Lyndsey,
I cannot imagine the immense pain and guilt you feel. I truly appreciate you sharing her story. It is so easy to get caught up in the triumphs on the boards that we may forget or brush aside the fact that it is major, life changing surgery. You are such a wonderful person to remind us of that and to also remind us that we are our best medical advocate. If someone isn't listening to us, we need a second and third and fourth opinion.
I am so sorry for what you and your family are enduring and will keep you and your entire family in my thoughts and prayers. I pray for closure soon. You and your family deserve answers. Keep up the fight for your sister!
Jen