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Found 1,088 results

  1. KateBruin

    VSG & autoimmune diseases?

    I know this conversation started a few months ago but I thought I'd add my piece. I recently got diagnosed with spondyloarthritis. It's basically ankylosing spondylitis but they couldn't diagnose AS officially because my lumbar spine is fused. I started humira about 5 weeks ago and it isn't helping yet. I also have autoimmune thyroid but we aren't sure if it's hypo or hyper because my test numbers are all over the place. I could possibly lose the weight on my own because I workout like a total maniac but losing weight will help my joints and reduce my other symptoms. Plus, I'm borderline on several other diseases and my GI thinks I'm basically "pre-crohns". I also have a worsening incisional ulcer that my doctor can't fix till my BMI is below 30.
  2. gingeryank

    VSG & autoimmune diseases?

    @@UalreadyKnow I'm sorry to hear about your struggles with these illnesses. I've fallen down the stairs in my home, in the grocery store--just randomly when my knees give out. My eyelashes fell out. All autoimmune related. I find that autoimmune diseases can and do overlap. I understand the need to feel normal: a normal weight and, in my case anyway, as able-bodied as possible. Good luck to you in your battle! Sent from my iPhone using the BariatricPal App
  3. sailorChristy

    N E 1 been Banded at Mt. Carmel col, oh

    Hi, pretty Juli - Thanks for your response. I should know better than to make ambiguous, melodramatic statements like I did, as if everyone here knows my story. Let me explain a bit. I hope this doesn't come across as defensive or even more melodramatic! I moved home from FL eight years ago, which was 6 months after my Dad's heart attack. He had heart bypass surgery just a few months after I moved to Columbus. Since that time, I've witnessed my precious Dad be diagnosed with one obesity-related disease after another, and observe as he suffers through each day and is hospitalized about once per month. My Dad has heart disease, type-2 diabetes, inflammed/fatty liver, obstructive sleep apnea, congestive heart failure, hypertension, high cholesterol, and depression/anxiety. My Dad is only 61 years old. As for me, my body has already failed me once. I have (had?!) Graves Disease, which is autoimmune hyperthryoidism (dx Nov 2002.) I went through three years of roller-coaster riding on meds (cycling back and forth between hyper and hypo, with occassional moments of bliss in a 'euthyroid'/normal state.) When I started to experience the eye symptoms that often accompany Graves (e.g., they started to bug out of my head), I elected to have a total thyroidectomy. Well, it's a good thing I had the surgery because there were two little secret microcarcinomas that only God knew were there. I had thyroid cancer, but it was stage 1 and the thyroidectomy is the treatment for that. Thyroid disease has been a real strike against me in the weight management department. I've gained about 10# every year since I was first diagnosed with Graves. I can very clearly see my future in my Father's struggles. I have hypertension, anxiety/depression, high cholesterol, and a fatty liver already... and as of last week I have added obstructive sleep apnea to my resume'. I don't want to have to continue living with this burden... with this daily fear of what comes next for me health-wise. I am only 38 years old, and I long to be as active -- and as 'at peace' with my health -- as I was before Graves. (I ran a 5k race every weekend when I lived in Orlando!) I view the LB as the tool that will help me to regain my health and avoid 'the family curse.' I don't feel like I'm viewing it as 'the diet of the month,' but I'll talk to my LB program psychologist about that just in case. I know that life will always throw me curve balls, like you said. I long for the day when I can confront them without the added burden of being 'a sick person.' Thanks again for your response and for the opportunity to explain my melodramatic statements a little better. Y'all will probably be hearing a lot more from me in the weeks to come. I've failed my first month of the pre-op program miserably, but I'm renewing my focus now and 'using my resources' to stay focused. I really think/hope that starting to use the CPAP machine will help improve my frame of mind and this dark spiral of anxiety/depression that I've found myself in lately. :thumbup:
  4. shrinkingkimber

    VSG & autoimmune diseases?

