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Doxieville Lilaclass, Sounds like we have lots of junk in common on this adventure of life. I feel like autoimmune queen. Celiac disease, rosacea, psoriasis, psoriatic arthritis, RA, and then OA on top. It all sucks. Pain pain! I'm hoping weight loss sends pain for a long exile where I'm concerned. I am keeping it real so far though because I don't have a choice. Lost close to 40lbs since August but no good relief yet. Also, didn't know Celebrex was safe. Have to consider that. I see my rheumatologist on 1/10 for a checkup so I hope we can make some type of headway until I can take meds or injectables again. Good luck to you both with VSG and Arthur.
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If your dr thinks you may have an autoimmune disease, you should start with a Rheumatologist. Your internist should be able to refer you to one. I am not sure about waiting or not waiting until after the surgery to do this. If you are started on some type of biologic you will have to stop it prior to the surgery and then after the surgery at your surgeons discretion. I will definitely do that but I think it's best to do it after surgery and after everything is calmed down a little bit with me. I couldn't get my surgery scheduled in time to take classes as a full-time nursing student this semester so I have to take a whole semester off as a break. I'm halfway through and it's not the end of the world but also not ideal. The good part is, I'll have this whole semester to get my health back in shape and will be completely free for doctor's appointments galore! I am also glad I get to have some down time while I adjust to another surgery and let me esophagus heal from the erosion caused by the first surgery. Maybe they will find something, that would be awesome..until then I'm crossing my fingers for a successful bypass!
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gastric sleeve vs. Gastric bypass
LaLaDee replied to new_lease_on_life's topic in Gastric Sleeve Surgery Forums
I'm three years out and prior to surgery, I had a BMI of 50. My surgeon recommended the sleeve because I was still young-ish then, e.g. early 30s and nutrient absorption is pretty important. My surgeon felt that the calcium/vitamin D malabsorption may lead to bone density issues later on in life (and after obesity, people generally don't have great bone density and are prone to fractures). Most of bariatric surgery is relatively new, so there aren't a ton of long term studies, so my surgeon is just guessing. And most people on the bypass seem to be pretty good about taking their vitamins (which is something you should do with the sleeve anyway). A couple of months after my sleeve I was diagnosed with a range of painful, chronic autoimmune diseases and I'm very thankful that I went with the sleeve because of the issues with drug absorption with the bypass (I have to take a ton of oral medications). Of course, I did not deal with GERD, which means that the bypass is right for many people. With the sleeve, I was able to take my BMI from 50 to 25. Due to aforementioned illnesses and medications, I did deal with some regain, which I am slowly working on. At the moment, my BMI is about 29. I have never felt like the sleeve wouldn't be enough to help me achieve success. All that to say, you can definitely have success with the sleeve or the bypass. As commented by others, a lot of it is going to come down to what your level of commitment, and your ability to change your lifestyle and deal with psychological issues. And you have to educate yourself. You can't drink a diet of only protein shakes forever. At some point, you have to learn how to eat real food in the real world, go to work, socialise and interact with food, people and life. If you haven't dealt with your "issues", you will have regain with either surgery. It can be a tough decision, but I honestly feel that you can find success with either surgery. -
One Week Post Op....fuzzy Tongue?
peacequeen replied to kimmr's topic in POST-Operation Weight Loss Surgery Q&A
I have autoimmune problems so I've heard alot of terms,,have you ever heard of leukoplakia? It can be caused by low Vit A, B-12, C & folic acid among alot of other conditions or bad habits such as smoking or drinking (not that you do..just saying). I've had this condition before due to prednisone. It's also called,,don't laugh.."hairy tongue"...yours may be something different but just sounds similar the way you describe it. -
I read your story with tears in my eyes. It is so familiar... the lost sleep and fearful nights, worrying my daughter would find me dead, turning to food for comfort. First, let me say that you look so beautiful! You really do! You are just glowing with happiness in your tiara picture! Second, let me say that I cannot count the times that I've been in a positive, happy, successful place with a fitness regimen only to be taken down by my extremely rare and debilitating autoimmune disease. This is what I know from that: It's frustrating. It's sad. It's demoralizing. It's painful. And it's temporary. Whatever this is, whether it lasts for a week or 6 months, you WILL get past it, and when you do, you'll feel just as good when you get back out there again. Maybe your weight loss will slow a bit, but it is not dependent on your walking. I need to have both my knees replaced, and all I can do is swim. There are also chair aerobics and boxing DVDs. Feel a little sorry for yourself for a day or two. You deserve to. But know that you will get past this. In a matter of time, all will be well.
