Luna222

@@amylynns that's crazy! I know you mentioned the methotrexate before and I meant to ask you if it was for RA. You know, I am actually wondering if I am in the same boat. When I was first diagnosed, my factor was borderline. I had started on celebrex, mobic, stuff like that. I was only 16, so my mom was very hesitant to let the dr give me plaquenil and the like. So I never took it. I got a little better around 19/20 yrs old and then I got into a very bad relationship and needless to say, I didn't ever go to the drs out of fear and shame. That ended, I got my ducks in a row and went to this current Dr. He says that it's not actually RA, but it is very close and he isn't quite sure yet what it is. So he treats it as RA. Which I don't like. I know it is some sort of inflammatory something, because my knee fills with Fluid so bad that I can't walk. I had it drained yesterday and omg, I ran down the stairs today lol. But, the fact that he's not really testing and researching worries me. It's like he's just trying all these meds like I'm some sort of test subject. I took myself off of plaquenil, and my primary applauded that. He's trying to get me back on it! Right now I am not on anything for my "RA", except for just starting back up on taking turmeric and ginger. I don't like taking prescription meds, I have a weak tummy as it is. I'm curious to know what oils you use for pain?? I am an esthetician, and I'm starting to read up on them. My mom and I just got as membership for do-terra, and I have to order something by the 15th to get my discount lol. I've been trying peppermint oil for the constipation, omg it works! I just left the dr from the liver ultrasound, hopefully I'll get results soon! On another note...does anyone know if fluid in your knees can cause you to weigh more??? I gained last week, and that's when my knee started filling more. I was 228 yesterday before he drained me. This morning I was 225....so happy to see that number go down finally!

@@joankrie , no I live in upstate NY. It's very frustrating because my primary dr called around a few months ago and the only dr in the area that is taking new patients won't see me because she saw me um...17 yrs ago, she's the one that diagnosed me. Wth? I'm going to call my insurance company tomorrow and see if I can see someone an hr away where my bf lives. I need someone that will care about the fact that I can't have nsaids. This guy was like "all meds can cause bleeding and ulcers, nsaids are no different" I said uh well I just had STOMACH SURGERY, MY SURGEON said noooo ndaids. That's when he went on his little rant, saying my surgeon doesn't know what she's talking about. This man has had me on NINE different meds this yr for my RA. Most were nsaids, That didn't even work for me. He has not done any tests, xrays, mri, blood work, nerve tests, nothing at all this yr. I left the office and just sat in my car and had a nice long cry. Sometimes it's just necessary :-/ As far as the liver thing, I am not sure what meds cause elevated enzymes, but right now the only meds I am on are the omeprazole, colace, and ortho tri cyclen lo.

Thank you @@filmgal ...I'm going for my liver ultrasound in the morning, going to wait and see how that comes out and then go from there...hopefully something gives!

Omg that looks like it hurts! I had a newbie that drew blood yesterday and I'm all bruised too...not that bad tho! I'm sooooo beyond frustrated right now, I just left my rheumatologist, and he pretty much said that if I can't take anything he wants to prescribe then he's going to have to just turn me over to my surgeon to take care of my arthritis and wash his hands of me. Seriously???? I wish to god there was another rheumatologist in my area that I could see. The only other one that is taking new patients refuses to see me because "I saw her when I was a teenager". I don't know what to do....so because he is a jerk, I just have to deal with this pain on my own for the rest of my life? It just really sucks

Thanks @@joankrie ! It is so frustrating...I can't possibly survive on ice pops lol. @@amylynns that's awesome! I'm glad the upper gi and whatnot was all clear. I was told to try a little toast too, and omg it was heaven lol. A little bit of egg and a little bit of turkey bacon on it and I was happy. It's all the other stuff tho that's just not making me feel good at all. I'm so glad you all understand, cuz even my boyfriend and my best friend are starting to get on my nerves. They get mad at me and act like they know what I SHOULD be eating, and I'm like wth, I CAN'T! My primary was so upset yesterday that my surgeon doesn't check bloods til 3 months, so she had that done. This morning I got a call that she wants me to go in asap for an ultrasound of my liver because my liver function is extremely high since my surgery. Hopefully it is ok :-/ Maybe that is why I'm always nauseous. Who knows. Blehhhh

@@Bronxmerci Please go to the ER! I hope you are ok!