    No but an underlying autoimmune disease can cause fibromyalgia. Sent from my iPhone using the BariatricPal App
  5. Penni60

    Auto Immune Disease

    Lisa: http://www.nhlbi.nih.gov/health/public/lung/other/sarcoidosis/sarcoid.pdf Here is an article that describes Sarcoidosis and how it affects the body and what organs it can attack. In the article it does not mention the Gastrointestinal system as one of the systems it affects. On page 8 of the document it states: "Some organs are affected more often than others. Sarcoidosis occurs most often n the lungs. It also most commonly affects the skin, eyes, lymph nodes, and liver. Less commonly, it affects the spleen, brain, nerves, heart, tear glands, salivary glands, and bones and joints. Rarely, it affects other organs, such as the thyroid gland, breasts, kidneys, and male and female reproductive organs." I can only speculate that Lopez banded you knowing about your autoimmune disease thinking that it would not affect your recovery since it does not attack the G.I. system. Other autoimmune diseases would be a major concern in that respect. Again this is only speculation on my part. The person to ask of course is Dr. Lopez or your current doc. Hope this helped.
  6. Wheetsin

    SMMC LB support group chicas

    Searc here for a thread called "Things to ask your surgeon" or something like that. There's LOTS of really great suggestions on questions you might want to ask. I don't have autoimmune so I can't comment. Oh, BTW - I had pretty much made up my mind to do this, knew my insurance would cover it, and then got a job offer with another company that I couldn't refuse. I didn't let the operation stop me from taking it, so here's what I did: ASAP look over the insurance options you have (I had like 13 to choose from, it was a nightmare!) and write them down. Then search here and OH for insurance companies known to be "band friendly". (If the other options don't make it too attractive, in my case I could have just hopped on to DH's policy, which did NOT cover the band, but would have given me everything else and the measly amount I pay for insurance would have been sooo worth it for the band alone). Cross off the others, leaving me with 3 or 4 possibilities. Bring those back in to work and review the SPD for each looking for any exclusions around bariatrics, bariatric surgery, gastric banding, etc. One had an exclusion listed so I crossed it off, leaving me with 2 or 3 choices. Called my HR rep and asked if the company had bariatric exclusions on the policies for either of those carriers, found out they did not. Called a rep from each insurance company and asked them, specifically, if the lap-band was covered for my potential policy. (I had to ask about "adjustable gastric banding" or something, b/c "Lap-Band" isn't in their literature). So in the end I had 2 or 3 choices that I was 95% sure would pay for it, so then I picked my policy based on the overall features I preferred, out of pocket for surgical costs, etc. So changing jobs didn't impact me in the slightest. This was all in June of last year, and I went to my seminar in November. The one caveat I'll add is that the company I'm at is huge, so I felt confident that I'd have my choice of carriers. If I had been going to a small place, I may have done things differently, so that I didn't end up going some place only to find out they only offered 1 policy and it didn't cover WLS. And we had the means to pay out of pocket, too, as a back-up plan so it didn't "matter" if insurance covered it or not, but heck - that little bit of work & research was SOOO worth $16k. Hope this helps.
  7. Just wanted to introduce myself. I am now the proud owner of a " sleeve". My surgeon Dr. Anthony Maffei did a wonderful job!! It's an exciting journey each day...and also tiring I can't wait until next week when I can have a soft Protein. It's so worth it, after only 1 week I lost 10 pounds!!!!!!! It is taking adjustment but my daughter had it when she was 28 , she's two years out amd her entire life changed around....so she is my role model:) she tells me how proud she is of me ...I have had a lot of health issues including autoimmune disease....I know that won't go away but I will have a healthier body to take anything on...this was an early birthday gift to myself. ???? Surgery was February 17 ...Wed....I will cherish Starting weight 308 Pre op dieting and surgery weight loss to date ...286!!! I'm happy to have found this support group!
  8. Bufflehead

    Sleeve vs. Bypass

    I have a personal and family history of autoimmune disease that would make it difficult to get the right meds after bypass (prednisone etc.). I also hate the idea of cutting out and rearranging my intestines. I know that removing most of your stomach is also drastic and unnatural but the intestinal chop-job and reroute is more than I want to inflict on my body. Lesser considerations: struggling to get adequate vitamins for the rest of your life with the bypass, strong possibility that you will have to completely give up several types of food and not even taste them again (asparagus, steak, bread, sweets -- I have read that all of these can cause major distress to people with bypass), greater risk of surgical complications with the bypass, stronger possibility of lingering unpleasant digestive problems with the bypass (gas, diarrhea, vomiting), the idea of a blind, inaccessible portion of your stomach floating around and possibly getting cancerous with no way to scope it and see what's going on, and the fact that the few people I know who have had the bypass did well with their weight loss but struggled with energy and health after. This is a sleeve board so likely you will get lots of people singing the praises of the sleeve and explaining the downsides (as we see them) to the bypass -- make sure you get lots of good info from all different kinds of sources before you make your decision. Good luck to you!
  9. extraonme

    Do I need a lawyer?

