Sorry my iPad gave up. At the moment it is called Leptin Receptor Defiency, I say moment as it has not been given a proper name as it is so rare. It means I can store fat really well, but can't get it out of the fat cells to use for energy, exercise for me is useless. I live in permanent starvation mode, I'm always hunger, it feels like I have a voice in my head saying eat now or you will die. Before my gastric band as I said I did not know what it meant to be full, I could eat till I felt stuffed, but 20 mins later I could eat again. After banding I am now aware of what full means, but with the band if I ate too much I could get rid of it. With the sleeve I can't.
There is an element of ranting but only because I have no one to talk to with my symptoms, as I said my elder sister has it to the extent I have. There has to be more people in the world with this disorder, but getting doctors to believe you and send your blood for testing is difficult. I have tried most things in dieting, had my jaws wired together to prove to one doctor that if I lose weight it will not be from my lower half, I was right.
Also I tried liposuction twice but all they could get was 2.2lbs each time, they then discovered that I have muscle fibre running through my fat which is what stopped the liposuction. I have had fat removed from my thighs, hips and bat wings. I found a great plastic surgeon who asked me what would change my life, I said my hips and arms which he did, really difficult for him as there was no one with my condition that had had surgery, a trend setter.
The surgery was not without problems but I am now healed and feeling a lot more at ease with myself. But I now have to wear compression garments on both legs and arms as my lymphatic system is crap. If there is someone out there with my rare condition I would really like to contact them also to help other people who may now feel that they have my condition.