Nellie D Perron

I had a failed lap band, and decided to get a gastric sleeve. I suffer from Cyclic vomiting Syndrome.It is an uncommon disorder, many doctors know little about it. There are 4 people on my CVS support group who had bariatric surgery and now their episodes are out of control. Two of them went from episodes once a month to daily, and are now in wheelchairs due to malnutrition.I asked my surgeon, but he didn't say there were increased complications with CVS and gastric surgery.I cannot find any info out there, but there aren't many of us CVSers who are obese. Does anyone know ANYTHING about this topic?

There were a couple of people who had sleeve, a few who were Bypass.All have said the are now vomiting almost daily since the procedures. One has quoted Dr. Nowzarden from 600lb Life as saying no one with CVS should ever undergo gastric surgery where they are cutting the stomach organ. This is hearsay, but I am thinking I need to do more research and pass up the surgery date for the immediate future.Since i can't find any clinical research, and the only people who have actual real life experience are the patients themselves, I am afraid to take a chance unless someone knowledgeable about CVS can say otherwise. I was just hoping for some positive experiences, but I don't think there are too many CVSers who are obese. Most are underweight.

Thank you for your reply. I have been unable to find a specialist in my area proficient in CVS management. As it is, it took 12 years and 10 GI doctors and got nowhere. My GI doc now is willing to try the suggestions I get from the cvs group, but does not have alot of knowledge on his own about it. It is very uncommon.It was a good idea, just wish i had a doctor who would actually know to ask.