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Diagnosed with Hashimotos. Anyone else have this?
bubles089 replied to 2bfit's topic in WLS Veteran's Forum
I have battled with this for going on 13 years now, only diagnosed for about 9. It is a very very frustrating disease! I was told for years I was crazy and nothing was wrong with me. I gained so much weight for no reason and was told I was lying about what I was eating so i gave up. They finally diagnosed me with it and it took 6 years of constant all over the place tsh readings. I finally ended up on 200 mcg. I am 18 months post op from my sleeve and just found out in severely hyperthyroid now( and still 20 lbs over weight wtf is that!?). I also just got tested for celiac's. There is a strong correlation between gluten sensitivity and autoimmune disease. The gluten causes inflammation . It also causes the hashimotos to flair up and not be well controlled. I wish someone had told me this 10 years ago and maybe I wouldn't have gotten to 260 lbs and had to be sleeved! Look into the gluten thing, I've been told by many it helps. I am removing it from my diet starting this week! -
Christa (my daughter's name, by the way)... If your doctor can't find a reason for this, I'm afraid there might be no other treatment except to stay far away from sugar. I guess you could get a complete unfill and see if that helps, but I'm betting it would be a waste of time. Have you had a fasting glucose tolerance test recently? Could you be pregnant? Have you been tested for Crohn's or other autoimmune diseases? That's about everything I can think of....
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Surgeon didn't complete my Gastric Bypass surgery!
numinousvessel posted a topic in Gastric Bypass Surgery Forums
I went on January 16 for gastric bypass. I woke up about an hour after being put under to a nurse in the recovery area telling me they did not complete my surgery because of complications. I have multiple adhesions and my intestines are stuck together so much that my anatomy does not look like it should. My surgeon did not want to complete the surgery until I could be told. He has given me the option to have him do a sleeve or for him to refer me out to someone who still does open bypass surgery. I cannot explain the mind f**k this was and the anxiety I am feeling. This is terrible. I knew something was going to happen or be found. I knew that I was right. Something was going to be found that would explain the symptoms I had had for years at this point. These adhesions do not show up on scans of any sort unless you have an obstruction. I have only had one other surgery in my abdomen and it was a laparoscopic appendectomy 10 years ago. He thinks it stems from chronic inflammation and autoimmune **** that I have. Has anybody had an open procedure for bypass? What's your experience? Or has anyone been opened up and not finished? Sent from my SAMSUNG-SM-G891A using BariatricPal mobile app -
Massachusetts Bandsters Chat
mayflower419 replied to NewBeginnings2018's topic in LAP-BAND Surgery Forums
Hi all mass bandsters I was banded at the Faulkner Hospt. in Aug. 2005 I haven't had as much success as I anticipated. Only lost 40lbs. I had the bad luck of coming out with an autoimmune disease right after surgery and my treatment is steroids.:cry If you are aware of this type of medication it makes you gain weight:mad: I didn't gain but I stopped losing. Thats my story I hope you all have better success with your journey. I live south of Boston. -
Both glad to hear that it was not cancer and sad to hear that it is an autoimmune issue. We all wish you the best on your continued treatment.
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Hi LisaMergs!You are well met! Thank you for your advice. It is very encouraging to hear about someone who has had this serious of a problem and is managing well without nsaids. You hit the nail on the head when you said you were dreading being without your advil more than your favorite foods. I have been worried that I will be thinner but in pain. My quality of life is too important. I'm too old to worry about vanity...give me health! Girl you can have both health AND vanity! Take back your life! Lol. I'll be sure to follow your journey!!! As an aside, my surgeon, upon consultation with my rheumatologist, felt bypass was the safer alternative for me- with autoimmune issues. But that's me.