    Thank you all for the info. I went to the surgeon 1. for my first fill and 2. to discuss the liver biopsy results. The fill went perfect. Totally uneventful as she numbed me and I couldn't feel a thing. Also, I did discuss the biopsy results with the surgeon who did see my liver etc as BestyB suggested which was great! He assured me there was no mix up with the labs, however he has no explanation why the Path Labs came back with Low grade chronic hepatitis. ALL test results he reviewed with me all came back negative, viral, autoimmune and LFT's were normal, no fatty liver no cirrhosis etc....so he said he would call the Gastroenterologist and speak with him as well as a team they meet with monthly to discuss "special" cases. THANK YOU MrsFitand42 you are correct I was not looking at all to SUE anyone as redone tried to say in that post. I was merely looking to mitigate a 48 thousand dollar hospital stay as well as additional costs for MORE liver testing. I am satisfied totally and thrilled with my fill and Dr. I never had issues with them it was the hospital. BetsyB, they said a room was not clean so by the time I got to the room it was too late to evaluate me before I could leave. I will call the hospital to discuss, but fear I am stuck paying. THANKS ALL!
  10. thank you justarose, initially my lapband surgeon was extremely leary in doing the surgery - till he had a conversation w/my gastro. i have been off meds since surgery in 1996, and i may have had 2-3 flair ups a yr. since it's an autoimmune disease affecting the ileum, bowels, & digestion - banding doesn't sound like a "good fit". i'm pretty cautious of any "tummy" issues and honestly i've not had any negative issues since being banded. i'm guessing this would be a case by case issue - but by all means, it's worth a shot at getting a consult. sorry about the insurance!!
  11. leatha_g

    sad/overweight

    You just don't know until you get to see a band surgeon. The liver is very close to where they will be working, both with the lapband or gastric bypass. They may want you to go on a pretty strict diet immediately prior to the surgery to help 'shrink' the liver and get it in a healthy state. This makes your surgery much less risky. As far as health concerns. I have had several episodes of DVT(deep vein thrombosis - blood clots in the extremeties) and one episode of Pulmonary Embolism (blood clot in the lung). I also have Systemic Lupus which is a chronic autoimmune disease. Luckily, I don't have severe symptoms with that, but it's always a concern. You can go from healthy to dying before you can blink an eye, so I hear. I was the first ever to have a vena cava filter implanted at the same time as I had my lapband done in order to prevent any possible clots from moving to my heart or head or lungs. I was turned down by the first doctor I chose because he didn't want to take the risks with my health concerns and the fact that I had to take blood thinning drugs for the rest of my life. Luckily, I did find someone who had already banded someone else with the exact same problems as me and my surgery was successful. Will I ever have complications due to these issues? Maybe. Will I be better off having lost my excess weight if I do? You betcha! We can only live for today, right? Today, I choose to be banded and to fight the good fight where my health is concerned. Tomorrow, I may have to change my focus. Good luck!
  12. NewBeginnings2018

