at least once a year, as well as at any point if you start having symptoms of a vitamin deficiency or protein deficiency. She'll also need to watch your iron levels. These are things a PCP can do. She also needs to be in good communication with your surgeon if she has any questions. Doctors act like they can't talk to each other, but they can. I have an autoimmune GI condition that causes ulcerations sometimes (like Crohn's) and my bariatric surgeon actually called and consulted with my GI doctor to ensure they were on the same page about the surgery and to ensure it was a safe surgical option for me. That made me feel SO well cared for! My PCP has a sister who had the sleeve done so she's familiar with the bariatric surgery options. She is well read, researches what she needs to, knows how to consult when she needs more info, and trusts me to tell her what I need when I need it. For me, that's the perfect PCP. I don't need her to understand the complexities of my surgery. I just need her to know when she's out of her depth and needs to refer out to a GI doctor, my bariatric surgeon, or the ER.

I have had Chronic Fatigue Syndrome for over a decade, along with Fibro and an autoimmune disease, so fatigue is a daily companion of mine. Pre-op I could generally pick one thing in a day and anything else was too much, not enough spoons!! Just walking from the car to the flat was exhausting. Before my fatigue was disability level and I slept on and off all day and all night. Post op at about week 3 I started feeling more energy off and on and it was so strange, I couldn't figure out where it was coming from. I just noticed I wasn't falling asleep in the middle of the day anymore... Then I noticed I had enough energy to make a meal. Then several meals. Then I noticed we'd go run and errand and I could still pick something to do around the house afterwards. Walking to and from the car was easy. I've gradually started adding steps in, increasing by 500 each week. I'm at over 2,500 steps a day now (which is a bit more than a mile) and I'm not wiped out by it!! I can still go run errands or go to an appointment, and still no naps. Honestly, I haven't felt this much energy in my body in decades... I still pace myself some to respect my limits, but man, it is a miracle, I swear. I had NO idea that the surgery I had could impact my chronic fatigue. I'm incredibly grateful, it just feels unreal. I'm almost 10 weeks post op. I can't imagine what I'm going to feel like a year post op!! ETA: I do still get tired, but it is a good kind of tired from a productive day. And I sleep much better too, before sleep never did anything, now I actually feel refreshed a bit in the morning!

Prior to COVID, (which delayed my treatment which was to start in 2020) tooth decay and gum issues. I was to get some work done including filling, root canals, and possible bone graphs to my jaw. Due to life, I have yet to have this done but am working on it. I wanted to share that I have found that the condition is called pernicious anemia (of the teeth and gums). There are many health issues that this can cause. This is a medical issue, not a dental issue. You will likely have to educate your physician (who must write the referral correctly) and and your oral surgeon. The request to your insurance company MUST include the medical information. If they turn you down, appeal it so you can send the information yourself. Just be sure you use trusted medical sites (Mayo, Cleveland Clinic, NIHA, are good places to start. 11 years ago there was no information available, and/or not provided to me. This disease is NOT a dental issue. It effects your autoimmune system and others. Left untreated, though RARE, can cause death. Please don't panic over the "death" part, it is very rare. If you have broken, cracking, teeth coming out, gum issues (even tongue issues), this might apply. As I mentioned do your homework, note your references and talk to your primary care doctor. Get the help you need. I have 8 teeth that need to be pulled now plus some "repairs" to others. I have opted for removal of all my teeth at one time and implants. A note about implants: dentures do not stimulate your gums and jaw which is imperative to keeping you jaw from decaying. My primary care doctor, after I educated him 🙄 agrees with me , BTW. There are dental clinics out there that do a one and done treatment where you can have your teeth extracted and get your implants the same day (my option to prevent more surgeries). Keep that in mind. I hope this information is helpful for someone suffering my fate.

I have this problem. I'm not an overeater. I eat very carefully and about 1200 calories a day. I get exercise. I don't binge. I drink water. I gained 60 lbs in one year when I was about 16 and the weight has done nothing but go up ever since. No one could tell me why. My diet and activity level didn't change. The best they could guess is it was my thyroid but those levels were normal until my 30s. I did develop an autoimmune disease at 14 though and it could have contributed inflammation. I became diabetic a few years ago and have steadily climbed to over 300 lbs. At this point doctors say it is inflammation and metabolic disorder that was probably subclinical for years. Some of the weight is definitely med related and now Im physically disabled which contributes too. All this to say not everyone who gains weight has an eating disorder but it's rare and doctors will have no clue what to do with you! With the extra weight you should qualify for surgery, right?? I wish you the best of luck. I'm halfway through my pre-op diet and true to form my body hasn't lost a pound. 😂

This has been on my mind, not because I doubt my relationship, but because I see so many people on these forums and groups who are struggling with this. When I ended up with an autoimmune condition a few years into my marriage it definitely stressed things. Becoming disabled is hard on any relationship. But therapy helped a lot. When I got cancer my relationship became solid like a block of iron. I realized then that it wasn't about if someone could endure things with you, it really is whether someone can walk through the darkness with you, embrace who you are at any given moment and roll with the changes life brings. We all change in life, sometimes in small ways, sometimes in big ways. I found that having someone who could care for me when I was sick and yet make spaces for how I changed physically and emotionally AND still see me as WHOLE was a very big deal. We humans resist change in general, our reptilian brains don't like it. Being resilient enough to integrate change and make space for it is a huge gift in a relationship. This surgery will change me, it can't not, but I trust that my partner will roll with those changes because above all else they want me healthy and happy and this is the path I believe will give me that. It's nice to see some others have that gift in their relationships too.