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UUUGGGGGHHHHHH!!!! Non supportive family
g00dbyefat replied to pstroud100's topic in PRE-Operation Weight Loss Surgery Q&A
Sorry to hear...that sucks! I agree that I think it's jealousy. Luckily most of my friends/family is VERY excited. Like you I have been heavy all my life, tried EVERYTHING under the sun to lose it and can't. I remember when I was 21 I lost and got down to a size 22, that lasted for about 4-6 months until my thyroid went autoimmune and really screwed me up. Then I found out several years later I had PCOS too. My endocrinologist now told me about lap-band and how it was my "best option". She said w/ my 2 illnesses that I will just keep getting bigger and bigger, pretty much no matter what I do. I made up my mind then and there!! I do have one friend who doesn't agree w/ my decision. She said that said I should just "strictly diet" eating low carb options and work out (like she has). I have been doing that for years, and no change...just holding off massive gains I suppose. Well I was of course VERY UPSET at the lack of support, and haven't talked to her much since then. I heard thru a friend that she was complaining of gaining weight no matter what she tried (she has PCOS too). Well she can do what she wants, I KNOW I'm doing the right decision for me!!! You are too...STAY STRONG no matter what anyone says. You know your body best!!! :biggrin: -
Could This Be Linked To Wls?
Ijam75 replied to HopeThruFaith's topic in POST-Operation Weight Loss Surgery Q&A
Per the US National Library of Medicine.... Causes, incidence, and risk factors There are many causes of proctitis, but they can be grouped in the following categories: Autoimmune disease Harmful substances Non-sexually transmitted infection Sexually transmitted disease (STD) Proctitis caused by STD is common among those who engage in anal intercourse. STDs that can cause proctitis include gonorrhea, herpes, chlamydia, and lymphogranuloma venereum. Non-sexually transmitted infections causing proctitis are seen less often than STD proctitis. The classical example of non-sexually transmitted infection occurs in children and is caused by the same bacteria that cause strep throat. Autoimmune proctitis is associated with diseases such as ulcerative colitis or Crohn's disease. Proctitis may also be caused by certain medications, radiotherapy, and inserting harmful substances into the rectum. Risk factors include: Autoimmune disorders High-risk sexual practices such as anal sex -
WLS and MS (getting the sleeve)
I♡BypassedMyPhatAss♡ replied to SleeveToBypass2023's topic in Gastric Sleeve Surgery Forums
Hi! I don't have MS but I have RA. I know it's like comparing apples and oranges, but they're still fruit. They're both still autoimmune diseases. I've had umm about six surgeries since my diagnosis and I've never experienced a flare from surgery. I do experience flares still occasionally, so it's not that I do not flare, but surgery never brings them on. My rheumy attributes my lack of flares to be that my RA is pretty much in remission. My rheumy is my biggest cheerleader for getting revision to RNY. She says getting to a more normal bmi will decrease inflammation and make my disease even milder. She says if I do flare after surgery, no problem, she'll just administer a steroid injection. So your neuro cleared you for surgery, they must feel that the benefits of the surgery will outweigh the risks. If you have any doubt, schedule another appointment with your neuro and discuss it with them. Has your wls surgeon okay'ed you for continuing the celebrex after sleeve surgery? I stopped mine after committing to revision to RNY. I had to know I could survive without it forever. I wish you all the best! -
Need a Sleeve Buddy?