I'm so sick of feeling sick it's like my tummy doesn't agree with anything substantial. I had some homemade turkey soup the other day and I was so nauseous. I had a boneless pork chop and got nauseous. Today I had some chicken sausage with peppers and onions and I'm still feeling sick and nauseous 6 hrs later. Of course I was perfectly fine when I had a few m&ms, I was fine when I tried a snickerdoodle the other day. My mother in law made beef stew which was surprisingly fine in my belly, even the beef. The only thing my belly really wants tho is popsicles and grapes. On top of all that, I had my flu shot today and had 14 vials of blood drawn so my arm is killing me. I have severe pain in my knees from my RA. It just sux

I'm going thru my first bout with dumping right now! It hurts so bad, I don't know how to get thru it I had a little bit of sugar free pudding with a little spoonful of sugar free cool whip on top, and 20 min later I was feeling cramps...it subsided and I ended up falling asleep but I just woke up with wicked pain right in the middle of my belly....have the shakes and sweats, my heart is pounding, I threw up a little but and had a little of the diarrhea.....omg has anyone ever had this from sugar free pudding???

And honestly, there really isn't a whole lot to do to avoid it. You just have to take chances and learn what your pouch likes now. I had the sugar free pudding and cool whip on my list from the doctor and I got dumping. Yet, I ate a chocolate covered strawberry the other day and I was totally fine. it's definitely a learning experience

I had my first and so far only dumping when I was about a week out. I am 4 weeks now and man it feels like it's been forever lol. so here's my breakdown of how it affected me. I had a couple tablespoons of instant sugar free chocolate pudding and a tiny bit of sugar free cool whip on top. I was really enjoying it after drinking broth and water all week. All was fine. I was sitting up in bed 20 min later and I felt a little crampy..nothing horrible, but enough to make me lay down and hold my belly. I fell asleep for an hr, and I woke up doubled over in pain. It was right above my belly button, and felt like someone was twisting my insides. I sat up rocking myself back and forth, it hurt so bad. Then I started to sweat, then I got the shakes really bad. I couldn't tell if I had to use the toilet or puke...I went into the bathroom and dry heaved for about 10 min, then I had diarrhea...all the while I still had that twisting pain in the belly. I got up and tried walking around my house because I started to get chills along with everything else and then a sense of severe panic...it messes with chemicals in your brain so some people really feel like they are going to die...it lasted for about 2 hrs, and finally after some more sips of water and trying to calm myself I ended up falling asleep. The next day I felt better, but it was just an icky blah feeling all day, I didn't want to eat or drink anything but zero powerade. I can't even look at pudding now

October 28th

I've gained 5 lbs since last weekend! Dr told me at my follow up that it's normal to stall and normal to gain a pound or two...she said I wasn't eating enough. So now I'm on solids and I up what I'm eating, and I gain another THREE lbs since Wednesday? I'm soooo confused and sooo depressed now idk what else to do

Wow, 2 days?? When was your surgery and what did u have done? It could be a few different things besides dumping....I had 2 horrible days of pain and nausea because I hadn't moved my bowels in like 3 or 4 days...it was shortly after my surgery. It could be a stricture or a bowel twist?

Luckily I haven't dumped since, but that was so horrible! I have stayed away from the pudding and cool whip, but I do have a sugar free popsicle or a no sugar added Italian ice every night. Yesterday I had a few chocolate covered strawberries, made with regular milk chocolate and I was totally fine. I guess we just have to keep track of and learn what our new tummy likes

I have to say, it was definitely strange having such a small plate in front of me with such tiny portions. My aunt asked me later if I was still hungry, I said no...she was like omg I couldn't ever do it. People really don't GET that we have a little pouch and we CAN'T eat alot. It was also weird not wanting every dessert on the table lol. Red velvet cake?? 2 months ago I'd be all over that! But honestly all I wanted was the chocolate covered strawberries. I'm liking it!