Considering there are a multitude of thyroid disorders, without a specific confirmed medical diagnosis, it would be impossible to offer an opinion as to how WLS could affect your prognosis. As someone who has dealt with the extreme swing from stroke-level hyperthyroidism cause by the autoimmune disorder of Grave's Disease to a partial thyroidectomy during the early weeks of an unknown pregnancy which placed addition stress on my remaining thyroid causing the destruction of all thyroid function; I have run the gambit of thyroid crisis scenarios including a couple of life threatening emergencies with myxedema comas. I am closely monitored by a team of endocrinologists who specialize in unique cases. How WLS could affect your particular thyroid issue would be best answered by an endocrinologist who specialize in thyroid disorders. As far as my 40 years of experience dealing with the thyroid roller coaster, my tsh, uptake, t3 levels and thyroid medication dosage were never affected by my weight. Good luck to you!

I had this happen (I'm an inch shorter than you and at one point had gotten down to 91 pounds, unfortunately.). My situation was caused by an autoimmune condition; among other things it made it so that my enlarged spleen was pushing against my sleeve, reducing my capacity to nearly nothing. It was awful because I could FEEL that I was hungry and I wasn't able to eat. I ended up resorting to, at my dietitian's advice, drinking part of a shake intended for people needing to GAIN weight (Ensure Complete, I think is what it's called, the bottles have about 300 calories). As I am someone who gets dumping syndrome, I had to break it up into very small portions (about 1/3 of the bottle) and I would drink that portion 30 minutes after my meals. It helped; I'm back up to 103 now which is where I feel most comfortable. Another really dense food that shouldn't mess with your blood sugar or macros would be peanut butter. It's one of the highest calorie things you can eat, but it's also full of healthy fats and protein, especially if you choose a low sugar variety. I know it's hard, and it's a hard thing to talk about to most people because no one really understands how distressing it is to suddenly find yourself underweight when you spent years struggling to lose (I got a lot of "Exactly why are you complaining?" even from people who meant well.). You're not alone. I know it's a real problem that is really upsetting, and it's OK to have feelings about it.

I was on cellcept for about 3 weeks and it was the worst time in my life. I was taking it for an autoimmune disease and was already banded at the time...

Certain autoimmune disorders are contraindications, as well, as it affects healing. Here's a list put out by http://www.lap-band-surgery.org/LAP-BAND-Contraindications.cfm : LAP BAND Contraindications The LAP BAND System is not right for you if: You have an inflammatory disease or condition of the gastrointestinal tract, such as ulcers, severe esophagitis, or Crohn's disease. You have severe heart or lung disease that makes you a poor candidate for surgery. You have some other disease that makes you a poor candidate for surgery. You have a problem that could cause bleeding in the esophagus or stomach. That might include esophageal or gastric varices (a dilated vein). It might also be something such as congenital or acquired intestinal telangiectasia (dilation of a small blood vessel). You have portal hypertension. Your esophagus, stomach, or intestine is not normal (congenital or acquired). For instance you might have a narrowed opening. You have/experience an intra-operative gastric injury, such as a gastric perforation at or near the location of the intended band placement. You have cirrhosis. You have chronic pancreatitis. You are pregnant. (If you become pregnant after the LAP BAND System has been placed, the band may need to be deflated. The same is true if you need more nutrition for any other reason, such as becoming seriously ill. In rare cases, removal may be needed.) You are addicted to alcohol or drugs. You are under 18 years of age. You have an infection anywhere in your body or one that could contaminate the surgical area. You are on chronic, long-term steroid treatment. You cannot or do not want to follow the dietary rules that come with this procedure. You might be allergic to materials in the device. You cannot tolerate pain from an implanted device. You or someone in you family has an autoimmune connective tissue disease. That might be a disease such as systemic lupus erythematosus or scleroderma. The same is true if you have symptoms of one of these diseases.

PBC stands for Primary Biliary Cirrhosis...it is an autoimmune disease. What is yours?

I have been diagnosed with Lupus (SLE), and have a Realize band. I also have had psoriasis for many years. My physicians, specifically my PCP and surgeon knew of these diagnoses prior to my surgery. I've not experienced any complications or exacerbation with either of these medical conditions post band surgery which could be attributed to either diagnosis. I was never informed that the band would be contraindicated for someone with either of these diagnoses. I also don't see the logic why the band would be contraindicated. I would like to know more about this topic...as an aspect of lupus treatment does involve lowering the body's autoimmune responses.

That does make sense...I'm on medication to calm some of the autoimmune response. I guess that strategy is working...and long may it continue. My PCP did relate that a former patient of his that he was not totally informed regarding her medical history wanted a band, however he refused to medically clear her as she had Crohn's disease. Thanks for sharing the information...I did suspect that reasoning would be part of the logic.