doingitmyway replied to smartj84's topic in Weight Loss Surgery Success Stories
Yes!!!! Almost second guessing myself. I had my dietary appt yesterday and it got real! Surgeon pre-op on the 18th. Sent from my iPhone using the BariatricPal App What autoimmune do you have? Sent from my iPhone using the BariatricPal App -
What was your most recent NSV? (non-scale victory)
Teachamy replied to tamg26k's topic in General Weight Loss Surgery Discussions
You should have your allergist do a blood test for chronic-autoimmune hives. I have them too. They went away after surgery, but returned over the summer, then went into remission again. I take OTC Allegra everyday, and unless I am having a flair, it keeps them at bay. There is also a shot that used to be used only for asthma that is now being used for hives too. The name escapes me, but your allergist might know. -
What was your most recent NSV? (non-scale victory)
BLERDgirl replied to tamg26k's topic in General Weight Loss Surgery Discussions
I have had every allergy test known to man. Scratch test, blood and urine. I'm pretty sure I have chronic autoimmune. The doctor said that there is a small percentage of people who get hives like this despite nothing showing on the test. They have me on Zyrtec D daily. It lessened them but they didn't go away completely. The only thing that has made a difference has been the surgery. -
Hi Friends, I haven't been on here in a while, but I've run into a little problem. OK, it's a pretty big problem. I have an autoimmune form of arthritis called AS. I had the LAP band done two years ago in order to reduce the strain on my joints. Though I was at the lower end of the weight continuum, I needed to lose weight permanently in order to slow down the crippling effects of my AS. The pain from the AS causes me to lose sleep at night, so my rheumie prescribed me Cyclobenzaprine. It has been a God send, and it has changed the quality of my life. I now do not need 10-12 hours of sleep at night to be safe while driving to work the next day. The only side effect is a big one, though. I am waking up from this reflux/vomitting in my lungs sort of thing that happens. I don't know if it's from the medicine or if my band is too tight (5.5 cc in a 10cc band) or if the reflux comes from one of the other meds. I suspect it's the Cyclo, though, because I've tried to isolate it so that it's the only variable. I'm wondering if it's possibly getting caught in my pouch and dissolving close enough to the esophagus to cause the reflux. Cyclo's not supposed to work on the muscles like that, but taking a half a pill one time, the cut side rested against my tongue long enough to make it numb in that little spot. I know this is odd, but does anyone out there have any experience with this or a similar situation?
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Hi. I have been researching bariatric procedures for weight loss for a few years. I'm 45 year old woman whose weight fluctuates between 170-190 lbs. I have met with a couple of bariatric surgeons to explore the balloon and lap band. I'm not impressed with the balloon, and the complications associated with the lap band scares me. The ESG seems like a good fit for me, however, there are no long term studies to prove it's effectiveness and safety. My body over produces scar tissue, so that is my biggest concern with any surgical procedure. I have been struggling with an autoimmune disease which is exacerbated by my weight and poor food choices. I need to lose weight and I'm unable to do it on my own. In 2005 I was able to get down to 120 lbs and maintain it until 2011 with the help of phentermine. I was buying it online and the formula was very strong. I maintained the weight loss until the online phentermine was discontinued. The phentermine prescription I now receive from my doctor must be formulated differently because it has little effect. I want to lose weight and get off the medication. In 2011 I began suffering from various immune related ailments. The doctor's believe it is Burchett's disease. I'm prone to illness and infection. The foods I eat and extra weight I carry is literally killing me. I'm a single mom of two girls, ages 13 and 16. I need to be the healthiest I can be for them . I'm desperate and scared. I have a consultation next week with Dr. Reem Sharaiha at The Center for Advanced Digestive Care at NewYork-Presbyterian/Weill Cornell Medical Center. I will continue to post my experience through this journey to help those researching procedures. Thanks for all who share, it has been immensely helpful to read the process others have experienced.
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Frustrated, but still determined...