So I think Thanksgiving was a success...I started the day with a headache and then I got super nauseous, but I went to my room, took a zofran and laid down..I was bummed cuz I really didn't think I'd be able to eat dinner. But luckily I was, I had some turkey, a tiny bit of stuffing to satisfy my craving lol, some of my low fat yummy veggie casserole, and some mashed potatoes but not too much. I didn't finish my little plate, I got full and stopped myself. No rolls even tho I wanted it so bad. Then I tried a chocolate covered strawberry and my pouch was fine, so I had a couple more a little while later. And for some reason, I was craving olives all day lol. Weird. I did get a little ahead of myself later on, I wasn't really thinking and I had some tostitos with velveeta and 2% milk, it's something my mom has always made that my family loves, and it was just out of habit that I ate a few...my tummy hurt soon after, like I had to use the bathroom kind of tummy ache. Live and learn tho right!?

I'm very happy and feeling soooo much better the last 2 days being on solids! My body must have been like wth do u keep giving me this mush for?? I ended up making a turkey burger on a flat out flat bread, ate half of it, it took forever lol, but I did it...I was craving some crunch so I had a few of the mini tostitos, chewed them up really good and omg it felt soooo good lol. Since tomorrow is thanksgiving, and I can eat more than pudding consistency, I made a blueberry cheesecake with Splenda and ff sour cream, light cream cheese, egg beaters...I can't wait to try it! I wanted to have something semi normal when everyone else is eating pie and cakes and cookies Also tried some crispy beet greens, my mom took them off the beets, sautéed them w some garlic and a little olive oil spray, let me tell u, AMAZING! I've also found my key to getting enough liquids. I used to love water, but lately it bothers me unless it is ice cold...so I've been drinking crystal light fruit punch, and cranberry pomegranate. Yayy! I hope you all have a wonderful Thanksgiving!

@@Bronxmerci - I am praying everything works out well! *hugs*

Also, had a not so good day yesterday I was just dizzy and nauseous all day, I only really wanted soup to eat, ended up fighting with my bf over that because he can't understand everything I'm going thru...then he dropped the bomb, I knew it was bound to happen...he told me he wishes I never had this surgery, he wishes that he talked me out of it the night before and he's so frustrated with me being so miserable and never feeling well and blablabla. It really stung to hear that he apologized later, but I'm still hurt!

So I had my 1 month visit today, everything went well They said I can start on solids now, just to take it easy and not all at once. I have been struggling with getting my protein in, so they said that is probably why I stalled and then gained 2 lbs, my body is holding on to whatever it can because I'm not giving it enough. Soo, I'm hoping that it will be easier to get protein now, it's got to be! Nutritionist said that I can't have BREAD, obviously, but I can have Naan or flat out hungry girl breads...so I'm looking fwd to making a little healthy pizza sometime soon! She also gave me two sample shakes of the premier protein, 30g in one...I'm hoping that one agrees with my picky pouch! Was also finally given the Zofran for my nausea, and then they sent me to the hospital to make sure my calf pain wasn't a blood clot...I'm home now, so it was all good

Thank you! It sounds yummy...what does it taste like? Is it really eggy?

Thanks...I do have a uti, and I definitely haven't been drinking enough fluids, maybe it's water retention from not drinking enough...idk. it was just a total shock

I totally understand! I was just saying yesterday that I need to carry a big jug around with me lol..like one of those Coleman or igloo things! I found this water thing online last night tho, called hydr-8...it's a water bottle that measures the ounces and has times on it...looks like it'd be good for us http://hydr-8.com

Omg...can someone please tell me how I gained 1.2 lbs??? I was stalled last week...I stopped checking the scale for like 5 days and decided I'd check this morning. To my surprise I gained 1.2! I'm so sad and so discouraged right now I want to cry

I'm sorry you're having issues still I hope you feel better soon or get some answers at least!