TracyinKS

I am soooo sleepy YAWN

The Dr. at Yale answered me back! Dear Ms. Wilkerson, Thank you for the feedback, and I am happy for any role my article has played in helping with your mother's condition. Please give my regards to Dr. Aires who, as s a Yale medical student, completed his thesis in my laboratory. Kind regards, Dr. Girardi How classy is that!

Postradiation morphea (correct spelling) I can not believe the doctor spelled wrong to me... but thanks to you all.... I did a google search and came across the Johns Hopkins Breast Cancer forum where it was asked about ONCE! 2 years ago! Q: I have been diagnosed with postradiation morphea, an side effect of radiation after a lumpectomy 13 years ago. I have been to a dozen doctors and what I get is "out of my expertise" "never seen anything like it" and just plain "i don't know". My breast is completely encompased by this morphea and it cause pain 90% of the time. It is warm to the touch, but has sensations of cold and wetness.I am told I am "one in a million" and now they are talking a masectomy as my only option. Any Thoughts? I am frustrated to the point of screaming. A: consider coming here for consultation about this. call 443-287-2778. let's see what our experts think. Also, I emailed that guy from Yale who authored the paper you mentioned Laura... for all we know mom might be someone they want to look at.

Thanks Judy for that link! I did weigh in at 179 today........ still gotta get back to 176 and beyond.

OK......... so if ANY of you find info on POST RADIATION MORFIA, I would love a link! How it was explained by the head of hemotology, and the other doc and the KU medical student....... this tissue that has been exposed to radiation is trying to regenerate, and in fact it is OVERdoing it which is why it is SO tough. It is creating more cells and not being allowed to expand.. so in effect it is OVERregenerating. The sterioids and cream are meant to Thin out the affected area. This is uncommon and rare because it generally doesn't show itself for 6-12 years post radiation. (So when it was only Mom, The Student and Myself in the room) I got into a conversation with the student telling him that he will most likely see a lot more of this in his career because so many more peole are SURVIVING cancer after radiation, and that I thought it was so rare because alot of past cancer survivors don't make it to the 6-12 year mark. Later, when I was trying to calm mom down in the car I told her that she most likely affected that young doctor for the rest of his life and in his future practice..... She goes back in 3.5 weeks for more injections and to see if it did any good. If this doesn't work, she might be headed toward a masectomy, but we are not going there right now.

Mom has: Post Radiation Morfia First attempt at treatment will be injected steroids down deep into the tissue, and also a topical cream. They started the very painful injections today. Mom and I were not prepared (me mentaly, her physically) It was really hard... I tried to be strong and the tough one while she was screaming and flinching and telling them to stop.... it really got me and I nearly passed out.... SERIOUSLY..... I got queezy and a black fog started closing in on me until all I had left was a little pin hole sized bit of light and room......... before it totally closed I told the medical student that I was going to pass out and I started walking toward a chair.. I only had a pin hole sized view so I ran into him and the table and then the chair, I then put my head between my legs and took deep breaths until the fog started separating......... I was mentally forcing myself NOT to pass out...... it was the weirdest thing that has ever happened to me... I doubt I will ever forget it.... I was also sweating..... the entire time I was like.. SHAKE IT OFF TRACY YOU HAVE TO BE STRONG FOR MOM....... So anyway............. post radiation morfia....... not a lot of documentation on it. I will explain more later.......... I'm tired now.

still waiting........ I am so bored.... so Laura, hows the online classes going? I'm looking into that right now.. whats your take on it?

OK... so I have found that I CAN eat chicken fried steak.... tell me again why I SHOULDN'T!!!!!!! LOL

I'm sitting in my moms home office pecking on her puter waiting for her to get off work so we can go to the appointment..... I want to try those tomatoe things... Kat: you crack me up... my house is a mess but sitting here in my moms SPOTLESS house makes me wish I could be like pammy and hire someone to clean it! Oh.. got the ol hairy beasts above my eyes waxed today... (it is sooooo worth having it done) I think I'm getting to be high maintenance! :cursing:

Really evaluate how much and how fast you are eating... but I was too tight for a long time... a slight unfill made all the difference in the world...... .3cc was the difference from only being able to sip soup, and eat food.

Woot woot!!!!!!

Banded 4/27/2007, last fill November 2007, two unfils since.. first unfil was .3 cc in January 2008, and last unfill was .4cc July 2008. I have the small band that is marketed to hold 4 cc's.. I've had as much as 4.3cc's and now I'm just over 3cc's. I LOVE MY BAND!