ClevelandBiker replied to ClevelandBiker's topic in Gastric Sleeve Surgery Forums
I just got a call from my surgeon's Nurse. The issue that postponed my surgery with the autoimmune treatment has been cleared up, I have my original 4/12 surgery date back. So I will enjoy some chicken wings tonight & tomorrow starts the liquid pre-op diet! -
ESG Consultation 11/28
BubblesCT replied to BubblesCT's topic in Endoscopic Sleeve Gastroplasty Forum
So just an update on my consultation for the ESG procedure. My day started by ordering a Starbucks latte for my hour commute, after paying the cashier, I drove away WITHOUT my latte. What a dope. My appointment was scheduled for 11am in NYC which takes me a little over an hour without traffic. I checked in at 10:45, and waited patiently for two bleepin hours. At this point my caffeine withdrawal is setting in and my tummy is A rumbling. The doctor was pleasant and I didn't feel rushed. She informed me that they had me scheduled for a 5 minute follow up appointment today. Fortunately, the doctor honored my consultation, and spent plenty of time with me. After my consultation, she gave me a Pre-Op Evaluation form. I will attach a picture of it below. I was able to complete my bloodwork at the office today, I figured what's another hour. They weighed me, which I have been dreading. I have gained 20 pounds over the last 8 weeks. So my official start weight is ..... 194lbs. Dr. Sharaiha asked that besides the bloodwork and H-Pylori test, that I meet with a nutritionist. While I was waiting to get my blood drawn, I scheduled an appointment with the Nutritionist (December 15th) . I attempted to schedule a surgery date but was denied. She said I could not schedule an appointment for surgery until the meeting with nutritionist was complete. I wonder if it's because when she asked me what I had for breakfast, I frankly replied, "a cupcake" and when she laughed, I said, "well since I'm being honest, I had two". Maybe it was a red flag that I have an eating disorder...yikes. I just assumed the majority of overweight people eat disorderly.... Dr. Sharaiha reported that they have 4 years worth of data in the US to measure results. She stated that the US has been doing the procedure the longest. I assume she does not equate the ESG to the similar procedure performed in other countries. She reported that most people do not need revisions. She compared the ESG revision to that of the lap-band. She said that some individuals needed a little tightening to increase their restriction. She warned against relying on possibility of future tightening as a crutch to possible slack.. She reported that in over 200 ESG procedures she has performed, she has revised(tightened) very few. She reported that the average amount of ESG's lost 19% of their total body weight compared to 30% of VSG's She stated that the part of the stomach that is "stitched off" from the rest is not susceptible to disease or ulcers. Comparison of complications to a VSG is, that leaks and ruptures can, and do occur with ESG, however it is rare. She was not concerned about my history of scar tissue and inflammatory disease associated with an autoimmune disorder. For me the food I eat negatively impacts my health to the degree in which surgery is worth the risk. My goal is to cut out sugar/flour/wheat/grains and eat 3 meals a day until my surgery. I want to get my weight down as much as possible to maximize the surgery assisted total weight loss. I'm sure I have missed some stuff but my brain is starting to putter out. I"ll be back.... I welcome any and all questions. If you are out there browsing this site and afraid to speak up in the forum...private message me. You are not alone, it takes a village. -
I don't have Hashimotos, but I am hypothyroid and I too was very worried that I wouldn't lose weight even with the surgery. I'm happy to report that hasn't been true. By and large, the following categories of people seem to lose "slower" than their counterparts (and this is World According to Gamergirl after reading these forums a lot, not gospel) 1. women 2. menopausal 3. thyroid, pcos, or other Autoimmune diseases 4. have had children 5. those who don't have as much to lose (i.e., under 100 lbs) So I am female, 47, not yet menopausal, have underactive thyroid and RA, have birthed a child and had under 100 lbs to lose. By all counts except menopause, I am in the slow loser category. And yet, I'm down between 48-50 lbs in less than 4 months, which I never could have achieved on my own. I know because I tried for years to lose anything and was not successful. Perhaps what we need to focus on is that losing slow is still better than not losing at all, and I think if you didn't lose at all, they'd be featuring you in every news article in town as a medical marvel I hope that helps.
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Cellcept and getting banded
Believer replied to epm316's topic in PRE-Operation Weight Loss Surgery Q&A
I was on cellcept for about 3 weeks and it was the worst time in my life. I was taking it for an autoimmune disease and was already banded at the time... -
Does anyone also have MS who has had lapband surgery?
bandtime replied to Friend2U's topic in LAP-BAND Surgery Forums
Hi I have Ms too. I have M.S. and the Lap Band recently I have seen ligature that says people with an autoimmune condition can not have the Lap band. MS is a auto autoimmune condition. Have you heard anything about that? How are you doing with your lap band? When did you get your lap band? Have you lost any weight? Please respond as soon as possible. My alternative e-mail address is lenaa@wowway.com. I check that box regularly. -
I drank Diet Pepsi for 34 years. During that time I gained 250 lbs and developed two life-threatening autoimmune illnesses. Went off it 8 years ago and eliminated both illnesses. My opinion of "diet" soda and anything else with artificial sweeteners is it's detrimental to health and well-being.