    Massachusetts Bandsters Chat

    Hi Seminole, Mayflower and Tess! Welcome to the post! Seiminole - you seem to be doing great! Keep up the good work. Mayflower - sorry to hear about the autoimmune disease. That is tough. Steroids do wreak havoc on your body. But keep at it. You'll get there! Tess - I'm only a few days out but I can already see that this is not going to be a walk in the park. You've done great so far and are only 30lbs from goal. You can do it!!
  13. Hi everybody. I'm new to the website so I thought I'd say hi to introduce myself. I was banded in January 2004 and had a lot of success. I lost 65 pounds in the first year. Then, last year I came down with aseptic meningitis and was VERY ill for months. Not only did I get meningitis, but I also came down with pneumonia and several other bacterial infections at the same time too. I was completely bed-ridden for three months (due to dizziness, vertigo and weakness). My doctors were concerned that I wasn't eating enough and had me increase my calories using juice and other high calorie, easy to eat foods. My weight started creeping back on during this time. No surprise - I was eating more and not working out AT ALL (I used to work out 4-5 hours a week). Anyway, long story short, I've continued to suffer from weird symptoms over the past year. I get bad headaches, dizziness, vertigo, weakness and persistent fevers. It seems I might be having recurrent meningitis, and my doctors don't know why. I saw a rheumatologist who said that my symptoms seemed similar to an autoimmune disease, but that I didn't have an autoimmune disease (not enough evidence - mostly normal blood work). She said some autoimmune diseases can cause meningitis (like lupus), but she said there was no evidence of lupus in me. She said that my symptoms seemed more like a foreign body reaction. I told her I had a LapBand, and she was concerned. She was worried that I might be having a weird reaction to the band. I spoke with my surgeon who said there has only been one case of a person having an allergic reaction to the band, but the patient presented with very different symptoms (she had a weird rash). My one worry is that I have a lot of allergies, including allergies to metal. I was assured at banding that titanium is not reactive in humans, but I've heard conflicting reports since. I'm even allergic to stainless steel (I can't wear stainless steel earrings). I recently found out that in addition to the titanium in the band, the band also contains stainless steel in the form of a connector in the port tubing. Could I be allergic to the band? And could this be causing my meningitis? Despite my surgeon's doubts, she felt the band should come out just in case. So I ended having the band removed last Tuesday (May 9th). It's too early to tell if this is the cause of my symptoms. I really hope this helps - but who knows. I'm freaking out now though, over the past year I've gained back all of my weight plus 5 (I'm up 70 pounds). I feel pretty empowered though. I was able to gain and lose all of this weight WITH the band. It really shows me that it was all of my hard work that made me lose weight, and not just the band. I know when I get better, I'll be able to lose the weight again. I'm just not that worried right now - my health is my current concern. I'm wondering if anyone has heard of people having a foreign body reaction to the band or similar complications. I know the manufacturers warn of this in their brochures, but I'm pretty sure this is to cover their @$$#$. I'm feeling pretty alone (if there is only one other person with this complication). I'd love to hear from some of you that have had band complications and removal and who have decided not to have further WLS. JennyJ 298/302/175 banded 1/04 298 - 1/2004 230 - 3/2005 band removed 5/06 302 - 5/2006
  14. DELETE THIS ACCOUNT!

    Rheumatoid Arthritis and Lapband anone?

    Per the Allergan website, there is NO warnings or contradictions for people with RA or MS. It is NOT all autoimmune diseases that have a problem with the band, in fact it's only a very small number of them: "You or someone in your family has an autoimmune connective tissue disease, such as systemic lupus erythematosus or scleroderma. The same is true if you have symptoms of one of these diseases." Here's the original text: https://www.lapband.com/learn-about-lapband/lapband-is-for-you
  15. There's an autoimmune thread on this forum and the posters to that thread may be able to help as well.
  16. naenaern777

    Gluten Intolerant and Sleeve, Anyone have and advice?

    My daughter is celiac and I have 3 autoimmunes myself. It is amazing at the things that contain wheat you would never think. Like you can't lick envelopes and certain toothpastes. I buy the gluten free bisquick also and we like that. Walmart carries a ton more gluten free products. I will say for us it was trial and error with consistency and taste. Not everything you make tastes good. When baking you will have to try and see what tastes best to you. Gluten free is definitely a lot less moist usually. It took us years to find bread she would eat but schar makes a good bread but she always toasts it. As far as food you can make almost any meal gluten free pretty easily now a days. Feel free to ask any questions you need to.
  17. It's an autoimmune disease that hypothyroidism is associated with. The other thing is - Biotin can increase TSH levels. Sent from my KFFOWI using the BariatricPal App
  18. I♡BypassedMyPhatAss♡

    VSG to RNY - Not excited

    Yeah same here, it was still newish. And I wasn't crazy about having part of my stomach sent to the incinerator. And I was against RNY for years because I didn't think I would be a candidate for it due to autoimmune disease, but now my Rheumy says oh no go for it. So I'm diving in head first soon.
  19. Globetrotter

    How was your 5:2 day today?

    Say what now?!! Not private? Mer. I had the worst 5:2 day yesterday, after getting yet another scare about my taxes. I closed the day at 630 cals and then out of nowhere, like a zombie, I found myself walking to the office at 10 at night in the freezing cold, where I filled a bowl with girl scout lemon scone cookies and roasted salted pistachios. v_v WTF?!! The cookies, I had about 7 of them, were probably 800 calories. I know why I did it, I KNOW. I was self-medicating. Now that I have been learning so much about autoimmune disease etc. I have discovered that, for some people, certain carbohydrates act in the brain as opiods, quite literally drugging the person, leaving them overly calm, woozy, sedated. I fell under the weight of my fears and anxieties and tastebuds. shoot. Laura - that book, She's Come Undone, did a number on me. I read it some 10-15 years ago and it both disturbed and comforted me, but mostly disturbed me I think because of how much it resonated with me. When at the time I told my Mother how much I identified with the character, my Mother looked at me sharply, said what?! and I shut up. Didn't want to get in trouble... My ipod is stuck on shuffle, my tablet is going wonky, my electric kettle is on the fritz. Coops and CGJane - yes something must happen with 5:2, or with any drastic change in diet. I have been on my Wahl's Protocol in the 5:2 manner for almost 7 weeks and I have my period twice a month now, with mega symptoms, and the rest of the month is spent spotting :/ I'm so afraid of going through menopause early, my Grandmother had a hysterectomy by the time she was my age. I have an IUD, the Mirena, and it wasn't until it was inserted that I discovered that I have a septuate uterus, which sucks. I don't know if the Mirena hormones are keeping me in estrogen, or making things worse. All I know is that I have to pluck my chin every week (!!!!!!!!!) and my periods are fucked up. I don't want to give up the dream of having children naturally. Not that, too. please....
  20. Globetrotter