Good morning............... so the issue with my moms boobs is not over yet. NOT RA, but some uncommon reaction to radiation that usually shows itself 6-12 year aFTER exposure... has a long name that I will find out later today when I go to the doc with her. Apparently its pretty rare and there aren't a bunch of documented cases BUT the dermatologist at the Cancer institute has seen it and treated it before, so he squeezed her in today before his 2 week vacation. 180.2 today........ Have a great great great day.

GOOOOOOOOOOOOOO ARMY!!!!!!!!! :w00t: just got back from Cody's scout "Court of Honor" had to leave early to get Robby to bed. I pb'd in the bathroom ... fun fun.. Pamela: HAIR PICS PLEASE (sounds like my same cut) Everyone: Have a great night... OH and big news.. DH shaved (kind of) he shaped up and trimmed his facial growth.... THANK YOU JESUS... Did it for the dinner tonight I'm sure... and I looked cute as ever.. with my new perky hair and size 10 levis..... I'm bloated but cute! :cool2:

HOLY CRAP Judy!!!!!!! That's a tough one, and quite frankly this might be sick.. but ya'll problems are making ME FEEL BETTER AbOUT MINE.... I guess I'm not alone, and neither are you guys... (my point) We will get through this, we will live our lives, we will deal with the crap that life doles out and we will relish the first days of school, and the first born babies....... we will get through second generation parenting, and the first generation of problem children.... and in all of that we will realize that we are a great group of friends that yes, live in our computers but also in our hearts, and best of all we will affect the lives of others while improving our own........ (geesh... where did that come from?)

ummmmmmmmm I just ate left over chicken fried steak and mashed taters...... WIERD WEIRD WEIRD! Michelle, my heart breaks for you... seriously I can relate.. except my angst is not so "under the surface". I think you SHOULD take some time for you and maybe a few sessions with a counselor.. you know if DH's company has EAP, you could call and get free sessions and not even DH has to know.... (ours is good for ALL members of the family) I had a few to many drinkee poo's yesterday at my sisters house and pretty much told everyone my issues....... not so pretty... (and one of the reasons I ate 3 pc's of dq ice cream cake) Oh well........ live and learn.

Good morning! I am here..... I just didn't check the thread over the weekend because I didn't want anyone seeing the bama thread by accident! Also, two birthday parties, with just Robby and I on the go.... I did just check flights and Continental is giving me $287.. is AA is in danger here.. but I don't know if Continental is on the brink or what ... Right now, I could get a flight that arrives 12:47 p.m. Thursday. We are selling our camper, I put it on craigslist and have people coming to buy it tonight. (they looked at it Saturday) CROSS FINGERS! My sister is at an all time high today 166 lbs.......... she just subscribed to Diet for Dummies.. she starts today. What else... Kat CONGRATS!!!!!!!!!!!!!!!!!!! Denise: HUGS band twin!!!!!!!!!! BIG HUGE HUGS! Suzie: Hang tough! Everyone: Ok.. gotta go for now................. Have a great great day OH.. I was 181.4 today.......... gotta get on some kind of plan that does NOT include DQ

for a thursday check in?

yes yes I'm coming in on Thursday! I will most like book next week...

Ok... so I still can not eat a lean cuisine pizza......... OMG the pain! the pb'ng that will not quit.......... and yes, I shoved it in my mouth to fast to boot

Suzie: Sniff Sniff!!!!! dang it girl that bums me out.

Good Morning!!!! I attended my first PTA meeting last night and it was really low key. I introduced myself as "fresh meat" and everyone laughed. Seriously, there were 3 new parents and the core group was SO happy to see us they were falling all over themselves with gratitude. I am signed up to help with picture day. I did not weight this morning because I gave in to the DQ demon.

Forearm Blizzard! LOL!!!!!!!!!! Seriously this unfill has taken a huge toll on me.. I feel like I could actually EAT a big juicy grease laden cheeseburger WITH bun! I haven't tried................. yet. Who would of thought a mere .4cc could open me up this much! I was 180 this morning

Hello ladies I wanted to pop in here and thank Tonya for always coming through with KUDOS for me! THANKS! I had a slight unfill about a month ago .4cc and it has REALLY losened up over the last week... WIERD! I feel like I could eat a hamburger w/bun (haven't tried because I don't want to know) but I am eating way more than I have been able to. I don't like being hungry! However, and I can't remember the last PB or Heartburn ......... I had hit 176 but since Sturgis, Have been fighting the scale around 180. Well anyway... Keep it up girls we are in the toughest part.. maintaining and getting to goal.

I want DQ right now I'm about ready to chew off my arm!