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I am 19 years post op DS with DR Rabkin . I need help with issues I am having at present . Secondary Hyperparathyroidism. Do I need to have a endocrinologist to handle this? My hematologist suggested this since he follows my Iron and gives me the IV iron which works great. Also what is the best osteoporosis med to take?? I am on Prolia which is expensive and my primary care Dr ordered it. I was 264lbs pre DS and am 156 now. I do have dental issues, and autoimmunine issues (may not be DS related) Is there any other long term DS patients out there????

Thank you for your suggestion. I have names of several endocrinologists. Issue is many are booked way ahead. I am having symptoms I am concerned about and hope I can get in to one that is a good one. So many are not good Do you know anyone that has Secondary hyperparathyroidism? I had the DS which is worse for issues I think. Especially since it is so long ago. My fatique and mental issues with it are concerning, and I have recently had huge stressor with my husband having heart bypass and aortic valve surgery October 3 and he just got transferred to cardiac rehab. He had serious issues post surgery and I had a hard time not internalizing all the pain , confusion, etc he has had. Thanks Jackie

I am 19 yrs post DS surgery with Dr Rabkin . I have recently been diagnosed with secondary hyperparathyroidism and wanted to know if I should see a endocrinologist? I have recently contacted PacificLap to do a consult about this. I have joined the DS forum also I do have dental issues of osteoporiasis, , autoimmune issues (some may not be related to DS surgery) I am a retired RNMS and enjoy gardening, dogs, birding , book clubs, anything science, and nature