    How was your 5:2 day today?

    Sleeve Plication solved the acid issue, but good luck finding anyone who will do one on you, or getting insurance to cover it! My acid is awful, I cannot ever miss a dose of prevacid. Going to see an endocrinologist to see if something else is going on that would explain my slow/nonexistent weight loss. Saw my neuro this morning, got blood drawn to check levels of B, D, and a full thyroid panel, she also got me a referral for PT. So, all good things. I'm disappointed that my photos from my big Italy trip are going to show a fat woman Am receiving some pretty contrary information regarding diet and MS, it is accepted fact that MS is not just an autoimmune disorder but probably a metabolic disorder. There are two major diets and a bunch of anecdotal ones. The two significant diets, that have been researched and put into effect by Doctors and scientific method and academic rigor, are the Wahls Protocol and the Swank diet. BUT, here's the problem - The Wahls diet advocates for the nutrition found in clean animal products (no grain, no GMO, organic, no hormones, etc etc), Dr Wahls is a huge proponent of bone broth, organ meats, raw milk, no grains, lots of good fats. Whereas the Swank diet says exactly the OPPOSITE! No red meat, lots of grains, no animal fats OR coconut oil. The Swank diet is basically like those vampires from the Twilight books, it may keep you alive, but you'll never really enjoy a meal again. You can only have white fish, olive or flaxseed oil, a couple of nut varieties, most veggies and a little fruit. Oh and tons of grain. wtf.... Well, I personally can't have grains because they make me feel awful, so that means that I would have to have a piece of broiled whitefish with olive oil, some roasted veggies also in olive oil, a small apple and that's it. Now, that sounds perfectly delicious, but not for every meal, every day, forEVER. No chocolate, no coconut milk or coconut ANYTHING, no red meat (including pork and all sausages), no other fats like avocadoes or cashews.... this sux. And I am quite emotional about beginning my treatment, with the disease modifying drug. There are no support networks for MS patients who start DMD, like there are for cancer patients who start chemo.
  21. Looking for other people with lupus or autoimmune diseases so swap stories with

  22. Hi everyone, I have been thinking of getting lap band on and off for a while, but have always been too nervous. I have autoimmune hepatitis and the combo of steroids/imuran has caused me to gain about 60 lbs in the last 3 years. I am off steroids but will have to continue my other medications for who knows how long and after all efforts on my own, I do not think I can do this without help. Finally after being told by 2 different dr's of mine that it is something I should really consider I went and meet with Dr. Luckey of Scales in Thousand Oaks. He was very nice and I have the first group meeting on Tuesday. I am still very nervous about having surgery and hope that I get insurance coverage (I do have bariatric coverage but I need the pre-service review). I am very glad that there is this board available.
  23. DELETE THIS ACCOUNT!

    Thinking Of Lapband, But Auto Immune

    I have an autoimmune disease, Multiple Sclerosis, but I don't have issue rejecting foreign bodies.
  24. hi all, i am pre-surgery, just starting out in this process... i originally wanted to have a lapband done, but i have an auto-immune problem where my body rejects foreign objects inside it... any ideas?? i am thinking gastric bypass might be where i end up, but i was wondering if anyone on here has had the lapband done and also had any autoimmune issues.. i am on humira and methotrexate for rheumatoid arthritis and psoriasis.. anyone have any ideas?? thanks!!
  25. Butterflywarrior

    I'll be getting sleeved!

    Me too!! I hear that these surgeries tend to reset autoimmune disease too well calm the inflammatory factors..tgey dobt know entirely why...I've read this before but last week my rheumatologist brought it up too

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