Clueless_girl

Thank you for the detailed information! I do take some of the medications you listed, tried flavoring my water too. I dodn't know that dehydration could make nausea worse though. I felt fine in the hospital and was able to eat more, but as soon as I left the pain and intense nausea returned. I now have body aches to boot. So i was thinking that hydration and sleep should be my priorites at this point, maybe if i get those fixed i can eat more and feel better? I'm switching from water to electrolytes so add taste and electrolytes. I really don't want to rely on protein shakes bc I'd like to be able to eat with my family at some point in the next few months, even if it is just a little bit. Also be be able to go a long walk without feeling like collapsing from fatigue would be nice too. What is a TPN?

I'm 6wks out now and I still have nausea and stomach pain everyday. I can do maybe 24oz of water/gatorade zero a day at most. The nausea isn't limited to food, it affects my water and vitamins too. The most I've been able to eat at 1 time is 1.5 greek yogurt cups, the least is like 3 small bites of food the entire day. I'm back in the hospital because my potassium was critically low, they checked to see if my gallbladder was the issue and it's not. They did say recovery is different for everyone but that it is still abnormal that I am having this much trouble eating. It's especially weird bc other than the pain and nausea I feel okay, despite how low my labs have been at each followup. I guess I was too ambitious in trying to hit water, protein, and vitamin goals all at once. But of the 3 you'd say hydration should be the priority over vitamins? I wish someone had tips on how to deal with the stomach pain. I am taking gas x, hyoscyamine, omeprazole, and ondansetron religiously at least 2 times a day. Not to mention reheating a hot water bottle during the day and sleeping with it at night. All of that just so I can get out of bed and walk around.

I had the modified ds and it said pretty much stop eating after 30 mins or you're grazing? But it feels like 30 mins is too fast for me bc i get that feeling you're describing happens even if I've had maybe less than .5oz of anything. I'm 6 wks out from surgery too. Idk if I have gotten the "full" signal yet, just pain or nausea..

Can you describe what the pain was like and where it was? I have had problems with abdominal pain forever and I had really bad pain after my surgery and recovery. I have always taken small bites and I'm a slow eater in general. The doctors said to take 30 minutes to eat and no more, which I have been doing, but I have had pain after eating and even before (not to mention nausea). But today I took about an hour to eat some chicken and I think, fingers crossed, I am okay. Maybe my bites are too small though?

I've had insomnia forever and was on ambien before the surgery. I am a night owl and a grad student so I can go to sleep at 6am and be up sometime after 2pm. But even with ambien and benadryl, I'm lucky if I fall asleep after 10am. Yesterday was worse because I only slept for 2 hours. But I'm not tired at all. Does sleep get better? I'm only 3 weeks out.

I feel awful that you all went through this, but thankful at the same time because now I know I'm not alone. Please tell me if went away after a few weeks! I was so happy to be able to progress to the soft food diet, only to go back to liquids after a few days because the idea of eating made me sick. You'd think I'd be able to hit my fluid goals at least but the closest I've gotten is 48 ounces.

So the pain, discomfort and nausea will last a whole month? I have tried all of the meds the surgeons prescribed for those issues and I have to take them religiously everyday for some relief. But I am just now into my 3rd week. Sometimes it happens in the evenings, sometimes it's all day. I even sleep with a hot water bottle to ease the pain. I got the go ahead to go onto the soft diet, but after a few days, the liquid diet is easier to stomach. I don't think I've hit my protein and water goals once...

I have the worst luck, of course I'd be part of the 5% lol. I just had my post-op appt so it'll be a bit before I get my labs done. But if the pain and nausea usually go away after week 4, I guess I'll do my best to stick it out. Thank you!

I final got to move onto the soft food diet, but after eating a small amount of food for 3 days, I went back to liquids because the idea of food makes me sick. I have had an issue with pain and nausea since I was in the hospital and it continued at home, does this go away? I'm going into my 3rd week and I don't think I have ever made my protein and water goals..

Please tell me the nausea went after after the 4th week? I just had the MDS on 1/2/24 and I have had pain and nausea since I was in the hospital and it's happens just about every day at different times. I just got moved to the soft food diet and after having some food for 3 days, I could only stomach liquids today. I have been sleeping with a hot water bottle, along with meds, to deal with the pain. Since I'm not even into week 3, I am trying not to overreact/panic but I am definitely not meeting protein and liquid goals...